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Rockyh
New Member


Date Joined Jul 2006
Total Posts : 12
   Posted 7/8/2006 9:02 PM (GMT -7)   
I am a 46 year old male. A few years ago, I started having pvc's for a few days every few months. My cardiologist put me on Toprol, but it dropped my heart rate to 29 beats a minute. Then he tried Coreg, but it immediately made my face red and made my heart race. He told me to get off of caffeine. I didn't have pvc's for about a year, then my face started flushing many times a day. I started getting pvc's when I laid on my left side or back. I wore a holtermonitor for 24 hours. It showed about 20 pvc's per minute (worse than 20 roller coaster drops) from the time I laid down at night to the time I got up, but very few during the day. By the way, I have sleep apnea, and have used a CPAP machine for 10 years. I was so tired from not sleeping. The doctor prescribed Provigil. For six weeks, I had not PVC's, great energy, and lost 22 excess pounds. All of a sudden, my pvc's returned with a vengence. I feel great from the time I get up, until about 9pm at night when I sit in lounger to watch T.V. The pvc's and pounding heartbeats and dizziness kick in. If I take an Ambient sleeping pill, I can eventually fall asleep. Without, I lay awake all night, unless I lay on my stomach (which is nearly impossible with a CPAP mask on. Has anyone heard of pvc's that occur more frequently and violently when on your back or left side? Has anyone gotten increased pvc's with Provigil. I am on Lotrel and Paxil. My family doctor says my blood pressure is 160/94, but my cardiologist always finds it to be 135/78. Any relayed experience will be appreciated. For example, I am up right now because my pvc's are so bad lying down. My blood test show no thyroid problems and normal readings across the board. I am getting an ultrasound on my neck Monday (lump on lower left side). I had an endoscopy last month with no abnormal findings....Rocky

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 7/9/2006 4:40 AM (GMT -7)   
Hi Rocky,  I just wanted to welcome you to healing well forum.  We are happy to have you.  There are many people who post here that have problems with PVC's...I am not very knowledgeable on this subject.  I am sure that someone will be along shortly to reply to your post, weekends tend to be alittle slower than weekdays.  I'm sorry for all your going through.  I hope you continue to visit us here as this is a wonderful site for information and support.  Take care


 


Rockyh
New Member


Date Joined Jul 2006
Total Posts : 12
   Posted 7/9/2006 6:47 AM (GMT -7)   
Thanks Elisha, I am looking forward to learning from others' experiences. Rocky

Hopes
Regular Member


Date Joined Feb 2006
Total Posts : 297
   Posted 7/9/2006 7:36 AM (GMT -7)   
Hi Rocky,

I'm sorry you are suffering from these PVC's. They are annoying and can be frightening. I have had premature heart beats for over 5 years. PAC's and PVC's are just premature heart beats, I'm sure you know. Has your heart been completely checked out? Is it structurally normal? If the answer is yes, then they are insignificant and will not hurt you. It really is not uncommon to feel them more at night, especially laying on your left side. The more you think about them or notice them, the more you are going to have usually. I have found that they come and go at their own pleasure with no rhyme or reason. Believe me if it were at my pleasure-they would go away forever!!!! I hate them. Also when they are gone for awhile, it seems to really shake me up when they decide to make a return appearance. Believe it or not, I usually can sleep right through them now. If they wake me up, I'll just roll to my right side and turn on some soft, low music and really focus on its lull until I drift off to sleep again. However I get times when I just can't deal with them and I start to worry all over again. Then I try to go on line and connect with others who have them. That usually helps me calm down and just endure them until they are quiet again. Did you know there are people who have 20,000+ of these things a day and do not even bother with medication???? WOW-helps me with my struggles. :) Take care and I hope you have a PVC free night tonight!!!

