Concerned about 15yr old daughter just dx w/Mitral Valve Prolapse

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PainInFL
Veteran Member


Date Joined Aug 2007
Total Posts : 1430
   Posted 12/5/2007 3:47 PM (GMT -7)   
Hello Everyone,
 
I am a Lyme forum regular and my daughter was just diagnosed with Lyme as well along with Mitral Valve Prolapse.  She had an Echocardiogram to look at the extent of it today.  I was in the room while they did the test and I have to say it freaked me out a bit.  The valve was just all over the place and on the infrared blood was freely flowing between ventricles.
 
Can someone point to me a good website/information source that discusses this disorder in detail along with photos of normal and abnormal Echos?
 
My daughter has a lot of chest pains and palps and as any good mother would, I am really worried about her.
 
Thanks for all input!
 
Anne
Dx-FMS 2006, CDC positive LD 8/07, Ehrlichiosis-HME 9/07, Addison's Disease, Cervical Cancer Survivor. Probably infected with Lyme since a teenager 20 yrs ago.
Tx-Doxy, Tahitian Noni, Cat's Claw, from Sept-Nov 07.
Current: 4g Rocephin 5 days on/2 days off, 1500 mg Flagyl, Urso Forte, Coumadin, Dexamethasone, Fentanyl, Percocet, Soma, Xanax, Protonix, Melatonin or whatever else works for sleep!
 
 
 


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 12/5/2007 11:31 PM (GMT -7)   
Hoping I can ease your mind a bit by saying Mitral Valve Prolapse is actually quite common and most people don't even know they have it throughout their lives. It is debatable whether it even causes symptoms in most people (lots of people have palpitations and no abnormal cardiac defects). I have an aortic valve prolapse and when I saw a cardiologist about it he said that it was nothing to worry about. As far as the Lyme disease goes, I do not know much about it. But MVP on its own is usually benign :) She might need to take antibiotics before dental work, and if her palpitations are terrible then she could try a beta-blocker as needed for them, although docs tend to shy away from that approach because beta-blockers can cause minor problems in people with normal heart rate/blood pressure etc. Talk to your doc and see what s/he says.

As far as interpreting the echo, I'd strongly suggest you do not attempt that. There's all sorts of weird things that are happening during echos and without significant training it seems scary to see anything moving around in there in a black-and-white image! Definitely let your doc do the interpretation of the test...that's what he's there for. Or ask him to help explain what the images mean.

Best of luck to you!
Co-moderator - IBS Forum


PainInFL
Veteran Member


Date Joined Aug 2007
Total Posts : 1430
   Posted 12/6/2007 6:51 AM (GMT -7)   
Thanks Sarita.

Thats's my problem, I try to read into things and like I said, I shouldn't have been in the room. I tend to also look at worse case scenarios, because that is what my life has thrown at me over the last several years. I did research and see that as many as 10% have it and many are asymtomatic. My problem is, I see the other portion that do have symptoms, which she does, that also require valve replacements, etc.
I just see it as a very scary thing as Lyme is a bacerial infection and one of the risks with Mitral Valve Prolapse is infection. Then, I put 2+2 together and realize how Lyme Disease wreaks havoc on many of the major organs in the body, what it has done to some of my organs, and I worry. I am feeling a bit better today because I have to sometimes take a deep breath and say "I can't change this."
I just know I have been through he!! and I fear for her!

I appreciate your support!

Anne
Dx-FMS 2006, CDC positive LD 8/07, Ehrlichiosis-HME 9/07, Addison's Disease, Cervical Cancer Survivor. Probably infected with Lyme since a teenager 20 yrs ago.
Tx-Doxy, Tahitian Noni, Cat's Claw, from Sept-Nov 07.
Current: 4g Rocephin 5 days on/2 days off, 1500 mg Flagyl, Urso Forte, Coumadin, Dexamethasone, Fentanyl, Percocet, Soma, Xanax, Protonix, Melatonin or whatever else works for sleep!
 
 
 

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