How much should GERD burn?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Ralmat
New Member


Date Joined Mar 2008
Total Posts : 4
   Posted 3/16/2008 10:00 PM (GMT -6)   
Hello fellow reflux sufferers...
 
I have painful burning from stomach acid in my throat 24 hours a day. Sometimes the throat pain is very severe and other times it's less, but the burning is ALWAYS there and always painful to varying degrees. The acid burning my throat makes it impossible for me to ever stay asleep more than a few hours at a time... I wake up constantly throughout the night and I always wake up with extreme pain in my throat. During the periods that I am able to sleep, this burning in my throat causes me to have terrible dreams. I have honestly not had a good, full night's rest since 2005.
 
This has been going on for over two years and all 5 of the PPI's have been a failure for me. I have been recently scoped by an ENT who said there were no throat ulcers and no sign of cancer. He could only see irritation. I also had an endoscopy last month and nothing sinister was found, only irritation and redness in the lower third of the esophagus.
 
I know GERD isn't supposed to be a walk in the park, but my symptoms seem to be so outrageously persistant and painful. My burning just never ever subsides, no matter what I take for it, and the pain literally has me in agony much of the time. It feels as if I always have Drano or Liquid Plumber in my throat!
 
Is mine a common situation for GERD sufferers? Is acid reflux supposed to cause such intense pain and occur all day, every day?
 
I would appreciate hearing from others who are dealing with this terrible illness, regarding the severity of symptoms. Thank you.

marthamae
Regular Member


Date Joined Jan 2008
Total Posts : 285
   Posted 3/17/2008 9:56 AM (GMT -6)   
I only occasionally have terrible burning when i have a "load" (sorry to be gross) of liquid or food that rolls back up in my mouth. If I were you, I would aggressively move around until a doctor helped you find an answer. You deserve better treatment for this severe of a problem. JMO.

Roseanne99
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 3/17/2008 7:58 PM (GMT -6)   
Hi Ralmat,
 
I, too, have burning in my throat every day.  Fortunately, I do not have symptoms at night. I am taking Nexium, 40 mg, once a day. I tried 5 different PPI's, and nexium is the only one that relieved the burning in my chest.  However, it does not relieve the throat burn.  I was told that it is possible that my throat burn is due to non-acid reflux (bile, digestive juices, pancreatic juices, etc). Since Nexium eliminated the burning in my chest (i.e. in my esophagus) I assume this symptom is being caused by acid refulux.  Every Dr. I have been to said that LPR (laryngo pharyngeal reflux) is an atypical GERD symptom and is difficult to treat.  I had a Bravo pH test that indicated I have acid reflux.  But no Dr. thus far has suggested how I could be tested for non-acid reflux. I am considering surgery, (Nissen fundoplication) but I have also read that atypical GERD symptoms are less likely to respond to surgery. Have you considered surgery?

babygirl1234
New Member


Date Joined Mar 2008
Total Posts : 2
   Posted 3/21/2008 11:38 PM (GMT -6)   
i've had burning in my upper stomach for the past 2 weeks and ive called the doctor about it and they uped my prevacid to 2x's a day and put me on tums and i burp and it's still there i cant eat without it hurting me, so i dont know what to do

Roseanne99
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 3/23/2008 7:37 PM (GMT -6)   
There are 5 different PPI's that you could try besides Prevacid, such as Nexium, Zegerid, Protonix, etc. Perhaps you should ask your Dr. to prescribe a different med.

Ralmat
New Member


Date Joined Mar 2008
Total Posts : 4
   Posted 3/25/2008 3:20 AM (GMT -6)   
Roseanne... regarding your PPI comment... I mean no offense by this whatsoever, but you must have missed in my original posting where I wrote, "This has been going on for over two years and all 5 of the PPI's have been a failure for me".

You previously asked if I've considered fundo surgery and of course, that has has crossed my mind many, many times... but I have the same concerns about it that so many others GERD sufferers do. The thouight of having stomach surgery is a bit frighteneing in itself and the outcome of the fundo can be iffy for some people. So I just don't know. But if my suffering keeps increasing as it has been, I may end up with no choice but to take the chance on the fundo. But I would need a lot of gastric testing done on me before I would commit to something that drastic.