Dandy
New Member


Date Joined Jul 2006
Total Posts : 4
   Posted 7/9/2006 8:24 AM (GMT -7)   
 Hi Rocky,
 I also have had another " bout " with Thumper ,as I call my Heart. PVC's & PAC's .. Just went thru all the tests ,  Other than the  20 plus times a minute, Healthy Heart ..  I also had a PDA Closure in 1959, ( Ductus valve ) I was 4 , am 50 now ,  Diagnosed w/ WPWS in 1984 ( Wolfe Parkinson White Syndrome ) Had MVP about 15 years ago , now is gone , same cardio that Diagnosed it , now cant see the MVP .. Amazing that our Hearts can " heal " themselves ..
 A couple of things here .. First

There are medicines that may help slow the rhythms down when they occur, but don't keep them from occurring, while others - "antiarrhythmics" - may help suppress them. If the episodes are happening frequently enough, or they are quite distressing, there is a procedure called an electrophysiology study which is a specialize type of heart catherization; it measures the electrical system of the heart and then tries to induce (in effect, reproduce) the abnormal rhythm. If the rhythm is induced, the extra connection is mapped out and then a special catheter is inserted into the heart (from the groin) and the tip placed next to the connection. Ultrasound is then emitted at the tip, which disrupts the connection, thereby curing the rhythm permanently (there's a 90-95% success rate for this procedure).

Thyroid disease can possibly make extra heartbeats worse, or more common, or produce a type of abnormal rhythm called atrial fibrillation if the thyroid is overactive (hyperthyroidism). Too much thyroid stimulates the system, and thus can cause extra heartbeats. It is diagnosed by a blood test. If you are concerned, then you should ask your Doctor.

 My  Cardio said if mine continued and became unbearable he would  recommend  the electrophysiology study . You may check into it .

 Another is... Have your Thyroid checked ..  it's a simple blood test , if found deficiant or over active , Medication , will help .

 Next is Anxiety . I have read  that Anxiety can " cause " or  Enhance PVC & PAC activity . And Believe me it's also Visa Versa , Having them can cause  Anxiety ..  I think Hopes gave a good Idea , turn on music  or something to take your mind "off " the flips & Flops & Ka-thumps ..  Myself , if Thumper is acting up in day time , I put on Comedy Central, or the Golden Girls ,  I get to laughing , and hours later , I realize I had " forgotten " about the PVC's & PAC's .. You might give it a try .. Works for me ..

Hope you feel better & get some relief. Take Care .


Bria
Regular Member


Date Joined Apr 2006
Total Posts : 41
   Posted 7/9/2006 9:40 AM (GMT -7)   
Hello All!
 
I also had Wolff Parkinson White Syndrome, I had 2 ablation done in 1996.  The second one was successful, and so no more galloping heart beat anymore.  However, I suffer severly from PVC's.  Mine get much worse when I am trying to sleep , especially on  my back.  They also are more noticable during and around the time of my menstual cycle.  I have been to an electrophysiologist and he said not to worry, because my heart is also structurally normal.
 
I have to refrain from going to the ER every night they get bad, because I am so in debt with medical bills from these annoying beats!  Sometimes I feel like I am going to pass out from them because I feel like my heart isnt beating "right", but they have never captured an arrythmia since the WPW episodes.  I wore a Halter monitor and it didnt even happen then really, then I had an event monitor but it only ever showed sinus tach.
(Once the PVC's start happening, I then work mysefl into a panic attack!.
 
Take care and I also think that breathing exercises and soft music will help.  I truly believe anxiety is a major culprit in these things!!

