Posted 5/25/2006 9:40 AM (GMT -7)
Thank you everyone for your advice.  I really appreciate it.
 
The morning after my initial post I had another episode.  When I woke up I had trouble breathing and i was wheezing pretty badly (which isnt that unusual for me) so I took my asthma meds. After about a minute or two i felt like two REALLY hard thumps in my chest and then my heart started racing.  Within a few seconds I got really dizzy and passed out AGAIN!  Thank GOD my mother was still home and heard me fall.  She said when she felt my pulse, she could hardly tell one beat from another.  By the time the paramedics got to my house I was in VF and they shocked me.  At the hospital they treated my asthma, but when my heart rate kept going up into the 200s they realized there was something wrong.
The er doc did a couple of ekgs and he said i had a prolonged qt interval.  The cardiologist ran more tests and confirmed it.  They admitted me for the next couple of days ( i just got home this morning) to monitor me and to see if it was caused by my medication or not.
 
When they asked if i or anyone else in my family had symptoms of long qt syndrome before, my mother said that i would faint a lot when I was younger, but it was attributed to asthma.  My sister has also had fainting spell thet were thought to be from asthma.  My mother also had twins before me that died from sids.  Upon hearing this the cardiologist tested my sister and she too had a prolonged qt interval.  Which he said confirmed that we have Long QT Syndrome.
They gave me atenolol and monitored how i tolerated it with my asthma.  So far so good.  They want me (and my sister) to consider having and ICD implanted since i've had a life-threatening episode.    I think that will be a last resort if the beta blocker doesn't work or causes problems with my asthma.
I'm glad that I finally have answers, but I wonder why it was never picked up before.  I've been hospitalized numerous times and you'd think they would have seen this before now.  I have to go in to see the cardiologist ever couple of days to monitor my progress.
 
Does anyone know anything about LQTS?  I'm really scared (even more than before).  My life has been turned upside down and from what i've read LQTS doesn't sound good. sad
Posted 5/25/2006 10:04 AM (GMT -7)

Jazziegurl,

I am so thankful that your mother was home and called EMS. It is a good thing they found this out because now you can get the help you need. I don't know much about Long QT syndrome but I do know it is serious. Do a google on it and read all the information you can. You need to educate yourself but don't make the mistake of thinking you know more than your cardiologist. Some people make that mistake. Use the info to ask your cardiologist about questions and fears.

Be sure to give the ICD implant serious thought. You may need it. Stay current with your cardiologist and don't hesitate to call him/her for questions or help. Don't take chances and make sure your cardiologist knows about all your symptoms and epsidodes. Some people try to hide things because they don't want to go on a certain medication or have a needed surgery. That kind of behaviour could get you in serious trouble. Make sure that your sister takes this serious too.

God Bless and keep in touch here for support and encouragement. :-) Hope you will be at our next chat!

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