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els
Veteran Member
Joined : Oct 2005
Posts : 4033
Posted 4/12/2007 12:09 PM (GMT -6)
ms_phd, Thank you for clarifying and reposting to Neurogurl as you have.  It often times is difficult to spot what one's intentions are when they first start to post.  If you would like to add your e-mail address so members can contact privately you can do so by going into control panel which is located next to log off at the top of your screen.  Then go to Edit Profile which will allow you to add your e-mail addy from there.  I do hope that you continue to post often.  Take care :-)
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Neurogurl
Regular Member
Joined : Dec 2006
Posts : 373
Posted 4/12/2007 12:43 PM (GMT -6)
Thank you Els!!
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Johnstone
New Member
Joined : Apr 2007
Posts : 2
Posted 4/12/2007 4:57 PM (GMT -6)
ms_phd:

I am curious what you meant about cervical pressure causing palinpsia. Do you mean disorders of the neck vertebrae? Could this be muscle tension? What is the mechanism? Blood flow? A pinched nerve that affects vision?

Thank you.

Johnstone
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ms_phd
New Member
Joined : Apr 2007
Posts : 4
Posted 4/15/2007 12:07 PM (GMT -6)
Neurogurl,

You're in great fortune to be in the Boston area.

How do I find the VS forum you mention?

I can't offer any advice as to the cause of your symptoms as palinopsia seems to have numerous causes, however I would suggest finding a physician you trust and going with their interpretation. Mass General and BID are good places to look for neuropsychiatrists and/or cognitive behavioral neurologists.
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ms_phd
New Member
Joined : Apr 2007
Posts : 4
Posted 4/15/2007 12:50 PM (GMT -6)
Johnstone,

Visual disturbances can seemingly be related to vascular compression.

The vertebral arteries in the neck can be compressed by the vertebrae (or other structures). You might imagine that if someone had been in an accident or experienced whiplash (numerous causes) they would be more likely to experience related phenomena secondary to diminished blood flow.

For example there was a group of patients years ago that reported experiencing visual disturbances. After extensive questioning they all seemed to note it would occur when they attempted to cross the street - note: when crossing the street you tend to look quickly in both directions repeatedly.

Others can experience similar symptoms due to compression by simply tilting their head back as to look up at something.

A brain specific MR will often not get low enough to see the vertebrae.

Unfortunately I have seen no literature on the specific brain mechanisms of palinopsia. However whereas one type may be caused by cortical or white matter damage due to a head trauma (sports injury, car accident, fall; ever bump your head and see stars? That is a minor head injury and thus a well established cause of visual disturbance), another type might be caused by dopamine or serotonin modulation/irregularity (HPPD due to ecstasy, LSD use and the like is certainly know to cause these sorts of troubles - for some even after just one use).
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Neurogurl
Regular Member
Joined : Dec 2006
Posts : 373
Posted 4/15/2007 4:26 PM (GMT -6)
Hello Ms_phd

You would go to *******. Then in the search box type visual. The first one that comes up is visual snow/static. Click on that and then go to the discussion. There you will find so many palinopsia and visual snow sufferers.

Hi Neurogurl, I'm sorry but I had to edit out the website you left here as it is linked to another online forum and against healing well's forum rules.  If you would like to share this type of information with members then you can activate your e-mail address in your profile by going to control panel and then going to edit profile and adding it from there.  This way you can e-mail them instead of putting other forums and links like this on the board and risk having it edited off.  You can also sign up to get an e-mail address from healing well if you dont want to use your own address if privacy is an issue here.  If you need any help at all please feel free to message me, my address is under my user name.  Thank you ~ Elisha

Post Edited By Moderator (els) : 4/17/2007 9:09:54 AM (GMT-6)

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Neurogurl
Regular Member
Joined : Dec 2006
Posts : 373
Posted Yesterday 4:39 PM (GMT -6)
Ms_phd seems that we will never get help with this condition. Very sad because not many doctors know about this. If you can't turn to a forum, where do you turn???

Anways, I will let my friends know at that website your interest and not sure how far that will get us but atleast they will know that there is some research being done.