Dandy
New Member


Date Joined Jul 2006
Total Posts : 4
   Posted 7/9/2006 10:23 AM (GMT -7)   
 a hug & prayer  to you Bria , yeah my WPWS was diagnosed in 1984, while having an " Attack ". of course my Heart rate over 200 BPM , prior to that was " panic attacks " because I'm Female ?  I was on Inderal for Years,   That didnt work , probably because I was On it for Years ..
 I havent had enough episodes to have the ablation  , or maybe to be honest , I'm rather stubborn, and rarely go to Dr.s or ER ..  even when  Thumper is doing the  " dance " of 200 bpm to 40, back to 180 + , etc. Plus the memories of being 4 years old in the late 50's and going through open Heart Surgery.. ( NEEDLES, NEEDLES , NEEDLES ) 6 weeks of Prodding & Poking & being a pin cushion ..  Doesnt help my Psyche to this day .
 But back to the Subject..  The Mind controls, so relaxation, humor , love .. all helps the whole body . The old saying Mind over Matter, comes to mind ..  When Thumper starts dancing , I  change my focus.. as I said , comedy usually does it for me . then again  sometimes tragedy does, I'll watch CNN or Fox news &  pray for all our troups and the victims of Hussein , and Thank my Higher Spirit , all I and my family have to  Stress about , is Thumper & and a few Medical bills ? ( they can cause Real Anxiety yeah ) But all in all life is good, and can be controlled to an extent by  additude/ reaction to negative and by being thankful you are not somewhere else .or sombody else .
 * No harm or negative intended ..  just my living better opinion .
 anyone wanna email , and talk more .. General chat or Support ,  DANDYSOMMARIVA@msn.com .  I have lots of junk mail , so put Heart in subject ..

Rockyh
New Member


Date Joined Jul 2006
Total Posts : 12
   Posted 7/9/2006 2:50 PM (GMT -7)   
Thanks everyone. It just steps on my last nerve everytime my cardiologist says, "Most people cannot feel pvcs, but some find them to be a little annoyance." I'm not sure what to do with Provigil. The doctor says it is up to me. If I take it, I get no pvcs or sinking chest feeling from 7am-9pm, but from 9pm-7am, the pvcs are twice as bad as normal. I hate to keep perking myself up with Provigil, and then putting myself to sleep with Ambient. On the positive side, Provigil makes me three times more energetic and focused. The software guys who work for me hate it because I have so much more energy to follow up on their work and research new projects. Does anyone take Provigil and eventually have their pvcs come and go the same as without using it? Tks ROcky

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 7/10/2006 9:45 AM (GMT -7)   
I was briefly on Provigil for fatigue related to my MS.  I don’t have PVC's but I have bradycardia and a pacemaker.  Now I have been having periods of Afib and Arrhythmia’s so Provigil was stopped to see if perhaps this was a cause for it.  Which it wasn’t as the Afib and arrhythmias just kept on coming...Perhaps it is different with PVC's?  I don’t know

Elisha

http://www.healingwell.com/donate


 


Rockyh
New Member


Date Joined Jul 2006
Total Posts : 12
   Posted 7/11/2006 6:52 PM (GMT -7)   
I had a good day yesterday, but at midnight last night, I woke up extremely nauseated with pvc's everyother heartbeat. I got up and walked around until about 4am. I went to work at 8am, but the nausea
and dizziness got worse and my chest and neck started hurting some. Since I work at a hospital, I went to the ER. They said my blood pressure was 179/106. They did an EKG and caught several PVCs. The monitored me and took blood. When I laid down, I averaged 20 pvcs per minute. On my right side, I averaged 6 pvcs per minute, and sitting up, I averaged 1 pvc per minute. My bp went back down to 140/84. Since I have trouble with Toprol and Coreg, they wanted to give me Inderal. I read up on this beta blocker, and it seems just like Toprol, only with more side effects. Since I have a sore throat and a slight temperture, I may be just experiencing a virus that is going around. Right now, I am having no pvcs, but I am still nauseous and weak. Elisha, I think I am going to start back on Provigil as soon as I am over this bug. If I am going to suffer pvcs either way, I may as well feel good during the day and lose weight in the process. Rocky

Bria
Regular Member


Date Joined Apr 2006
Total Posts : 41
   Posted 7/12/2006 2:35 PM (GMT -7)   
I have been worrying about my PVC's a lot lately.  I feel like the cardiologist missed something, and that one day, my heart is going to go into a dangerous rhythmn --- I especially wory about this when I have the long runs of PVCs.  I HATE how NOTHING triggers them.  I don;t have caffeine at all, (and I LOVE coffee), and I still get them, worse than ever.  My doctor told me that I could have caffeine..... but Im too scared. 
 
