Anyone have/or had White-Parkinson Syndrome

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BlueOctober
New Member


Date Joined Aug 2006
Total Posts : 13
   Posted 8/18/2006 9:37 AM (GMT -7)   
I had this all my life and didn't ever realize or know it.  My doctor said that I should have something done about it because later on in my life it could have bad affects.  Just wondering if anyone else here has had a catheter ablation for the WPS syndrome? 

Bria
Regular Member


Date Joined Apr 2006
Total Posts : 41
   Posted 8/18/2006 6:27 PM (GMT -7)   

I had WPW until I had it ablated in 1996.  Mine was pretty bad, I ended up in the ER A LOT growing up, especially in adolescence.  Having an ablation was the best thing I have ever done.  Afterwards, I was able to have caffeine, exercise, etc all the things that would trigger my SVT beforehand.  I think my case was fairly serious which is why they suggested I have the ablation (twice bc the first was unsuccessful).  I was experiencing arrhythmias quite often.  I know that a lot of people can live without being treated for it at all.  If never get SVT episodes, or passing out, etc, I would get a second opinion.  My cardiologist now said that even one episode a year is NOT grounds for having an ablation.  Have they prescribed a beta blocker for you? 

How did they discover that you had WPW???  I just met someone I work with whose daughter is 35 and she also just found out she had WPW.  Im trying to help her through it, its scary.  If you have any other questions, feel free to ask me.  :-)

Bria


Bria
Regular Member


Date Joined Apr 2006
Total Posts : 41
   Posted 8/18/2006 6:29 PM (GMT -7)   
Oh and by the way, your doctor said "later in life you could have bad effects?"  Thats not a very scientific or NICE and empathetic comment.  I may think about switching docs if I were u.  My pediatrician who discovered I had WPW actually has it himself.  Guess how old he is, still wonderful, and still practicing medicine???  85!  And he never had an ablation!!   Hang in there!!

BlueOctober
New Member


Date Joined Aug 2006
Total Posts : 13
   Posted 8/24/2006 10:49 AM (GMT -7)   
Bria,

I actually already had the ablation last summer. The doctor who did the ablation said that it could pose problems later on in my life and highly recommended it. I didn't have any problems or side affects before the surgery. You sound like you had a really terrible time with the WPW!!!! Glad you are doing better now!

My family doctor was doing a routine exam and did an EKG. He called me back in and explained the WPW and recommended me to a heart specialist.

Is the girl who is 35 that found out she has WPW going to get the ablation?

Thanks for all the info! tongue
 
Rachel

questions...
New Member


Date Joined Nov 2008
Total Posts : 12
   Posted 11/15/2008 9:18 AM (GMT -7)   

 

     Hello guys!  My husband has had WPW all of his life, but it was not diagnosed until his late teens, and he is now 27. My husband just underwent an ablation procedure that was unsuccessful because they found out his extra electrical pathway is on the outside of the heart, in a hard to reach location, right near a major artery, making the procedure now riskier and less performed. We are now mulling that over trying to figure out what to do. My husband is unable to enjoy physical activity without having an episode, and ever since the unsuccessful ablation is worse off (more frequent SVT attacks) but I keep reading on here that it is normal to feel worse at first. Anyway, if anyone has heard of this...what the doc called "a rare from of WPW" please let me know!! We are lost! Thanks!  Jen and Vic in Florida


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 11/15/2008 11:51 PM (GMT -7)   
Wolff-White-Parkinson syndrome

If there's an extra conduction pathway, the electrical signal may arrive at the ventricles too soon. This condition is called Wolff-Parkinson-White syndrome (WPW). It's in a category of electrical abnormalities called "pre-excitation syndromes."It's recognized by certain changes on the electrocardiogram, which is a graphical record of the heart's electrical activity. The ECG will show that an extra pathway or shortcut exists from the atria to the ventricles

Many people with this syndrome who have symptoms or episodes of tachycardia (rapid heart rhythm) may have dizziness, chest palpitations, fainting or, rarely, cardiac arrest. Other people with WPW never have tachycardia or other symptoms. about 80 percent of people with symptoms first have them between the ages of 11 and 50.

The most common procedure used to interrupt the abnormal pathway is radiofrequency or catheter ablation. In this, a flexible tube called a catheter is guided to the place where the problem exists. Then that tissue is destroyed with radiofrequency energy, stopping the electrical pathway. Successful ablation ends the need for medication. Whether a person will be treated with medication or with an ablation procedure depends on several factors. These include the severity and frequency of symptoms, risk for future arrhythmias and patient preference. Reference: AHA

I have seen patients after the surgery that do wonderful and life is good.

Jen and Vic in Florida, I am so sorry your case is complicated and that you can find a way round Vic's problem to get the procdure done.

Take care and keep on talking to us.

Gentle Hugs

Kitt


 

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