Could you tell me if you know if there is a link with palinopsia and autoimmune disease and/or antiphospholipds/antinuclear antibodies being the cause
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Cathead
New Member
Joined : May 2007
Posts : 6
Posted 5/5/2007 8:22 PM (GMT -6)
Hi! Six months ago I developed palinopsia quite suddenly. It started as just an annoying oddity and developed into a constant nuisance. Three months after it began, I became very sensitive to light. Not bright light...but any change in light. I feel what I can only describe as an sudden eye cramp when I'm exposed to a new lighting situation...even a nightlight will do it. A few days after that started, the headache came. It starts over my eyes...best described as a "brain freeze." It moves to my temples by the end of the day, but I think that's just me reacting to the pain by clenching my jaw. I now constantly have all the above...constantly. The only relief comes from either going to a dark room, or sleeping. I've had a negative MRI, EEG, and eye exam. 2 1/2 yrs ago, I had post-partum thyroiditis, which led to a lifelong hypothyroid condition. I'm on Levoxyl, and my thyroid levels are now within the normal range. Last week I had a tooth that had a metal filling resting on a nerve. Hasn't helped.

Anyone have any ideas? I've been to a neurologist, ophthalmologist , and even a sleep study doc. The ophto says my eyes are fine and sent me to the neuro...The neuro tried to refer me back to the ophtho....so now I have an upcoming appointment with a neuro-ophtho.
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Neurogurl
Regular Member
Joined : Dec 2006
Posts : 373
Posted 5/28/2007 6:55 PM (GMT -6)
Hello Mjones,

Im sorry it took me so long to reply. I forgot about this post! I hope that you eventually get this message. Yes, your symptoms do seem similar to mine. I have also heard that antidepressants can cause this. HOwever, I stopped them almost a year ago and I still have symptoms. You would think by now it would go away....what do you think.

Hello Cathead,

Im happy that you had the extensive workup and all normal. This is a good sign but i know it can be frustrating. I think its better this way ... that is, not finding the bad things
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palinopsiaqueen
New Member
Joined : Oct 2007
Posts : 2
Posted 10/3/2007 4:25 PM (GMT -6)
You are NOT dying. I thought I was, too. I was convinced I had a brain tumor. I have had palinopsia for over 3-5 years now. I started seeing trails and "after images" when I stopped taking Zoloft (SSRI antidepressant). I was on the drug on and off for about 10 years. I was basically a ginny pig. I was so depressed over getting palinopsia I researched the hell out of it...but couldn't find any doctors who knew anything about it. The worst of the palinopsia stopped after about a year BUT I still see "tracers" every day. I try to ignore it and I'm actually getting used to it, believe it or not. If I am tired the palinopsia is worse, or if I'm not feeling well, or if I drink alcohol it is easily induced. It just sucks. I wish we could sue these pharmaceutical companies. My vision is permanently damaged due to their drug, and there's nothing that can be done about it. It is EXCEPTIONALLY rare (palinopsia). Most physicians have not heard about it and there really isn't anything to prescribe for it. I try to tolerate it as best I can. Best wishes to those suffering with it. Any questions feel free to email me at: jodiehowell77@yahoo.com.
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janetlyn
New Member
Joined : Oct 2007
Posts : 1
Posted 10/14/2007 9:15 PM (GMT -6)
I realize it has been some time since anyone wrote on this specific topic. I came online looking for people with my problem at the request of my sister. YOU ARE NOT DYING. I took Trazadone for six months. Immediately I started having horrific side effects, but mostly with my eyes. It never dawned on me that the problems were medicine related. After 6 months of going to all kinds of doctors, having tons of medical tests, I finally found out what my problem was. Dry eyes. After I got off the Trazadone all my symptoms went away except my dry eyes. Unfortunately, this also causes extreme sensitivity to light and I now have Palinopsia. I finally resorted two years ago to getting my prescription lenses darkened so it looks like I am always wearing sun glasses. I wear them everywhere but in bed. The palinopsia can best be explained this way: the other day in church I was listening to the speaker up on the stage giving his lesson. He said let's pray. I closed my eyes and immediately, instead of just black, I could see his outlined, the outline of the stairs where they go up to the stage, the podium he was standing at and many other details. It was there the whole time we prayed. If I look at the sun, or someone flashes a light bulb at me, I will see nothing but many spots for at least 15 minutes. The doctors say there is nothing they can do about the light sensitivity or the palinopsia. It was suggested to have laser surgery to fix the dry eye and vision problems, but they were afraid the side effects of the surgery would be worse then what I have now so they would not do the surgery. If anyone gets relief from these two pests, I would like to hear from them. Thanks, Janet Lyn
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Neurogurl
Regular Member
Joined : Dec 2006
Posts : 373
Posted 11/19/2007 8:34 PM (GMT -6)
are any of you still around to keep this post going?