The other day, I was out shopping, and I started getting PVCs. THey took my breath away and I got so scared I was dying. 
I just want to know what the heck causes them for me.  I really am starting to think its Hormonal. And I never tried taking the Mg supplement like the EP nurse told me to do.... So i may try that.
 
Since I had WPW , Im so scared seomthing else is wrong...... but I know other people get PVCs and they DON't have any rhyme or reason. THey are SO frustrating and uncomfortable :( 
I hope yours are getting better Rocky!!!  I have never heard of Provigil, but if its a stimulant, I would stay away from it.  I know that stimulants really increase palps with some people (not me though!!)
 
Bria

Rockyh
New Member


Date Joined Jul 2006
Total Posts : 12
   Posted 7/23/2006 9:45 PM (GMT -7)   
I definitely know the "take your breath away" feeling.  I hope they ease off soon.  I went to Hilton Head with my 18U Girls Fastpitch All-Star team on the 14th.  My PVC's were hitting just a few a minute during the day, but everyother heartbeat all night long that Friday and Saturday.  Sunday morning they stopped.  We took the girls to a church on the inlet that was built in 1750. During the sermon,  one of the girls sprayed some "Sweat Pea" perfume in the air.  My PVC's immediately kicked in everyother heartbeat again.  I ran outside watched a guy catch a shark on the pier.  Anyway, they continued until Monday morning.  After three nights with no sleep, I took a whole Provigil at 6am.  By 10am, my PVC's had stopped.  Since then, I get about 20 minutes of pvc's when I go to bed, but they generally stop.  Did I mention the 4 days of withdrawals I got when I quit Abien on the 10th of this month?  Back to the story.  Unfortunately, taking a whole Provigil some time necessitates a Benadryl before I go to bed to take the edge off.  I hope it's not addicting.  Anyway, I think the worse of this PVC spell is over for a while.  I even went mad today and drank a 32 ounce sweet tea (first caffeine in 6 weeks). So far so good.  I can't identify all the triggers and connections.  Sometimes, I swear it's Sprite, or chocolate or caffeine; and sometimes I swear it is stress or perfume.  Anyway, good luck.  Thanks for the support.  Rocky

maxx
Regular Member


Date Joined Jul 2006
Total Posts : 141
   Posted 7/24/2006 10:45 AM (GMT -7)   
I feel at home. I have been getting "benign" PVCs for years. They really depress me! I too have heard the "most people don't feel them" story. They have ms so rattled that I am scared to go on vacation in case I need to get to a hospital quick! Any advice would help. Thanks again
Maxx

Rockyh
New Member


Date Joined Jul 2006
Total Posts : 12
   Posted 7/24/2006 3:26 PM (GMT -7)   
Maxx, as you know, PVC's come and go. Weird, mine just quit a couple of days ago after the worst bout ever, and now it feels odd to get to concentrate on my carpal tunnel and shoulder pains. My pvc's may be a little different than most -- very few during the day, but the second I would lie down, they would kick in (especially bad on my back or left side). My best advice is a brisk 15 minute walk a couple of times a day, no caffeine or chocolate, and no sleeping pills. PVC's supposedly won't hurt you, but the sleepless nights can't be good for you. Hang in there. All of a sudden, they will be gone for another few months. Rocky

maxx
Regular Member


Date Joined Jul 2006
Total Posts : 141
   Posted 7/27/2006 7:36 AM (GMT -7)   
Hi Rocky,
 
Why no sleeping pills? 
 
