Lap Nissen question...

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Lucy007
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Date Joined Oct 2007
Total Posts : 62
   Posted 1/3/2008 9:28 PM (GMT -6)   
Has anyone on here under the age of 30 gotten this surgery done?  My doc insists I am too young for the surgery option, but I have actually had the condidtion since my early teenage years.  Also, anyone hear about the new elf procedure and know how it differs and if the side affects are any better?  Thanks for your help!

nietzsche6
Regular Member


Date Joined Jan 2008
Total Posts : 22
   Posted 1/3/2008 11:11 PM (GMT -6)   
I have had two nissen surgeries one at 26 one at 29 the first one didnt work. the second helped my reflux so food no longer comes up into my mouth and my esphogus doesnt burn. but i am always nauseated now. and i vomit alot.

Lucy007
Regular Member


Date Joined Oct 2007
Total Posts : 62
   Posted 1/4/2008 12:24 PM (GMT -6)   
Vomit a lot?  What's a lot?  Like when you eat, drink, etc?  Could you elaborate when you get a sec.  Thanks.

TammyGrl0528
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Date Joined Jun 2007
Total Posts : 1345
   Posted 1/5/2008 7:06 PM (GMT -6)   
Lucy, I am not sure if you seen, but we have several really good posts on the Lap Nissen topic that may help you out.
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 Diagnosed with Generalized Anxiety Disorder (GAD) and Panic Attacks.
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~Tammy~


Alycarr00
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Date Joined Nov 2007
Total Posts : 65
   Posted 1/14/2008 4:18 PM (GMT -6)   
Hi Lucy
I'm 29 and will be having the surgery on 1/28. I have several bleeding ulcers in my esophagus, pre cancer looking stuff in there as well (so my GI told me after 2 endoscopies) and have been bumped up to 2 protonix daily, and I still have problems!!!!
Alli
***~Alli~***


Delz
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Date Joined Jan 2008
Total Posts : 3
   Posted 1/16/2008 8:29 PM (GMT -6)   
I had the surgery when I was 21. They weren't going to give it to me because of my age but I had the 24/h pH monitoring done and was one of the worst cases they'd seen plus they discovered a hiatus hernia. I'm now 25 and am starting to get more and more cases of reflux, i visited a surgeon just recently and the nissen has slipped slightly up towards the chest cavity. I may need to have another done in a few years.

TammyGrl0528
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Date Joined Jun 2007
Total Posts : 1345
   Posted 1/17/2008 8:44 AM (GMT -6)   
Delz...welcome to healingwell, and thank you for sharing your experience with this!

I do hope you will stick with us, as this is a great place for information and support!!!
 GERD Forum Moderator
    Please share, only if you can spare! 
 Diagnosed with Generalized Anxiety Disorder (GAD) and Panic Attacks.
 Clickable Link that may be of interest to some...as I find I often like to check drug interactions...Drug Interactions
 
~Tammy~


nocough
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Date Joined Nov 2007
Total Posts : 44
   Posted 1/20/2008 8:02 AM (GMT -6)   
I am 32 and had the surgery in NO. I too suffered since I was a teenage. My age never came to play when discussing the surgery. I n fact I think taking PPIs forever would be more of a danger since they do not have significant research on that yet. Did he say why you were too young?

Lucy007
Regular Member


Date Joined Oct 2007
Total Posts : 62
   Posted 1/20/2008 8:24 PM (GMT -6)   
I have been to 2 different gi docs, and both are adament that the surgery creates more problems then before you have it and since the PPIs work for me they wont do it.  One physician is part of a very reputable university hospital in my city, so that surprised me very much.  I have no idea why they say too young.  I feel like if anything my chances of recovering quicker are better.  I am starting to think they are all pretty clueless when it comes to this anyway. 

TammyGrl0528
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Date Joined Jun 2007
Total Posts : 1345
   Posted 1/21/2008 2:36 PM (GMT -6)   
Lucy, maybe the doctors are simply trying to avoid doing the surgery on you because you are young, and they want to try other ways to help you before doing something as drastic as a surgery...I could be wrong, just a thought!

Wishing you the best!
 GERD Forum Moderator
    Please share, only if you can spare! 
 Diagnosed with Generalized Anxiety Disorder (GAD) and Panic Attacks.
 Clickable Link that may be of interest to some...as I find I often like to check drug interactions...Drug Interactions
 
~Tammy~


jbrdbr111
New Member


Date Joined Jan 2008
Total Posts : 4
   Posted 1/26/2008 6:19 AM (GMT -6)   
I am 25, was 24 when I had my Nissen 5 months ago.. I had the endoscopy, PH Bravo test, and the test where they measure the valve strength pre-surgery (can't remember the name right now)..