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cured4real?
Veteran Member
Joined : Dec 2005
Posts : 1952
Posted 11/30/2007 4:31 AM (GMT -6)
Hi--
I had a very bad reaction to lamictal with various problems with vision similar to what you describe. Also, I have them off the meds due to hashimotos hypothyroidism and poss hashimotos encephalopathy, a neurologic disorder. Both are due to high anti-thyroid antibodies (TPOs--thyroid peroxidase) and can get very severe causing seizure and coma. Most people with these disorders are euthyroid, meaning that they have normal thyroid function tests (TSH). You should promptly get your thyroid antibodies tested if you haven't already. High levels of TPOs can cause problems with certain medications as well. Taking synthroid, thyroid hormone, brought my TPO levels down from the thousands to 500s (high normal is 60). They must check your antibodies to the thyroid, not just TSH. Hashimotos encephalopathy can be very dangerous, there are some online tests for thyroid issues on Mary Shomon's thyroid site. Also I have sjogrens syndrome, an autoimmune condition that can range in severity from dry eyes to system lupus like problems, and experience constant blurriness due to this. I have severe inflammation of my lacrimal glands and eye dryness. I didn't used to believe that eye dryness was the cause, but going on restasis eye drops helped, as does taking a pill called evoxac which is for sjogrens and makes my mouth and eyes less dry. I didn't notice how dry I was until I started taking the evoxac and then I realized I was really dry. it helps the eyes a little. I also have diabetes, which can effect my eyes and nervous system and this also runs with sjogrens and hashimotos. I would consult a good rheumatologist if you haven't already and get a schirmer test done, where they put a slip of paper in your eye to measure dryness. This helps to dx sjogrens. I would also ask to have the anti-thyroid antibodies, not just TSH, tested asap. Synthroid has helped my weird visual problems and neurological stuff tremendously. Also, blood insulin and or glucose tolerance would tell about diabetes and metabolic syndrome, which I also have and causes ai problems, severe liver problems and gi and ut problems and a lupus like condition with elevated ana. It runs with hashis and sjogrens as well and is very common due to obesity and high carb low fat diets in people prone to it. I also have sun allergy due to these problems, and it affects my vision alot and I have some light intolerance. This is all part of what I have. Also, the problems you describe about the dots and being blinded by light can be caused by vitamin deficiency (eye vits availabe) and natually large and dilated pupils due to medication or just naturally. I have naturally large pupils and this causes them not to contract as rapidly when light is flashed in them. It also causes me to see trails and halos at night and some sun sensitivity. Getting your other health problems taken care of will likely help this. Having a problem with trazadone, i have a horrible time with it, may be a sign of the high TPOs or possible liver problem. Laser surgery, which I had, will make your halos and trails much worse, though if you have dry eyes and wear contacts, getting PRK (not lasik--faulty surgery with less optimal results) would be a good move to keep from scratching your eyes with contacts and getting infections. I had PRK done, its what they do for military pilots and had no problems, but it does make the glare, halos and trails worse, but I see so much better my eyes are healthier w/o the contacts. Feel free to ask me any quesitons if you need to and let me know what happens.
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Neurogurl
Regular Member
Joined : Dec 2006
Posts : 373
Posted 12/19/2007 7:08 PM (GMT -6)
HI Marji,

Thank you for your response. This is very interesting because someone else just recently was telling me about this Hashimotos. I see my neurologist on January 7th so I am going to ask for that test (anti-thyroid antibodies). My thyroid is normal though. Would you be willing to call me?? Or I call you?? I am so desperate!!!  Thank you!!

