pregnancy and valvular heart disease

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momwrhd
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/6/2007 5:26 PM (GMT -7)   
Hi ! this is my first time to use healingwell.com, I am a patient with multiple valvular disease (MS, MR, TR and AR) and Iam pregnant at 32 weeks already. I am wondering if there is anyone who knows someone who was pregnant too and with this kind of condition. I am so worried  right now about how I am going to be after my C section on dec 5.    

momwrhd


els
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Date Joined Oct 2005
Total Posts : 4031
   Posted 10/8/2007 5:22 PM (GMT -7)   

Hi momwrhd, Welcome to Healing Well forum.  I am sorry we are so late in replying to your post here.  Sometimes this forum gets a bit slow. 

My mother has valvular disease and has to have 4 valves replaced soon.  Of course, she is now 52 and has lived with it for quite a while and puts off her surgery as long as she can.  I imagine with you being pregnant that is quite a bit of stress on your condition.  Have you had many symptoms during your pregnancy?  Like shortness of breath, low energy, chest pain? 

I havent seen anyone on this forum with valvular disease and being pregnant but the good thing is that our forum links up with Google so any out there who types that in will be brought to your post here.  So hopefully you will get some responses on this.  Please do keep us posted on how your doing and please feel free to post as often as you like.

Take care


Elisha
Co~Mod: Depression
Moderator: Heart & Cardiovascular Disease
http://www.healingwell.com/donate


momwrhd
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/9/2007 4:43 AM (GMT -7)   

hi ! I am so glad that someone replied to my question. Yes I have symptoms right now like shortness of breath an occasional racing heart beat. I sometimes feel very anxious because of my condition. The doctors told me the symptoms can be due to my heart disease and/or the pregnancy. I am also worried about what will happen after I deliver (if I will be able to take care of the baby and be able to get a job..) I would like to ask if your mom already had her valve problem when she was pregnant with you?

THanks for your reply..hope to hear more from you. 

 

momwrhd


els
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Date Joined Oct 2005
Total Posts : 4031
   Posted 10/9/2007 4:53 PM (GMT -7)   

Hi momwrhd,  It really is unknown if my mom had VD when she had me.  I am 34 and she was barely 18 when I was born in the early 70's.  She didn't know she had any heart problems until she was in her mid thirties I believe.

I would think that you would feel a bit better afterwards as it will be so much less stress on your body physically.  Yeah, you have to worry about caring for the baby, not sleeping and all that goes along with a baby but it will be a different kind of stress.  And one I am sure you will be able to manage just fine.

My mother even with needing to have those 4 valves replaced still works full time as a cardiac RN in one of our local hospitals.  She gets up and goes with me at 4 am every morning to the gym and still finds the time to fight with her husband and babysit her identical twin granddaughters who are one yr old this mth. 

I hope once you give birth and see how things will be you will be more confident in your ability to do it all.  I do understand the feeling of being anxious though and not knowing what to expect.  Hang in there, you both will be just fine :-)


Elisha
Co~Mod: Depression
Moderator: Heart & Cardiovascular Disease
http://www.healingwell.com/donate


momwrhd
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/11/2007 2:05 PM (GMT -7)   
hi elisha,  what you told me about your mom is really encouraging. She is really an inspiration to me. and you too... Me and your mom have not just the valve problem in common but also our profession. (I am also a nurse but i just started working six months ago and needed to go on leave for the pregnancy). Thanks again for taking time to reply to my posting.  :-)              
momwrhd


els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 10/11/2007 3:18 PM (GMT -7)   
Awww, I am glad I could be of some help. :-)

Elisha
Co~Mod: Depression
Moderator: Heart & Cardiovascular Disease
http://www.healingwell.com/donate


CHDMommaNBabe
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/12/2007 9:11 AM (GMT -7)   
I have Truncus Arteriosis Type 1 which is accompanied by ventricular septal defect, an abnormal truncal valve, and anomalies of the aortic arch. I have had 2 children. My eldest is completely healthy. My youngest has Aortic Valve Stenosis.

