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friendlygal
Veteran Member


Date Joined Dec 2006
Total Posts : 722
   Posted 2/27/2008 9:17 PM (GMT -6)   
My tongue is full of lesions and I still have the lump in my throat!  And I always feel like food is getting stuck in my chest.  I am wondering if I have excessively dry throat to the point that it's the real cause of the lump!  Maybe that's why it feels like the GERD medications are never working.  Does anyone else experience this?
 
The GI doctors seem so surprised that I still have my symptoms, even though I've tried all the PPIs on the market!!  So, now I'm thinking that dry throat is a big part of my problem...Is anyone else in the same boat?  Even if you're not could you share your thoughts?
 
Thanks, friendlygal
 

friendlygal
Veteran Member


Date Joined Dec 2006
Total Posts : 722
   Posted 2/28/2008 11:03 AM (GMT -6)   

reachme,

It's funny how you mention that Nexium might have made your throat dry.  Because I have been taking prevacid, twice a day, for ages now.

Do you think that it might be the cause of my dryness?

Also, do you think there's a way to get my throat back to normal??

I think it's quite odd that the GI doctor wouldn't know that the prevacid is causing this!!  She seems to only be able to understand things that she, herself has experienced!!

Like when I told her that my tongue was so, so hurt when I eat salty foods especially, she said that she gets redness on the corners of her mouth when she eats salty things, too.  That is NOT what I meant!!  When I was younger and healthy as can be, I would get those sores, too when I'd eat salty foods.  That is NOTHING compared to what I have now!!  I showed a PCP the lesions on my tongue and she said it looked HORRENDOUS!  The GI should know better than to just try to relate everything to her own experience!!


marthamae
Regular Member


Date Joined Jan 2008
Total Posts : 285
   Posted 2/28/2008 6:03 PM (GMT -6)   
I believe in my case at least, the lump in the throat is caused from acid continually backing up down around there. This is causing irritation and swelling and a feeling of a "lump". There isn't anything stuck there but it feels like it is cause the tissue is sort of swollen from the acid. Stress makes it all worse.

The feeling of stuff caught in my chest is usually caused by stuff backing up and not going all the way into my tummy. This happens if I eat too much, too fast, or if I have too much tummy gas and I need to burp. Once I burp, that stuck chest feeling goes away.

There's a difference between FEELING like stuff is stuck and actually HAVING it stuck. If you have stuff getting stuck you need to see a doc and get an endsocopy done to see what is going on. When it is getting stuck for real you know it cause it is painful and will not go down easily. You can almost feel it "pop" out into your tummy. Or, you may need to vomit it back up. This is most common with chicken, steak, ham, big pieces of bread, etc.

friendlygal
Veteran Member


Date Joined Dec 2006
Total Posts : 722
   Posted 2/28/2008 8:43 PM (GMT -6)   

marthamae, thanks for that great explanation.

Oh yeah, I definitely have food getting stuck when I eat meats especially.  And, you're right it's painful.  I am definitely getting things stuck.

I am confused, if the dry throat is from the acid, then why is my throat still so, so dry after a year of PPIs and relaxation techniques?  Mine is no worse if I'm stressed.  It's always there.

I've been told to take iron now for an iron deficiency.  But I just read that you shouldn't take prevacid when you take iron.  so I've been thinking of getting off of the PPI altogether and just going to a nutritionist.

I have extremely bad gerd.  but the PPIs don't help, anyway!


marthamae
Regular Member


Date Joined Jan 2008
Total Posts : 285
   Posted 2/28/2008 10:20 PM (GMT -6)   
Friendlygal,

Get that food stuck problem checked out by a GI soon. You don't want to be out in public and get something caught and get panicky. It happened to me and was not a happy thing. You can have your esophagus dilated during a scope---it is very simple and things won't stick after.

If your throat is dry, could it be a saliva problem? Maybe you are not making enough. Just a thought. I have no real idea.

Bo Peep
Regular Member


Date Joined Jan 2008
Total Posts : 227
   Posted 2/29/2008 6:20 AM (GMT -6)   
A dry mouth and throat was my first symptom of GERD. I took a sip of a drink and choked because I couldn't swallow properly. My tongue felt like it was huge! I was prescribed artificial saliva but it didn't help. Tests showed that my throat has been damaged by the acid and I have a motility problem with the middle section of my oesophagus. I also have the lump in the throat feeling all the time. I tried all the different PPIs out there but was allergic to most. I am taking Rabeprozole at the moment and have noticed that with a higher dosage (GP prescribed 3 a day) the lump in the throat feeling is slightly better. As regards doctors I found that the only person who knows exactly what I am talking about is my surgeon (due to have surgery soon). Even the consultant doesn't understand a lot of my symptoms.
Let us know how you get on and don't give up on finding an answer!
Elaine


friendlygal
Veteran Member


Date Joined Dec 2006
Total Posts : 722
   Posted 2/29/2008 11:53 AM (GMT -6)   
Well, if my dry throat is from the acid then is it never going to get better??  Can it get undry??
 
