Neurocardiogentic Syncope

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TeeB
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted Today 11:38 PM (GMT -7)   
Hi
I am new to this forum - I usually hang out in the RA,Fibro or Colitis section.  I was just curious if anyone out there is suffereing with NCS?  I just failed my tilt test for the second time.  The fainting has been worse than norm.  The Electrophysiologist increased my midodrine 5g to 3x daily to see if that helps.
 
Any good advice?
 
Tee
Trust in the Lord with all your heart, And lean not on your own understanding; In all your ways acknowledge Him, And He shall direct your paths.  Proverbs 3:5-6
 
Dx:  Rheumatoid Arthiris, Fibro, Asthma, IBS, Migraines, TMJ, Insomnia, Ischemic Colitis, Mitral Valve Prolapse, Vasovagal Syncope, Low Blood Pressure, Allergies, Bladder etc...
 
 
 


els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 12/19/2006 12:59 PM (GMT -7)   

Hey Tee, welcome to the cardio forum.  I know exactly how you feel!  I take Midodrine HCL 5mg (2 in am, 1 noon, 1 pm) I also take Florinef 0.1 mg for Syncope.  I had not heard of Neurocardiogentic Syncope before....but my problems started rather fast one day with low heart rate and fainting.  After being in hospital for several weeks I got a pacemaker for the heart rate and sent to a specialist hospital in another state for the fainting.  I also have had the tilt table test (funny, it doesnt take all that to know when someone is orthostatic) but my diagnosis ended up being Multiple System Atrophy which is a parkinsons type diease that effects HR and BP.  There are many autonomic disorders which are neurological that effect the blood pressure.  For me I have good days and bad days...My doctors have also added Ritalin to my med regime to try to help keep my BP up.  It is a terrible feeling the passing out and not being able to control it and function.

I eat alot of protein, salt and caffiene which also seems to help some...these were recommendations from my cardiologist.  Please keep us posted to how your doing...


Elisha
Co~Mod: Depression
Moderator: Heart & Cardiovascular Disease
http://www.healingwell.com/donate


TeeB
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 12/19/2006 1:06 PM (GMT -7)   

Thank you so much for your reply.  It is something I have to add to the list I guess!  Look forward to chatting with you sometime soon.

Merry Christmas,

Tee


Trust in the Lord with all your heart, And lean not on your own understanding; In all your ways acknowledge Him, And He shall direct your paths.  Proverbs 3:5-6
 
Dx:  Rheumatoid Arthiris, Fibro, Asthma, IBS, Migraines, TMJ, Insomnia, Ischemic Colitis, Neurocardiogenic Syncope, Allergies, Bladder etc...
 
 
 


els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 12/20/2006 5:41 AM (GMT -7)   
Your welcome Tee...Merry Christmas to you also tongue

Elisha
Co~Mod: Depression
Moderator: Heart & Cardiovascular Disease
http://www.healingwell.com/donate

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