Am I more tired, yes...but it's totally worth it. My last surgery was in Nov of 1989 and even after giving birth twice they don't foresee and new repairs needing to be done for another 10-15 yrs!

momwrhd
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/13/2007 11:02 AM (GMT -7)   
Hi CHDMommaNBabe, Now I am more confident that everything will be fine afterall. I was so scared before because I have not heard of anyone else who got pregnant with heart problems and most of the ideas I have came from some of the movies i saw back in the country where I came from, depicting a character that has heart disease and gets pregnant and the outcome will be the end... It was always portrayed in the films that such condition together is always tragic... (In some telenovelas it is also one way of eliminating a character) .
That was what was planted in my mind. I am doomed bacause of my condition... NOw that I have known people like you, It made me realize that those things were all movies and not real life.. In the real life there is hope because of the new technology... I am so happy , so inspired.. I am now looking forward to spending more years with my future baby and the rest of my family... I still worry but not as much anymore , thanks to you ! God bless you and your children and thank you for sharing your experience with me.
momwrhd


MonicaLooly
New Member


Date Joined Nov 2007
Total Posts : 1
   Posted 11/5/2007 7:11 PM (GMT -7)   
Hi,
 
I have calcification of my mitral and aortic valves, and the ventrical chambers. I found out when I was 20 but was told it wouldn't need repair until my fifties.
 
This time two years ago (at 27), I became pregnant and when they did an echo to make sure my heart wasn't that bad they discovered it was. I was lucky in that I had no major symptoms while pregnany - except tiredness and slight short of breathe.
 
I was told I would have an epidural and that I wouldn't push much. I was enduced 4 weeks early (the plan had been 2 weeks) and gently pushed for a little while. I only really had to push for 5 minutes at the end because they used forceps before I really had to do anything.
 
I knew there would be forceps in advance, because they wanted me to do as little work as possible. I had a great delivery. No pain. No problems. They gave me my epidural before induction.
 
There was a cardiac nurse in the room with me at all times while in labor. I was in intensive care for monitoring for 24 hours after the birth. This was the hardest thing because I wanted to see my little girl.
 
I had a swans-ganz catheter in my neck to my heart to measure the pressures through-out. This was the hardest thing on me. It took them almost two hours to get it in. I've always been a hard poke though (hard to get a good vain).
 
I went home after 3 days (before my baby - she had a little trouble eating). My recovery was fine and I had no problems.
 
I did find lifting her tiring after a while.
 
I was due to have a cardio check-up three months post-baby (to see if my valves looked better than they had while pregnant), but 3 days before I went into a-fib. I was hospitalized for a week, and ended up needing valve replacement last november 29th - the day my baby turned 6 months.
 
Now I feel just like any other mum. Chasing her around all the time. I was told my problems weren't made worse by the pregnancy, that I would have needed the suregery soon anyway, and that luckily being pregnant made them catch the seriousness of things earlier.
 
OK. So I have waffled on alot. My point is really. It IS scary, but it's the best thing in the world. As long as the doctors are taking good care of you you'll be fine. Make sure you know what to expect. Have them explain to you everything they plan. That way you'll be prepared.
 
It really helped me to know there would be forceps and an epidural before induiction and all those things. I wasn't nearly as nervous as I might have been. Ask them what's likely to happen if x occurs or y... But don't over analyse. Enjoy your last weeks of pregnancy (nearly impossible I know).
 
I am contemplating having another baby. I want to start trying after my next Cardio appointment (Feb). I am very scared again about bad outcomes, especially since I have a baby to look after. Maybe I'll decide not to try, but having a child is such a joy, and medicine nowadays is so much better than years ago.
 
Good luck. Let us know how you get on - when you catch up on sleep. ie- when the baby is 1 :-)
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