Marfan's Syndrome

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Regular Member

Date Joined Nov 2007
Total Posts : 32
   Posted 11/21/2007 12:52 PM (GMT -6)   
22/f, doctors are just now telling me that they think I have Marfan's syndrome

I am looking to talk to people who have this disorder

my heart is likely to be involved, as a murmur was heard by several doctors, my mother, and myself. I will be having an echo done early next week.

thank you

Veteran Member

Date Joined Mar 2005
Total Posts : 2486
   Posted 11/22/2007 12:10 AM (GMT -6)   
I am sorry you were recently diagnosed with Marfan's syndrome.  It can definitely cause some heart issues, so it's good you are getting a work-up for this murmur that was heard.  I learned about this syndrome recently so if you need some help clearing up the facts or whatever, let me know.  Hang in there in the meantime and vent away!

Co-moderator - IBS Forum

Regular Member

Date Joined Feb 2007
Total Posts : 87
   Posted 12/6/2007 3:42 PM (GMT -6)   
Hi, my friends son has marfans....... i will give her healing wells forum and i know she will reply, her son has had lots of difficulties. But she will tell you this.

until then i hope someone else comes on who you can chat with.
Take care
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