Anyway, I wouldn't see age as a factor, and if anything younger people recover faster, but I would exhalt all options "before" this surgery, as it was ROUGH, and I am still feeling problems, etc..

My main thing I would say to anyone who wants this done, research, research, research... I never did enough, or I would have found others with more problems afterward.. I'm not trying to scare you, but just want to give you a side that's not told by Surgeons very much that is a chance of happening..

If you have any questions, feel free to ask me..

Lucy007
Regular Member


Date Joined Oct 2007
Total Posts : 62
   Posted 1/26/2008 12:40 PM (GMT -6)   
can you elaborate more on some of the issues and why recovery is so rough?  Do you think it has to do with the surgeon?  Im curious to hear more about your experience as you are very close to my age.  How long did you have gerd?  Are you male or female? Did the meds work for you?  And most importantly, if you could do it all over again would you?  The meds work for me so you can see my dilemma.  The issues I have are with taking medicine for the rest of my life.  Thanks for your info!

HappilyWrapped
Regular Member


Date Joined Oct 2007
Total Posts : 183
   Posted 1/26/2008 3:59 PM (GMT -6)   
Lucy,

I had the surgery 13 weeks ago. It took 3 weeks for me to start feeling better after surgery, but the reflux and acid relief was immediate. No regrets. No major problems after the procedure. I can burp. I have absolutely no need of meds. I'm thrilled with my new lease on life. I'm a 46-year-old female.

My surgeon told me that not all GI doctors will support a patient's decision to have the Nissen procedure when medication controls symptoms. I'm pretty sure that he said most would opt to continue medication instead of the surgery route. He also said that the GI physician I work with does not always support the choice of surgery for all his patients - he would usually advise to continue medication; but for me it was the best option.

Something else taken into consideration was the fight each year with my insurance company to renew my ability obtain proper PPI medication - the insurance company wanted me to take Prilosec OTC - which my body does not tolerate nor does it control my symptoms. So the fact that obtaining Nexium would be so difficult was a factor in the decision. Plus the insurance company would not allow me enough Nexium to take it twice a day - they would only allow once a day. While I was on the medication, the GI's office supplemented my supply of Nexium with their office samples.

Another issue that was taken into consideration was that the Nexium neutralized the acid, but did not stop the reflux - so I was waking up at night choking on my own refluxed material. Aspirating stomach contents was not pleasant. Before the wrap surgery I had been to two separate sleep clinics for sleep apnea symptoms. After the surgery the symptoms are totally gone and I feel so rested in the morning that it's an obvious change compared to how I used to feel. Turns out that the reflux was preventing me from going into a deep sleep because I partially woke up to move and stop choking every night - even with the wedge.

I did my research into the procedure before having it. Even with finding mostly horror stories, I chose to have the surgery. There's no way anyone can tell you about the problems you will face after the procedure. You've read enough here to see that each person is different and has had different issues after the surgery. We can tell you what happened to us, but that does not mean that your body will react the same way. We all had different surgeons - that means the same procedure, but done with different techniques and different ideas of how tight to make the wrap. Our bodies are all different and each body will tolerate this physical change in the structure of the stomach differently.

I think if you continue searching, you will find a GI that will agree to the surgery. At your age, I'd start searching - but knowing that it will take a while to find the right doctor.

Good luck

oldpoopie
Regular Member


Date Joined Jan 2008
Total Posts : 45
   Posted 1/26/2008 6:42 PM (GMT -6)   
Agreed. Every situation is different. All PPIs caused me terrible lower abdominal grief, so my dr finally turned to Ranitidine (zantac). It was the only thing that worked, and I took 300mg 3 to 4 times daily. After a few years of that, things started to go downhill again. The Ranitidine would work during the day, but I had problems at night again.

Even though I was evaluated for nissen about 4 years ago and told my esophageal motility was borderline too poor, I went to a new doc and went thru the round of tests again. This time the doc said that I would be a good person to get the surgery. Apparently the motility test is much more accurate now. At any rate, I had it done on the 21st and am recovering nicely. I havent had any ranitidine since last sunday night, and have not had any hint of reflux... I'm a happy boy.

jbrdbr111
New Member


Date Joined Jan 2008
Total Posts : 4
   Posted 1/26/2008 9:45 PM (GMT -6)   
Well, I thought it was rough, because they do cut away the spleen to use the stomach for the wrap, they move the liver out of the way, they stitch up the diaphragm (if you have a hernia), they stitch the wrap where the stitches go into the base of the esophagus and you are inflated with Co2 during the surgery, which causes pain from that being in you for up to a week or so (they let it out after surgery, but some still stays in till it goes away)..

