thank you rj and elisha. i heard back from the card's office, but they were just clarifying what the problem was and said they'd pull his chart and someone would be getting back to me. nick has several valve issues, but he's had 4 caths this year so hopefully they would have noticed any problems there. he does have a cadaver valve in the pulmonary spot that they are watching closely. so far it's doing ok. and he had a stent in his right coronary artery because it was kinked (a problem with placement after his third open heart).
i'll let you know what he says. thanks for your replys.
luanne, mom to nick, 12. born with aortic stenosis, coartation of the aorta, mitral stenosis, narrowed abdominal aorta, underdeveloped left coronary artery. 3 open heart surgeries - 2 days old, 13 months and 3 1/2 years old. 7 caths, 2 stents - subclavian artery and right coronary artery, limited activites.