Also, I don't qualify for surgery.  So, how am I going to get the right help if I can't see a surgeon since I don't qualify?
 

Bo Peep
Regular Member


Date Joined Jan 2008
Total Posts : 227
   Posted 3/2/2008 2:43 AM (GMT -6)   
Hi friendlygal. Sorry, I forgot to say that since I have been on the higher dosage and kept at it for a few months the dryness has more or less disappeared. I am watching what I eat, so I never eat large meals and never anything spicy or any of the trigger foods. It's really boring but I feel much better for it. You can get so run down if GERD isn't treated properly. I had bleeding gums and was so dizzy I couldn't stand up, along with asthma! (which I have never had in my life before and
was so severe I couldn't walk more than 30 feet).

I'm not sure how your system works in the US (are you in the USA?) We have GP, consultant and then surgeon. Is your GI like our consultant?
Elaine


friendlygal
Veteran Member


Date Joined Dec 2006
Total Posts : 722
   Posted 3/2/2008 6:36 AM (GMT -6)   

Hi, Bo Peep!

Yeah, I'm in the USA.  How about you?

The reason why I don't qualify for surgery is because I have motility issues too.  So the GI says that I would be miserable after surgery because of it.

The strangest thing just happened.  A doctor of internal medicine gave me the antibiotic levaquin (750 mg) for sinusitis.  I started getting a terrible, strange headache with TMJ 3 days after I began taking levaquin.  Now I also have terrible muscle and joint pain and also have some trouble walking!  it must be a reaction to the levaquin.  I feel like I can't trust doctors anymore!!  Plus, the doctor should have thought twice before giving someone with such bad GERD such a strong antibiotic, no?

Now I think I have to see a neurologist, if my headache and massive muscle and joint pains don't go away!

That is awesome that your surgeon helps you so much!



Bo Peep
Regular Member


Date Joined Jan 2008
Total Posts : 227
   Posted 3/3/2008 4:49 AM (GMT -6)   
Hi friendlygal! I am in the UK. The acid is what has given me the problem with the motility and when I take high doses of PPIs the motility gets better. My surgeon has warned me that I will probably have some difficulty with the swallowing after the operation and that it will take me longer than others to get back onto "proper" food but I am prepared to put up with that.

Don't talk to me about antibiotics! I wonder if that is what started my GERD in the first place! I was taking some for a bladder infection and 4 days into the course I couldn't swallow and that is when it all began.

I am sorry you are feeling so unwell. It's horrid! I hope you get your aches and pains sorted out soon. You don't need that on top of your GERD!

When I first started feeling ill and right up to about 6 months ago I had a lot of joint pain. I still have some now but nowhere near as bad. I don't suppose it is connected to the GERD is it?
Elaine


jen123
Regular Member


Date Joined Jul 2007
Total Posts : 29
   Posted 3/7/2008 4:29 PM (GMT -6)   
I also had the dry throat but now with 60 mg prevacid it is gone. It was just HORRIBLE.
Now I only have the "food stuck in throat feeling" but I had many test done and they tell me NOTHING is getting stuck. I had the modified barium swallow and a laryngoscopy with food and I was like "ok, the cookie you just gave me is STILL there" but they were looking and he was not there... so I just dont understand why I have the feeling that something is stuck. They tell me it is LPR but let me tell you : 60 mg of prevacid is not the miracle they told me it would be mad

friendlygal
Veteran Member


Date Joined Dec 2006
Total Posts : 722
   Posted 3/7/2008 7:57 PM (GMT -6)   

jen123, do you feel much better at least now that your throat isn't dry?  What do you mean by prevacid 60 mg?  Are you taking two pills at once or is there a prevacid that is 60 mg?

Thanks in advance, friendlygal


jen123
Regular Member


Date Joined Jul 2007
Total Posts : 29
   Posted 3/9/2008 8:07 AM (GMT -6)   
I take 30 mg twice a day.
Yes I feel better but I thought that with such a big dose of prevacid (normally people take only 30 mg) I would have ZERO symptoms.
That is why I am still frustrated. I hate to take such a big dose of prevacid since it interferes with the absorption of vitamins from what I understand.

The usual symptoms of reflux are difficult to live with (heartburn, regurgitation, ...) but the "LPR" symptoms (dry throat, feeling of someting stuck, mucus) are worse in my opinion.

friendlygal
Veteran Member


Date Joined Dec 2006
Total Posts : 722
   Posted 3/9/2008 10:49 AM (GMT -6)   

Oh no, I take prevacid twice a day and have mega symtoms still.  It sounds like I have it much worse than you because I have the lump in my throat and dryness all the time, even on prevacid twice a day.

