Do your arrythmias / ectopics affect your sleep / quality of life?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Bunny29
Regular Member


Date Joined May 2007
Total Posts : 20
   Posted 5/25/2007 12:34 PM (GMT -7)   
How do you manage your life, work, sleep, do you have support and understanding from friends and family?
I am having a particularly difficult time the past month and don't have much understanding, most people think it is psychological, yet they have never experienced it!
I am also having trouble sleeping mainly because the ectopics and arrythmias are shaking me awake just as I am dropping off, is there any thing I can do?
I look forward to all your replies:)
 


Neurogurl
Regular Member


Date Joined Dec 2006
Total Posts : 373
   Posted 5/25/2007 3:26 PM (GMT -7)   
Hello Bunny,

To be honest I am a nervous wreck and my family/friends just don't seem to understand. When I am looking for support I usually come here. My arrythmias do seem to wake me up at night. I do not sleep that well because of it. Would you ever consider trying an anti-anxiety medicine? Sometimes those helps. Ask your doctor. Believe it or not, a lot of this crap is psychological but that doesnt make it less real or less scary. It does and has taken away from the quality of my life and I am still looking for answers on how to cope. I think if we stick together and support eachother and also share what helps we will be okay. Hope this helps.

maxx
Regular Member


Date Joined Jul 2006
Total Posts : 141
   Posted 5/25/2007 6:32 PM (GMT -7)   
Hi Bunny,
 
They really have an effect on my life.  I feel that they totally isolate from others as I'm always on guard.  I feel like a winer when I say that nobody understands - but they don't.
Unless you live with the fear that these things evoke, you never will.  Take care of yourself.
Maxx
 


Bunny29
Regular Member


Date Joined May 2007
Total Posts : 20
   Posted 5/26/2007 4:47 AM (GMT -7)   
hello Maxx and Neurogurl, It is a shame that you are affected in this way. There is a lot of fear that is generated by the condition. If possible can you tell me what conditions you both have.
Have you considered hypnotherapy? I will be having a session next week, she uses 'emotional freedom technique' which is a form of accupressure. Also herbs such as motherwort, valerian, lime flowers, skull cap and passion flower, they work well taken together and do not have the side effects of addictive and toxic anti anxiety drugs, which I have experienced with vallium.
I also think that it is important to get out of the house for a short walk or a drive, I find this very relaxing, also communicating with positive people and watching happy films and fun programmes even childrens animation, anything to distract you from how you are feeling. I like the anne of green gables and road to avonlea. I have just ordered all the seasons and plan to watch them every day.
I am planning to have an ablation for my arrythmia and have taken it upon myself to go privately so that I can have it sooner. I want a permanent cure from this feeling, I want to have peace of mind etc.
Have either of you considered this?
Also I am eating foods that stabalise my blood sugar, such as brown rice, vegetables, fish and fruit. It might also be helpful to increase you intake of certain minerals such as calcium and magnesium essential for the muscles and perhaps pottassium!
I look forward to your replies:)
 


maxx
Regular Member


Date Joined Jul 2006
Total Posts : 141
   Posted 5/26/2007 7:42 PM (GMT -7)   
Hi Bunny,
 
I would love to try hypnotherapy.  I can't wait to hear what it does for you, and I hope it works.
I myself, have tried meditation and yoga.  It seems to help.  You are dead-on with "keeping your mind on something else".   But how?
Stabalizing your blood sugars are important.  I know that contributes to my arrythmias.
I basically have a "normal" heart, that beats irregulary! How can that be normal?  I am so thankful for this forum.  It has saved my
life.
At what point did they decide to do the ablation, and how bad were the arrythmias?  I would consider one now just to aleviate the "fear" of these things.  Please take care.
Maxx
 


Bunny29
Regular Member


Date Joined May 2007
Total Posts : 20
   Posted 5/27/2007 9:12 AM (GMT -7)   

Hello Maxx,

Do you have AF?, how long have you had this condition? A diet rich in pottasium might help, also cutting right down on sodium.