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palinopsiaqueen
New Member
Joined : Oct 2007
Posts : 2
Posted 4/29/2008 1:08 PM (GMT -6)
I've had palinopsia now for 4 years. I'm afraid it's probably permanent. After stopping Zoloft I started seeing trails and after images when something would pass in my field of vision, like a car, a hand, etc. I see them every day all day. It has not gone away. Zoloft caused it. SSRIs are now known to cause palinopsia....I wish I would have known this before I took the medication because now my brain/vision are permanently damaged. It's a ***** to live with but ultimately you'll get used to it.
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dstinch
New Member
Joined : Oct 2010
Posts : 1
Posted 10/18/2010 12:22 AM (GMT -6)
HI all,
I've just started having these symptoms this year. I have no other pains or conditions that might relate to it. I've had migraines but haven't had one in about half a year. Those have gotten way better but I know it's a hereditary condition as my dad used to always get them around my age and still gets them from time to time. I am not depressed or anxious or anything like that. I suffer from after images lasting for many minutes. Light sensitivity is also something I've seem to acquire this year. I used to be able to look at any bright objects and nothing came of it. Now headlights on cars seem like their highbeams are ALWAYS on at night. However I do get flashes every day which I have been told that could be my retina slightly detaching. These white flashes happen in the eyes individually. So say if I see it in my right eye it wont be in my left. They will all of a sudden happen and it only effects me when I'm looking at something bright. They are usually like the size of a pea. They can happen one in one eye or multiple ones in both eyes. They don't last any more than a couple minutes. I've gone to my GP and two eye doctors who have told me I've got nothing to worry about because I don't have any other symptoms found with brain tumors. They actually all laughed when I mentioned a brain tumor. They said they were occular migraines. They said it just happens to some people and not to be nervous. They seemed adamant about me not having a brain tumor because I really don't have a single characteristic besides my light sensitivity and palinopsia that would relate. But I don't know and am really nervous. It's more the flashes that freak me out because I believe they are brain related and even though I don't get any headaches with them ever, not once, I live with these things every day. They happen on average like 5 times a day. And again they only happen when I look at really bright objects and when I blink rapidly. It's just like if you get flashed by a bright light. If you blink rapidly you can really see whatever it was that got stuck in your vision really well. Except they are tiny pea sized white flashes and only occur in one eye. Both eyes do not see the flash simultaneously. If I have one in my right eye and blink rapidly it will be noticable but fade away within seconds but comes back for a little bit after as I continue to blink against a bright backround. I have had no headache pains or anything. I might get a headache every say 3-6 months but not very often. Also, the vision troubles have only started after my mother passed away this past Feb 3rd 2010. Even though I have taken my fair amount of drugs such as ecstasy, cocaine, speed, and stayed up for days, that was early in my later teen years and when I stopped using those substances (even when using) I never had any eye problems. I was using drugs as such during the years 16-19. I am now 22 and it is just this past year I have started experiencing these symptoms. As it may be a tumor I really don't think it is because I really have no pains or anything in my head and am not depressed or have unusual thoughts. I am not ruling it out in the least but that is not my primary concern after reading about palinopsia and all those that have suffered from it with no discovery of such a cancer. I am thinking about seeying a neurologist and getting an MRI though just to be safe. But I really want to hear about you that have posted years ago and how you are doing now. Since this is my first year I am new to this and want to know if it gets worse, or any better? Or if it is simply the same. I hope reading this post, while having your eyes fixated on this screen, doesn't give you an image that stays for hours now! =) If you respond, I thank you, and hope to get back to you. I'm glad I'm not alone with palinopsia, but if any of you experience white flashes please let me know too! Thanks.
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Robdedallas82
New Member
Joined : Jan 2011
Posts : 1
Posted 1/30/2011 10:13 AM (GMT -6)
Hi, everyone and to the last memmber who posted(dstinch) well, let us hope ur not dieing! I too am suffering from symptoms of palinopsia. I also see tiny light like anomalies in up my visual field. I guess we can call it visual snow or aeropsia. My symptoms first after a night of drinking back in late april of 07. I woke up the next morning with what felt like a swollen neck, well the back part of it. The back of my neck where it connects to ur head area. The area was tender and throbbing. As the days went on the throbbing continued then I started feeling a strong pulse sensation on my abdomen. I got worried so I went to docs. First I got a screen of using an ekg with normal findings. Later throbbing was spreading to head temporal region, trip after trip to the er would give me no answers just same conclusions from docs: stress,headaches, everythings fine kinda attitude. Maybe they just wanted out their hair! After maybe a year or so I started noticing big eye floaters, light sensativity, visual snow, swaying of objects in visual field, and then, the oh so delightful palinopsia. since around sep of 08 maybe before then, I have had palinopsia. I do think you should get a brain maybe even a neck mri to rule out any tumors, aneurysms ect. I have gotten 3 mris,1 ct, a doppler scan of my aortica and my carotids. Most recently I have had a lumbar puncter with a slightly openning pressure of 24. In the last 3years I have seen 7 opths ,4 nuergst, 1 nuero-optho. In my case my eye health is ok so it seems to be brain related. There are many causes of palinopsia I look at it more like a symptom rather a disease of its own. I can only recommend that you keep searching it might be a long search, as I am still searching. You learn to live with it, but occasionaly rember the good times when u were free of the awful symptoms. good to all in their quest to better health. God bless
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stkitt
Elite Member
Joined : Apr 2007
Posts : 32602
Posted 1/30/2011 10:24 AM (GMT -6)
Robdedallas82