Thank you for your concern.

Roseanne99
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 3/25/2008 12:54 PM (GMT -6)   

Ralmat...sorry for the misunderstanding, but my comment on PPI's was intended for babygirl1234, who posted after you did.  I should have written her name in my post.

I agree with your concern regarding surgery. I recently had the Esophyx procedure performed (4 weeks ago).  Esophyx is an endoscopic procedure that is meant to recreate the LES valve.  From literature I had read, the success rate was claimed to be 85%.  While I have had no side effects, I  have also had no symptom relief.

 


Ralmat
New Member


Date Joined Mar 2008
Total Posts : 4
   Posted 3/29/2008 2:45 AM (GMT -6)   
Roseanne...Ooops! I apologize for my misunderstanding.
 
That is so discouraging to hear that you have experienced *NO* relief from Esophyx 4 weeks out! That is so sad, I'm very sorry it hasn't worked out for you. And I had heard several positive things about that procedure too. eyes
 
In another GERD forum, some people were saying that there isn't an insurance company in America that will cover Esophyx, so anyone who has the procedure done must pay for it out of their own pocket. Was that the case for you?
 
If so, that truly is terrible that it's not helping your condition at all.

Roseanne99
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 3/29/2008 7:24 PM (GMT -6)   

Hi Ralmat,

re: Insurance payment for Esophyx: my insurance covered it completely.  I have Medicare (paid 80%) and Madigap (Blue Cross/Blue Shield) which covered the additional 20%.  I know that Oxford does not cover the procedure.  I saw the same post you did, and that person had Oxford Ins.

My surgeon performed the procedure on 20 patients prior to me and he said that all felt better (most no longer needed to take PPI's, while a few were able to reduce their meds). I have read that the procedure has an 85% success rate so I guess I am in the unlucky 15% sad

Thanks for your sympathy. I appreciate it.


Ralmat
New Member


Date Joined Mar 2008
Total Posts : 4
   Posted 3/30/2008 5:29 AM (GMT -6)   
Roseanne,

Glad to hear that you didn't have to pay a cent for Esophyx, but very sad to hear that it didn't work. Not sad because I had high hopes for it myself someday, but sad only because you had to go through the procedure for nothing.

Would having the Esophyx device now prevent you from ever being able to have a nissen fundoplication, if so desired?

Roseanne99
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 3/30/2008 2:27 PM (GMT -6)   

Ralmat,

In answer to your question about the feasibillty of having a Nissen fundo performed post-esophyx, below is a post (which I copied and pasted from a different heartburn forum) from someone in the UK who had the esophyx procedure in Europe about 6 mos ago.  As you probably know, the clinical trials were conducted in Europe 2006-7 and the procedure was recently approved by the FDA in the States.  This person emailed the Dr. who performed the Esophyx procedure on him.  Like me, this person had no improvement in reflux symptoms since his procedure.

"I don't know of any-one personally, but my Dr did say she has seen a video of a Nissen being performed on some-one who had previously had an esophyx.

as far as she was concerned there was no reason you could not have a nissen as well, obviously the surgeon would have to be informed of the fact that you had had an esophyx, but otherwise it should be fine."

His person goes on to say....."i think i'll wait a while though until i have heard positive things about some-one having a nissen after an esophyx. 

busy low carbing again which has seriously reduced the severity of my latest reflux flare up, it can just be so tough to stick to. 2 days in and all i want is a sandwhich :-/"
<!-- / message -->

 


babygirl1234
New Member


Date Joined Mar 2008
Total Posts : 2
   Posted 3/31/2008 12:04 PM (GMT -6)   
so far im on proice and pepiracid comp and nothings working so the doctor wants me to go for a ct scan and bloodwork for the burning in my upper stomach, which btw has been going on for over a month
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, June 23, 2018 2:26 AM (GMT -6)
There are a total of 2,974,445 posts in 326,176 threads.
View Active Threads


Who's Online
This forum has 161279 registered members. Please welcome our newest member, minh.
250 Guest(s), 2 Registered Member(s) are currently online.  Details
TSGlassman, Gemlin