Hi i have quite a long medical history so iw ill try and be brief but consise!
I am one of those 36 year old wrecks! You know the ones where Drs roll there eyes in disbelief!!
I had Endometriosis and Adenomosis(Inside womb end) which i had a hysterectomy for at age 26yrs. I used to be a nurse and soon after giving birth to my son a patient caused me and another nurse to fall which left me with 5 discs disintegrating and osteoarithritis. This left me with Fibromyalgia (chronic pain).
I developed adult onset asthma when we were living in damp council acommadation but was it was very mild.
I then had developed pericarditis, i had an xray which showed fluid around the heart. I had inverted T waves on my ECG along with other changes which were abnormal but no saddle on ECG. They said heart attack alsorts at the time. I had a couple of echos which which showed some weakening to valve and regurge along with the bright fluid etc. They had problems deciding how to treat me due to my asthma s i am allergis to Nsaids the normal treatment here for pericarditis. They also did bloods and couldnt find a vspecific virus which had caused the pericarditis. They started me on Prednisolone and eventually sent me home telling me i would pick up and be fine!! Wel i wasnt it took 5 months to be able to go out and lead anywhere near the already limited life i had lead with my back injury etc. After 6 months i was hospitalised with the same problem again and it showed up on xray and ecg again. I had steriods again and it settled. That was 2001 whent his all started. Since then i have episodes which are becoming more and more frequent where not neccessarily the pain starts again but i becaome short of breathe, chest is tight, sometimes with pain, blue lips, funny rythms etc. Since that time my asthma has become very chronic and i get episodes where both my heart and lungs become inflammed. The drs blame my asthma although after my latest episode the drs have finally admitted it could well be both my heart and lungs becoming inflammed. Each time they treat me with steriods as although my ECG shows some changes they say they are not dangerous. I have a very slow heart rate and very low blood pressure but at times due to one of the asthma meds this goes very high. But i am now stopping this medication. Because they dont understand the complexities of the cause it makes treatment difficult. I wonder if any of this sounds failiar to anyone.
I am convinced i have an autoimmune illness but i have had blood tests and have no markers to prove it.
I understand they are doing their best and even drs dont know everything. I just get frustrated because if i am having a good day with my chest my back can start. The endometriosis left me with bladder and bowel damage to date i have had 7 operations the last one on my bowel Jan with more expected on my bladder.
Most of the time i can cope in my little bubble of my home as i have all the eqipment i need. Its just sometimes i get fed up with it all!!
Lots of love