Good Morning and welcome to HealingWell.  Thank you so much for posting your information and responding to dstinch.

This is one topic I do not have a lot of information re and I am glad to see you share with all of us.  I am thrilled  to read that you advocate for yourself as that is so important when we continue to have problems even thow our test come back normal.

I hope you stick with us and we are always here to support you.

Kindly,

Kitt

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Pinks
Regular Member
Joined : Oct 2008
Posts : 131
Posted 1/31/2011 8:45 PM (GMT -6)
Hi dstinch,

You only have 1 post so far, I hope things are well with you.
My father had palinopsia and I do not know what causes it. I hope you keep searching for your answers, and find it.

Just want you (and everyone else in the same boat) to know that there are others with palinopsia too. You are not alone.


Pinks
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Christine78
New Member
Joined : Jan 2012
Posts : 3
Posted 1/19/2012 3:42 PM (GMT -6)
hello everyone, i hope there's still some people on here. I could certainly use the support. I have had palinopsia for over a year now. It began last year after my dr put me on prozac for supposed anxiety. While I was taking it I noticed some vision changes, seemed to be a halo around the television and anything with light looked different. I have never in my life had anxiety problems before, I was put on the medication because I had 2 dizzy spells that they couldn't explain so naturally he went straight to the ssri's. I have been off of the medication since November 2010 and I still have many vision problems. I read other peoples posts and it seems like I have everything that everyone posts all rolled into one. It's becoming difficult to deal with every day and I am getting depressed and have anxiety over this. Of course I feel like I must be dying, there's something wrong with my brain that they can't find. So far they have found nothing, I have had multiple MRI's, CT's you name it and they found nothing. Then I read a few posts that the SSRI's can cause brain damage. Well I didn't have any of this before I started taking the medication, it started after I began taking it and continues to get worse with time even though I am no longer on the pills.
My symptoms include: trails behind just about everything, ghosting like there is a halo around everything i look at but it's only in my peripheral vision, when looking far away it looks as though I'm looking at the top of a gas grill or hot car hood with the wavy looking air above it, after images both positive and negative-when i look at something and look away I can still see the image, it also happens when i close my eyes, as i type this now i have bright white lines in my vision, sometimes it looks like my vision bounces around or like it's out of focus and bounces back into place if that makes sense, one of the most annoying things I deal with is when I'm in my husbands truck he has these silver rings around the vent holes and while i'm looking through the windshield or around in the truck i see those stupid circles everywhere, all over the dash like my brain is just multiplying them and making me see 2 or 3 of them at a time, I also have this unusual flickering in my peripheral vision, not all the time but usually if i start to doze off and wake up it's in the corner of both eyes, this irritating flashing, it also happens after I've done something strenuous.
Once in a while when I wake up in the morning I get very dizzy, if i turn my head at all I feel like I'm going to fall over and it lasts pretty much all day, on top of this I don't want to do anything anymore, I hardly ever leave the house, I have 2 beautiful horses that I love and used to spend every minute with and now I feed them and come back inside and hide. I wish that if nothing else they could diagnose me with something and tell me that I'm not going to go blind or worse over this but test after test comes back with nothing. I have seen a Neurologist I have changed family doctors, my current family doctor swears that there's no way that I'm still experiencing stuff from the medication so of course he is no help. It's very depressing :( I hope that everyone who is suffering from this gets help, it really sucks dealing with this every day, it's so depressing :(
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Christine78
New Member
Joined : Jan 2012
Posts : 3
Posted 1/19/2012 3:43 PM (GMT -6)
I feel the same way! I just want my normal life back!

palinopsiaqueen said...
I've had palinopsia now for 4 years. I'm afraid it's probably permanent. After stopping Zoloft I started seeing trails and after images when something would pass in my field of vision, like a car, a hand, etc. I see them every day all day. It has not gone away. Zoloft caused it. SSRIs are now known to cause palinopsia....I wish I would have known this before I took the medication because now my brain/vision are permanently damaged. It's a ***** to live with but ultimately you'll get used to it.

