Marfan's Syndrome

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Nov 2007
Total Posts : 32
   Posted 11/21/2007 12:52 PM (GMT -6)   
22/f, doctors are just now telling me that they think I have Marfan's syndrome

I am looking to talk to people who have this disorder

my heart is likely to be involved, as a murmur was heard by several doctors, my mother, and myself. I will be having an echo done early next week.

thank you

Veteran Member

Date Joined Mar 2005
Total Posts : 2486
   Posted 11/22/2007 12:10 AM (GMT -6)   
I am sorry you were recently diagnosed with Marfan's syndrome.  It can definitely cause some heart issues, so it's good you are getting a work-up for this murmur that was heard.  I learned about this syndrome recently so if you need some help clearing up the facts or whatever, let me know.  Hang in there in the meantime and vent away!

Co-moderator - IBS Forum

Regular Member

Date Joined Feb 2007
Total Posts : 87
   Posted 12/6/2007 3:42 PM (GMT -6)   
Hi, my friends son has marfans....... i will give her healing wells forum and i know she will reply, her son has had lots of difficulties. But she will tell you this.

until then i hope someone else comes on who you can chat with.
Take care
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 19, 2018 7:08 PM (GMT -6)
There are a total of 3,004,877 posts in 329,179 threads.
View Active Threads

Who's Online
This forum has 161751 registered members. Please welcome our newest member, Roadranger82.
336 Guest(s), 12 Registered Member(s) are currently online.  Details
bobmars, mattamx, running wild, JNF, Michael_T, getting by, Todd1963, taintedangel82, caia_120, InTheShop, Relentlesswill, CCinPA