MAXX

Rockyh
New Member


Date Joined Jul 2006
Total Posts : 12
   Posted 7/28/2006 5:55 PM (GMT -7)   
Maxx, when the new non-addictive sleeping pills come out in September (Rem??cor), I may try them again. Ambien landed me in the E.R. After about three weeks of using them (and sleeping well), I skipped a night. Not knowing about the addiction, I was in the E.R. the next morning with chest pains, extremely high B.P., nausea, and pvcs every other heartbeat. Of course they said, "Oh, pvcs, most people can't feel them". Fortunately, I evaluated everything and surfed the web until I diagnosed my problem. I went 4 consecutive nights without sleeping at all and feeling like death warmed over before things got back to normal. I tried Benadryl for a couple of nights, but it increased my Pvcs. Weird thing, my pvcs stopped for about a week, but restarted yesterday. I am trying to stay off of Provigil for a couple of days to see what happens. Today they were very bad, so feeling sorry for myself around 10am, I got a big glass of sweet tea (it couldn't make 25 pvcs a minute much worse) and the pvcs stopped within 2 minutes. It's been 11 hours without a pvc, but I am feeling groggy and a little anxious. I'll keep you posted how my Provigil strike works out. Tks ROcky

maxx
Regular Member


Date Joined Jul 2006
Total Posts : 141
   Posted 7/29/2006 8:22 AM (GMT -7)   

Hi Rocky, 

Thanks for the info.  That is really interesting about the sleeping pills; I have been taking lorazepam for quite a while (they were given to stop the pvc's).  Mine have also came back recently.  They are driving me nuts!  I keep thinking i should see someone again, but everytime I do I am told to ignore them.  They are really having an impact on my quality of life.  Is it not interesting that after you had the tea,. they stopped!  Makes you wonder.  Talk to you soon.

MAXX

 


Bria
Regular Member


Date Joined Apr 2006
Total Posts : 41
   Posted 7/29/2006 2:18 PM (GMT -7)   
Maxx,
 
Is Lorazepam Xanax??  That's what I take when I get lots of PVC's ... If i don;t, then I end up getting a panic attack because I think my heart is going to stop beating or something.  WHen you guys get lots of pvc's, does it feel like your heart is literally jumping around in your chest? Its so scary, sometimes I feel like its not going to go back to a normal rhythm.  But your right, every time I either go to or call a doctor, they say "dont worry about them." 
I think thats BS. 
My quality of life is also not very good right now. Im so worried about them I WON'T drink caffeine at ALL (and i used to LOVE soda and coffee and chocolate!), drink any alcohol, and I just am getting over the worst sinus infection ever.  I was too scared to take ANY cold medicine (arent they supposed to be bad for your heart)?  ANd then the antibiotic the doc prescribed me was Ketek (telithromyocin) and one of the warnings said Dont take if you have heart rhythm disturbances .  Do PVCs count??  I stopped taking it because I was scared.   :(

Rockyh
New Member


Date Joined Jul 2006
Total Posts : 12
   Posted 7/29/2006 7:54 PM (GMT -7)   
Bria, I have the sinus trouble year round. Aleve Sinus used to help, but it definitely caused my pvcs to restart. I have quit using Flonase just in case. After I was off caffeine for 6 weeks and my pvcs were just as bad as ever, I have over the past couple of days, started drinking a glass of tea at lunch time, and it, just like the Provigil, stops the pvcs until this time of night, when I slow down in my recliner. They are hitting me right now. I know that I can go lay on my stomach in bed and they will slow down. I want so badly to find something to stop them at night time. Unfortunately, beta blockers slow my heart into the upper twenties. Since my normal heart rate is 58, it doesn't take much of a slowdown to wipe me out. The doc gave me Klonopin to try but it left me too groggy to function. Just remember, we aren't REALLY feeling pvcs, it's just a figment of our imaginations. As far as the "heart jumping out of the chest", of course the doc says it is just quiet at night so I feel it more intensely. I put my cell phone on my chest the other night and my heart literally bounced it to the floor. What an imagination I have... !@#$%

Bria
Regular Member


Date Joined Apr 2006
Total Posts : 41
   Posted 7/30/2006 11:40 AM (GMT -7)   
Rocky,
 
Do you also get migraines?  I get migraines and I get lots of PVC;s on days I have a bad one.  I think it has something to do with the cortisol and adrenaline release. 
Thats weird that caffeine will stop your PVC's.  I used to be a big caffeine junkie, and I swear I didnt have half as many PVC's as I do now that I don't drink it at all.  I think I am going to start incorporating it back into my routine, slowly though!!  I have tried Klonopin too, it makes me loopy!

maxx
Regular Member


Date Joined Jul 2006
Total Posts : 141
   Posted 7/30/2006 6:12 PM (GMT -7)   
Hi.