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Christine78
New Member
Joined : Jan 2012
Posts : 3
Posted 1/19/2012 3:56 PM (GMT -6)
I too found that the only minor relief comes from wearing dark sunglasses, I wear them everywhere all day until I go to bed. I also have the muscle twitches and I still get the body jolts that I got while I was still on prozac.

Evaleigh said...
Neurogurl,

My symptoms are constant and unchanging and have been for almost 4 years. I had some symptoms before that, a kind of grey see-through ripple effect on the sky that my doctor said was just a bit of light sensitivity. But later that year over the course of a month my symptoms rapidly increased, more every day, until one day I couldn't stand it anymore and I had to quit my job (I was a photographer). I am very sensitive to light and wear dark glasses at all times outside (sometimes inside if the lights are very bright). At night I am ok in the city if I have my dark glasses on, but when we get on a country road with no street lights I have to put on a blindfold, I just can't stand the sudden changes of light from oncoming car lights. I have after-images all the time, if from a bright light such as a camera flash they can last up to 5 mins or so, if they are of an ordinary object they only last a few secs. I see streaks of light, and as I said above strobe effect in dark room (sometimes after turning off the light I can see a circle with veins radiating out of it in red outline which I was told was the inside of my eye). Other than the light symptoms I have fatigue, and iron deficiency, the last two years I have had some twitching in my muscles that can't be explained but may be unrelated, and in the last few months I have developed allergies to foods that I used to eat all the time.

Evaleigh


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stkitt
Elite Member
Joined : Apr 2007
Posts : 32602
Posted 1/19/2012 6:59 PM (GMT -6)
Christine78

Welcome to HealingWell, glad you found us. You have posted to a rather old thread as it was first started in 2007 so many of the members have not been seen or heard from in a very long time. 

Pinks is a great member, however, I have not run into her in any of the forums I visit but that does not mean she won't see your post.  Let's hope she does.

Palinopsia - visual perseveration; the pathologic continuance or recurrence of a visual sensation after the stimulus is gone. I do not remember reading much about this but obviously after a quick look there appears to be quite a lot of info available on the net.

From the info I found,  "palinopsia does not  have a treatment. It usually resolves on its own after removal of the cause". Another article stated, "Palinopsia has been treated successfully with some medications, but this is an area that is not well studied or understood".

Your MRIs and test were clear so that is good news.  Do not be afraid to seek out the opinion of other DRs. 

Again a warm welcome to HW.  I do hope you find some answers to your problem.  You have a right to feel anxious and depressed.  I understand what you are feeling.

Kindly,

Kitt


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tshrable
New Member
Joined : Jan 2012
Posts : 3
Posted 1/20/2012 4:50 PM (GMT -6)
I recently quit taking Effexor XR 150 mg 15 days ago. I have had horrible withdrawl effects. I have this one particular effect that I would like to share with this group because I have been told that it could possibly be palinopsia. When I read up close and then try to look at a distance it is like my focusing pulls on the back of my brain and in behind my eyes and I will get a nasea feeling. My vision is blurry at a distance and not so long ago I had 20/10 vision. I really don't think it is palinopsia as presented in this forum. I wish it would go away, but I really think it is just another horrid withdrawl experience from this demon drug (effexor). I would truly appreaciate your opinion.

Tammy
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stkitt
Elite Member
Joined : Apr 2007
Posts : 32602
Posted 1/20/2012 5:38 PM (GMT -6)
Hey Tammy,

There are 50 posts in this thread.  If you click on page 1 you can read through them all and you will find some good info here. 

If your vision does not improve please do seek out the opinion of a Dr.

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Parkinson's Disease: Recommendations For Wellness

Parkinson's Disease: Recommendations For Wellness


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