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Posted 11/28/2006 8:59 AM (GMT -8)
Im new here and i'm after some advice and support. Im 20 years old and for the past 3 years ive been experiencing extreme dizziness and blackouts when i stand in one place for too long, i also always feel tired and like ive got no energy yet all my blood tests have been normal. Doctors have always ignored my symptoms and have said that i will grow out of them which has frustrated me so much. It is now starting to affect my life and work and finally i am being listened to after whilst at work (im a student nurse) a machine read my pulse as being 220bpm whilst i was feeling dizzy. i have had a 48hr tape done and the dr said there were 'no significant arythmias' and i am due to have a tilt table test next week. I am really anxious about the test and the results. I think i am more anxious that they wont find anything and that i'll be ignored again. I know there is something wrong and i cant continue like this but my cardiologist seems determined to prove that im making it up rather than being determined to help me. Has anyone else experienced these symptoms? I have found information on vasovagal syndrome but i dont know alot about it and the treatment. Sorry to waffle on, im just very scared that i'll never feel well.
Sarah

Post Edited (sarah20) : 11/28/2006 10:09:43 AM (GMT-7)

Posted 11/29/2006 9:45 AM (GMT -8)

Hi Sarah, I am so sorry that your going through this.  I too have irreg. heart rate but I have a pacemaker (i'm 33 yrs old) which I got for bradycardia/sick sinus syndrom.  Now I am having tachacardic arythmias which my pacer is picking up.  My Cardiologist who I saw yesterday is also at a loss at what to do for me...I have an autonomic disorder which causes all these problems.

As for you, I know it is fustrating when your having to wait for tests and the doctors dont seem to be working with you the way you want them to.  In my experiance with the medical profession (which is extensive) I dont believe that your doctor would order tests for you just to prove that you dont have an illness.  It would be more to the point that he is trying to rule out something or find what is going on.  I have had a Tilt Table test done and this was what the deciding factor was that determined that I did indeed have an autonomic disorder.  I have orthostatic hypotension and the TT test showed it.  Sometimes it takes a while to get the answers that you want or need but, you have to look at that fact that your so young and most people your age are not faced with these type of problems.  Hang in there, and know that you arnt making this up and they will find the problem hopefully soon.  Please do post again and let us know.

Posted 12/20/2006 1:09 PM (GMT -8)
Just nwtaed to let you know that i went for my tilt table test, but due to unforseen traffic jams i arrived late and i was told i wuldnt be able to have my test. the equipment has now been sent off for calibration and they dont know when i'll be able to be booked in to have the test done. i did however get my 48 hour tape result (which at first the secretary refused to give me until i reminded her that they were my medical notes and i had a right to read them) which showed that during my blackouts and dizzy spells i was experiencing a heart rate of 170bpm but my consultant considers this to be insignificant eyes to me it is quite clear that my HR is the cause of my blackouts, maybe im wrong but i have a strange feeling im right. anyone got any ideas about my tachycardia? he also said there were no 'significant' arythmias. i do have a feeling something is being hidden from me
Posted 12/20/2006 2:50 PM (GMT -8)
Sarah.....have you had an echocardiogram by any chance. There's got to be something causing this rapid heartbeat. I am no doctor but you know when something just isn't right with your body. I've been going through the same kind of problems with my doctors making me feel like they are ignoring me. Obviously when you heart rate is up like that you are going to get dizzy and blackout. But then question is what would cause the heartrate to be so high. I feel so bad for you and i will be thinking of you. Sometimes my heartrate will be at 120 and it makes me feel sick. I can't imagine 170. Keep me posted!
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