I think that by trying to distract yourself in ways such as reading, talking with friends and family and watching films, taking a walk can even just for a few moments help you to feel relaxed.

But make sure that the distractions are something you are really interested in.

I know that its difficult to forget what is happening to you because its happening to you which is why it is important to try to come to terms with it, it can be hard, what is it that you are most afraid of?

I decided to have the ablation because I don't want to just survive day to day feeling anxious and afraid and in a way it seems less frightening and I feel in control. I don't like the idea of taking drugs. I had one or two SVT episodes a year and then the past month I started getting lots of ectopics day and night which drove me totally nuts.

I will let you know how the hypno goes.

I think that the best thing to do is relax otherwise you are working against your body.

Bye for now,

Melanie

 


Hopes
Regular Member


Date Joined Feb 2006
Total Posts : 297
   Posted 5/28/2007 6:08 AM (GMT -7)   

Bunny, What type of SVT do you have? I'm really surprised that they are going to do an ablation when you only get it once or twice a year. Most SVTs are not life-threatening.

I get SVT also, but not too much anymore. A couple of years back I would get it once or twice a month. It would last anywhere from 2-6hours. It would start up rapidly out of the blue and end just as quickly. It felt like a race car in my chest and I could easily feel it start and stop.

TODAY an episode is rare, though it will still occur from time to time. It usually only lasts a minute or two, but might linger for 20 minutes. Now the ectopics are another story. They seem to cycle. I just ended 8 weeks of palps everyday for most of the day/night. They are definately ANNOYING when they are like that. Now they are in their 'quiet mode'. -Only a few scattered throughout the day. Hopefully that will last a good long time!!!!!

The EP I saw two years ago wouldn't even think about an ablation for ectopics. He said they were not dangerous and the procedure itself can leave people with ectopics. He wasn't much interested in the SVT either because it was benign and didn't happen often. He told me to try a beta blocker as needed and see how that went. I don't like meds. So I choose not to take it.


maxx
Regular Member


Date Joined Jul 2006
Total Posts : 141
   Posted 5/28/2007 11:36 AM (GMT -7)   
Hiya Melanie (&Hopes),
 
I don't have SVT, mainly ectopics.  I'm also surprised they are doing the ablation.  Did you get a second opinion?
 
I think (Melanie) that what I'm afraid of, is dropping dead.  That's it in a nutshell.  I just get really scared.  It's the "pause" that scares me.
 
I do think your advice re diet is helpful and I will try it.  At this point I am willing to try anything. 
 
(Hopes) I've also just come through a few days of horrible ectopics, called the cardiologist and have a loop monitor for 2 weeks and an appointment.  Now I am having a calm period...help!
It's like a cat chasing a mouse!
 
Take care.
 
Maxx
 


Bunny29
Regular Member


Date Joined May 2007
Total Posts : 20
   Posted 5/28/2007 1:16 PM (GMT -7)   

Hello Hopes,

Please tell me about your condition? I have AVNRT. When you had the SVT how did you deal with it. I have been in hopital 3 times and had adenosine. Before this time they would not last that long approx 20mins and would stop by itself. The thing that scares me is that they are lasting longer now plus I have the ectopics, whereas I would only have them now and then, I don't understand why there are so many. I also sometimes feel them just as I am falling asleep, which only wakes me back up again, perhaps they are affected by breathing and blood pressure!

Do you have any idea why your SVT has improved, do you think it is stress related, diet etc?

I look forward to hearing back from you,

Bunny29


Hopes
Regular Member


Date Joined Feb 2006
Total Posts : 297
   Posted 5/28/2007 6:39 PM (GMT -7)   

Hang in there, Maxx. I completely understand what you are going through. It stinks. I was at a family picnic today having a great time when at the end of dinner, it felt like my upper and lower chambers were beating completely out of sync. It only lasted a minute or two and I never felt dizzy or short of breath. However it felt awful and it was hard not to get scared.