I thought you meant you took 60 mg together.  So I decided to take two of them together, thinking that you did that..


jen123
Regular Member


Date Joined Jul 2007
Total Posts : 29
   Posted 3/11/2008 7:44 AM (GMT -6)   
Prevacid works only for like 16 hours so if you take one in the morning and the other before dinner you will have "acid control" all day long. If you take 60 mg in the morning you will have reflux at night. I think this is the reason why it is better to take 30 mg TWICE a day and not 60 mg in the morning.

friendlygal
Veteran Member


Date Joined Dec 2006
Total Posts : 722
   Posted 3/11/2008 9:53 AM (GMT -6)   

jen123, I have been taking prevacid TWICE a day for a year now with ABSOLUTELY no relief!  I have also tried taking protonix, aciphex, nexium, zegerid, you name it!  And NOTHING helped...

So if you are saying that two at once doesn't help any, then maybe I need to take 3 tablets a day or something!!  All I know is that my GERD is so, so bad and PH-studies confirmed this!!


sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 3/11/2008 10:01 AM (GMT -6)   
Hi I am new to the GERD forum but not to healing well, this thread caught my eye, because my throat is sore often and some times it bleeds. We had a little mini forum going on in the fibro forum of how alot of us have the gastroparesis, and for those not familiar is where your stomach is slow to empty, and often times causes you to vomit, and the vomiting has been making my throat sore. I think I may start a thread over here about gastroparisis, see how some of you deal with it and how we may have suggestions to help others with it. Anyway just wanted to intorduce myself smurf , let you know why my throat hurts,take care......
.......Love.....Sheryl
Fibro-05
Interstial Cystitis-06  implanted Interstim-06 hysterectomy -07
Arthiritus-04 Depression-04
GERDS/ Hiatial hernia -07   Anxiety-07
Gastroparesis-08
Reglan,Protonix,Prozac,Effexsor, Erthomyicin, klonipin
Im marrried w/2 children, one with mild autism and Bipolar, she takes Abilify, Buspar, Celexa
MY son is bipolarw/migraines, he takes Risperdal,Topamax,150mg Zantac-acid reflux, Metformin- weight loss.
....God Bless...and have a Great Day!!...


jwise_07
New Member


Date Joined May 2012
Total Posts : 1
   Posted 5/31/2012 11:31 PM (GMT -6)   
Have any of you ever strayed from the path of acid reducing meds, and tried the opposite? Or even natural alternatives? I know to modern America, alot of that sounds like hocus-pocus, and believe me, before I came down with terrible acid reflux, I was just as quick to disagree with alternative views.

I used to smoke regularly, drink at least 4 cans of pop a day. Eat pure garbage in the form of fast food and candy and sugar. One day I woke up, couldn't taste with the tip of my tongue and had oral thrush. The doctors then did necessary blood work to rule out any serious conditions. Then I lost feeling in my tongue, had a constant sore throat and sores on my tongue. ALthough the thrush was cured, I still had a very rough,dry, tongue, covered in white. At this point I returned to the doctor a few times. The first time, I decided to stop the soda and smoking. Although it helped, it still was terrible. This was before any heartburn had been experienced, but for some reason, I ate an antacid one day and my tongue magically began tasting again. I returned to the doctor where I was prescribed Nexium. In the weeks to follow, the Nexium did not accomplish much. It actually made things worse. At this point, I self diagnosed with hydrochlorydria, or lack of stomach acid. This in turn leading to indigestion, which led to heartburn. And I was right! I began taking ACV to aid in digestion and this seemed to help, but not in the long term. I also seeked out chiropractic treatment, as the Vagus nerve is sometimes pinched in the spine and responsible for gastric issues. This was probably the defining moment in my road to recovery. The instant I was adjusted, my stomach jump started and began emptying and churning. A wave of relief swept over me. I since then have began taking digestive enzymes, acidophilus, licorice root, ginger and slippery elm. The licorice and slippery elm aid in healing the damage to the stomach and esophogus, the digestive and acidophilus help to promote a healthy acid level in the stomach and the ginger will empty your stomach during a bought of indigestion. And taking a multivitamin also help the healing and recovery. I say none of this lightly, It has worked wonders. Although tedious and sounds like a lot of maintenance, my body feels almost like it did before the reflux ever crept up on me. (after four months, it is much welcomed and most of the pills effects were apparent on the hour of taking them!) I still occasionally eat junk food, but stick mainly to healthier choices. I drink more water than ever before and most pops taste disgusting to me now. Also, quit smoking!

Basically, your body needs acid to absorb nutrients and if you ever plan on not having dyspepsia, your body needs to absorb calcium, magnesium and B vitamins especially. I am pretty sure I was left with some ulcer or at least severe irritation that will take some maintaining my regimend, but I can feel it working. I just hope this helps someone, anyone!

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 6/1/2012 8:28 AM (GMT -6)   
 
Hello and welcome to HealingWell.  You may not have realized it but you have tagged on to a post that is 4 years old.
 
It is always a good idea to take the time to introduce yourself in a new thread before you begin responding to the topics already in progress.

This is done by clicking on the 'new topic' button which will open a new thread for you to post your introduction. This will help members see your first post. It is a big step and can be a bit anxiety provoking but you will find a warm welcome and a good support network. It is best to start your own 1st thread rather than attach it to an old thread that way you will get more responses.
 
Thank you for your understanding.
 
Kitt
 

~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

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