HOw long did it take before you got a diagnosis?

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Neurogurl
Regular Member


Date Joined Dec 2006
Total Posts : 373
   Posted 5/23/2007 3:35 PM (GMT -7)   
HI Everbody, I am hoping to hear some of your stories. For those of you with known heart conditions I was wondering how long it took before you received a diagnosis. Basically, how long were you suffering with symptoms before you were officiallly diagnosed?

mama2jmt
Regular Member


Date Joined Mar 2007
Total Posts : 301
   Posted 5/23/2007 9:28 PM (GMT -7)   
HI! I have cardiomyopathy & I started taking on fluid about two months before my dx,but did not start having more serious symptoms until about five days before the dx.Have you been waiting along time for a diagnosis?I hope that everything is okay!Take care & good luck!!

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 6/1/2007 6:12 PM (GMT -7)   

Hey Neurogurl, As you know I have several issues...with my MS it took 6 weeks for a diagnosis which is pretty quick for that kind of diagnosis but I did have a brain biopsy done as my first lesion was abnormally large.

With my heart issues (sick sinus syndrome, bradycardia, vent. septil defect, orthostatic hypotension) they are also brought on by a neurological condition called multiple system atrophy.  I first started having symptoms in Aug 05 and was officially diagnosed with the disorder in Jan 06.  I do truely believe that my quick diagnosis in this one was due to my having some excellent doctors who were able to pull some strings and get me into one of the top autonomic disorder hospitals in the country (Vanderbilt University in Tenn).  They do a lot of research on these kinds of problems.


Elisha
Co~Mod: Depression
Moderator: Heart & Cardiovascular Disease
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augoldminer
Regular Member


Date Joined Jun 2006
Total Posts : 110
   Posted 6/7/2007 3:20 AM (GMT -7)   
about 20 minutes from the time that i started having a angina attack and 15 minutes of that was driving to the VA hospital and the last 5 min it had progressed to a heart attack.

Being a EMT was big help.

I walked in the door of the ER and told the doctor that i was a EMT and was having a heart attack and he put the heart monitor leads on me. and called the cardiologist.
Then it was run the IVs plus nitro and within 15 min i was in the cath lab and within 30 min the clot was out and the heart attack was over.

16 days later i had a 5 way bypass and have no heart muscle damage. now they are trying to find out why i have had bradycardia for years. and if it had anything to do with the heart attack.
Also treating me for sleep apnea that probably did have something to do with me having a heart attack.

And i to have a neurological condition fibromyalgia and neuropathy of a unknown type. That i believe caused the sleep apnea and bradycardia.
SECONDARY FIBROMYALGIA AUTOIMMUNE DISEASE
AUTOIMMUNE CASTLEMAN'S DISEASE JULY 2003
HEART ATTACK MARCH 1 2006 HEART BYPASS CABG x 5 MARCH 13 2006
SLEEP APNEA RESTLESS LEG SYNDROME
DOCTORS VA. WEST LA CALIF
US NAVY 1970-74 VIETNAM VETERAN
EXPOSED TO DIOXIN IN THE WORKPLACE 1978-82
EXPOSED TO TRICHLOROETHYLENE IN THE NAVY
EX EMT FIREFIGHTER


banditd
New Member


Date Joined Jun 2007
Total Posts : 3
   Posted 6/7/2007 7:34 AM (GMT -7)   
I had SVT, short circuit and it took me a while since I NEVER knew when it would happen, but taken care of and all better now.
I guess it took me 3 or 4 years, just could never catch it with a monitor

Neurogurl
Regular Member


Date Joined Dec 2006
Total Posts : 373
   Posted 6/29/2007 9:01 AM (GMT -7)   
Thank you all for your replies.
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