I did not see my doc. I was going to wait and see if it had happened again. Of course it did but it is getting better. And I am getting better. I do have an appointment soon though.
I am so sorry you are going through this. It is a very painful disease. No one knows unless they have it themselves. I was very short of breathe and I sweated so much and I still do. I also still have the heart palpatations. I had alot of things happen to me with the heart and lungs lately, but caused from RA. And let me tell you the muscle weaknss was the worst for me. How did they actually diagnose you with myositis? If they think it was drug related: what drug?
I was diagnosed with myositis on the heart muscle (caused from RA). Then I was having serious muscle aches and weakness throughout my whole body, but it had severely increased. I related that to taking Zocor. A med for high cholesterol. I just knew there was something else wrong. And I was way too sick. It felt like it was just about
to kill me. I was unable to walk, it affected the muscles in my neck, was hard for me to talk and even breathe. I was told to stop the Zocor from my cardiologist and I sure feel alot better now. She had ran tests and said that it didn't cause any nerve damage to the muscle. They said the Zocor had intesified my disease. Boy I sure hope I don't get that bad ever again in my life. And I pray for those that do get it and have to go through it. Anyway thanks, it's always good to hear from someone else with the same illness, you learn far more about
it from them than a doctor.
Please rest and take care of yourself.
Fibro, RA, IBS, Anxiety, Depression, insomnia
Meds: Serax, Prednisone (tapering), Prilosec, Vicodin, Flonase, Robaxin, Nortriptyline, Baby aspirin, Enbrel
Vitamins: Calcium, Magnesium, Folic acid