Bria, it is Xanax. They must prescribe it to everone who has these! I get migraines; you have a good point about them - it seems to fit. I feel the same as you - won't drink at all, no caffeine in anything - but it really does not make any difference.

I won't travel at all - what the heck are these things? I also feel that they are hormonal, they worsen at the time of my period. I do feel better knowing that I am not alone.

Take care all.
Maxx

Bria
Regular Member


Date Joined Apr 2006
Total Posts : 41
   Posted 7/30/2006 6:50 PM (GMT -7)   

Maxx,

Yes, they are much worse around the time of my period.  IN fact, when they are really bad, I always get my period the next few days.  I wonder why that is.....

I have been getting a lot of them today for no apparent reason.  It does help to know we aren't alone.... I'm scared to travel too, but I will as long as there are no long car rides by myself.  ( I freak out!!) 

I don't know how docs can just blow them off so easily too.  Do you have any other heart problems that you know of? 

Take care!!

 


Rockyh
New Member


Date Joined Jul 2006
Total Posts : 12
   Posted 7/30/2006 8:22 PM (GMT -7)   
Well, I can't comment on the monthly vistor angle. I find when I travel, if the pvcs are getting to me, I sit my seat up straight (not as declined). It helps, like lyng on my right side or stomach. Anyway, I have been continuing my caffeine experiment. I woke up this morning with no pvcs. On my way to church, they kicked in. I stopped and got a can of coke. They were gone within 10 minutes. I felt a couple while I was in the movies this afternoon, so I stopped by Mickey D's and got an unsweet tea. Since it was a 32 ouncer, it made me jittery for a couple of hours, so I painted my garage. I was heading to bed, feeling about normal, but then my kids drew me into an argument over "she took my shirt" "she hid my computer mouse" "she turned the AC down in my room"... I sent them all to bed, and I am sitting here waiting for the pvcs to come back. I had a pretty stress-free weekend until a few minutes ago. So far, even with the stress, no pvcs. Tomorrow, I am going to try a 12 ounce diet coke with breakfast, a sixteen ounce unsweet tea with lunch, and another with supper. I'll let you know how it goes. Oh, in answer to your question, I don't get migranes, but my wife does, so I feel your pain....Rocky

maxx
Regular Member


Date Joined Jul 2006
Total Posts : 141
   Posted 7/31/2006 7:40 AM (GMT -7)   

Hi!

Bria, as far as I know, I don't have any heart problems.  I have had all of the tests (echo, stress, holter, blah-blah)........and the only thing that showed up was a minor v-tach episode about three years ago.  Everything is benign (according to them).  It does really bother me when they blow them off.  Should we really just be ignoring them if we don't have any structural problems? 

What is Klonopin?  I was put on Atenonal once -  It lowered my heart rate too much, so I came off of it.  Do any of you exercise?  I do and while I am, they usually are better. 

If so many people are experiencing these, maybe they really are "normal".  I hate it when they relate them to stress; mine are not related to stress as they happen in the least stressful situations.

Rocky, the caffeine must be kicking your heart back into a "normal" rate.

Take care.

 

Maxx

 

 

 


maxx
Regular Member


Date Joined Jul 2006
Total Posts : 141
   Posted 7/31/2006 3:47 PM (GMT -7)   

Hi Guys,

Does anyone know if low blood sugar can make your heart go crazy?  I just went for a swim and had to get out of the pool due to palpitations.  My blood sugar was low.  This is driving me crazy!  I think I am going back to the Cardiologist (I was there 2 months ago).  Any advice would be helpful.  Thanks.  MAXX

 

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