Also, afterward, it's hard because you get nausea quite a bit, and my surgeon said if I throw up in the first few weeks, before enough scar tissue develops, it may damage the wrap.

Also the scar tissue that builds up inside you tends to cause you pain in random areas... (I'm not trying to scare you off, just letting you know a possibility as every BODY is different to the surgery and healing)

I would find a good surgeon, as I did, he was very experienced, but still you can never tell 100% how it will turn out for you, and how the results/complications will affect you..

I had gerd for about 3½ years that was getting more severe by the day... I couldn't even sleep in my recliner as I would awake to acid choking me off.. Rolaids, Pepcid, Prevacid, Milk, etc didn't even touch the problems that I was having..

I'm a male...

I took Reglan 3-4 times a day, Prevacid 20mg twice a day, 2 pepcid AC nightly before bed, and ate rolaids like candy... I could tell a difference when I didn't take my meds, but other than that, they didn't do much good for me..

If I could do it all over again? Well probably not, that may have to do with the blood clots, collapsed lung, 8 days in ICU, but even without that I would probably spend months thinking about re-considering it..

If the meds work for you, I would avoid this surgery unless it gets so bad, that even with meds you get no relief.. You may want to check into the Stretta procedure, where they basically use stimulus by endoscopy to tighten your LES valve, I heard great things about it, and in your case with meds working, that may help you get off meds, or atleast take much less often.. talk to your doctor about it and see what they think..

Good luck, and if I hope my information was of some help..

PS.. oh and what HappilyWrapped said about insurance, that is something to consider, I was dropped from coverage of my Prevacid 1 month prior to surgery and it would cost me $200 out of pocket..

Post Edited (jbrdbr111) : 1/26/2008 8:48:22 PM (GMT-7)


Alycarr00
Regular Member


Date Joined Nov 2007
Total Posts : 65
   Posted 2/11/2008 1:44 PM (GMT -6)   
Hi Lucy
As I said previously, I'm 29. I just had the surgery 2 weeks ago. Medication wasn't working for me, BUT, there was also NO way I would be able to continue with the meds, just due to the MONEY it was costing me! You will have to pay for those meds FOREVER! That ADDS UP! I had the lap nissen plus repair of a large hernia. I feel GREAT! I've had bronchitis for the past 2 weeks as well, and I still would do the whole thing over again. Yes, I felt like crap for a few days, yes, I am taking care of my 3 yr old....BUT to drink just water, lay down, and NOT have reflux! WHOO HOO! Like someone else said, the meds may help the symptoms, but is it still doing damage!!! That's what's important! GOOD LUCK! Keep us posted!
***~Alli~***


outtllaw
Regular Member


Date Joined Aug 2007
Total Posts : 69
   Posted 2/11/2008 5:43 PM (GMT -6)   
Its good to hear that you are doing well Alycarr00, I am doing fundo next month.

Post Edited (outtllaw) : 2/11/2008 4:50:38 PM (GMT-7)


doghouse
Regular Member


Date Joined Oct 2007
Total Posts : 138
   Posted 2/11/2008 9:49 PM (GMT -6)   
I'm 34, I had my fundo 2 weeks ago and am already eating solid foods (but my doc said I was ahead of schedule on that). I've had esophagitis for years that won't go away even though I've been on many different medications. This has all been caused by GERD that is only slightly under control through the use of medication and lifestyle changes. To decrease my chances of cancer this was decided a good decision to move forward with.

So far I am lucky and I'm still keeping my fingers crossed. My surgeon had done over 750 before mine. I have the ability to burp, just little burps but hey that's enough to make me feel better. I haven't had any reflux but I'm still only 2 weeks out and he said it would take 4-6 weeks before diet and such felt back to normal and I would really know the outcome...which makes sense. I did not have a haital hernia so I was lucky. During my surgery I did have a complication where a vessel was cut to my spleen and I did have internal bleeding but it was quickly controlled and I lost minimal amounts. They still did the whole procedure laporscopically and I only stayed one night in the hospital.

I would just like to say if you are one of those people that pain medications make hyper...ask them to give you the sedative form of anti-nausea medication. I swore I didn't sleep for 3 days after my procedure!!
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