I pretty much talk myself out of the panic, but I'm never happy about it happening. My thing is that if I'm not dizzy, don't feel like I'm going to faint, can breath easily, talk, walk etc....I'm fine and it will pass. It is just my thing. However I REALLY HATE when it happens. I just always think 'this too will pass'. No one around me ever knows that it is happening. I just keep quiet about it and wait for it to pass. I appear remarkably calm but I'm SCREAMING inside. After it has been happening nonstop for a couple of weeks, I complain to my husband and he is always surprised that I was having problems with them again.

Bunny, I have no idea why things changed. I know more now and I am less fearful. I accept that they will come back from time to time. I learned biofeedback because I did not want to go on medication and my GP was bugging me. I have made many lifestyle changes to surround myself with an atmosphere of peace and calm as much as possible. However I have a daughter and a very active life. So my life can be a whirlwind of demands which need to be met. ?????

Sometimes my ectopics will start up as I am going to sleep or more annoying when I am already asleep, waking me up. I try to change to a position where I feel them less (sometimes nothing works). I play soft music, relax and ignore them. I almost always go back to sleep, but sometimes even in my sleep I feel them.

There were 3 nights last January where they would start up just as I sat down on my couch in the evenings to relax and would come every other beat. That was the worst. They lasted throughout the night and would go away just as I was getting out of bed in the morning only to come back the next night. Walking around was the only thing that would stop them. However as soon as I stopped walking, they started again. WHY? I've no idea. Even at that rate, my doctor was not concerned and said I could start a beta blocker if I wanted. Why? I knew that they would go away given a little time and they did. Yes, they came back at another time but then they went away again. I just finished 8 annoying weeks of them. However I might go 3-4 months with only an occasionaly thump or THUD.

I understand that you are trying to find the answer for WHY. Good Luck with that. I've quit.


maxx
Regular Member


Date Joined Jul 2006
Total Posts : 141
   Posted 5/29/2007 7:57 AM (GMT -7)   
Kudos Hope, I've quit trying to find out why? I am not going to let them run my life or stop me from doing anything at all. They will pass, and I will be fine. Maxx
 


sb
New Member


Date Joined Jan 2007
Total Posts : 12
   Posted 6/2/2007 3:47 PM (GMT -7)   
Hi Bunny
 
I too have svt, my EP believes i have AVNRT svt as adenosine usually stops the svt. My SVT attacks also used to last for upto 20 mins and stop without intervention but now they seem to last much longer. I also get the dreaded ectopics too. Do you know if your ectopics are pacs or pvcs? Mine are PVCs. I am due to have an ablation soon and i'm very nervous. I read in the other thread that you are from the uk too. I am currently seeing an EP in Leeds (West yorkshire) who is confident that an ablation wil fix the svt.
Are you on any meds? If you don't mind me asking how old are you? What do you find triggers your svt? For me the biggest culprit is indigestion and stress.

realestateasst
New Member


Date Joined Jun 2007
Total Posts : 1
   Posted 6/2/2007 5:45 PM (GMT -7)   
I am 46 yrs old and have had arrythmias for 20 years. They have gotten much worse the last few years, with continuous pvcs, pacs, sinus tach, and SVT.
I love my doctor but geez, I just wish he could feel this one flippin time so he would take me more seriously. I know I have stress and anxiety, but I TRULY believe that the arrythmias bring it on, and I find myself by the end of the day crying because I have dealt with these arrythmias all day long. I would like to hear from anyone.
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 11, 2017 10:23 AM (GMT -7)
There are a total of 2,903,989 posts in 318,704 threads.
View Active Threads


Who's Online
This forum has 158116 registered members. Please welcome our newest member, Cindy Cauley.
387 Guest(s), 14 Registered Member(s) are currently online.  Details
PeteZa, oldbeek, TAD4207, island time, eldonkey, Girlie, Laugh and live, Skypilot56, TxBart, Mergirl, PA_grandma, RocketMan12, Tim Tam, iPoop