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Opie65
New Member


Date Joined Aug 2007
Total Posts : 8
   Posted 5/8/2008 4:24 PM (GMT -6)   
confused  Just had an EGD last week and have been diagnosed with Barrett's and a moderate sliding hiatal hernia.  The gastro office said I would be on PPI's for life and wants me to come back for another EGD in a year.  I've been on Prevacid 30 mg a day for about 2 months now.  I've never really felt like I have "indigestion", although everything makes me burp, but occasionally I still get a burning pain, if that makes sense.  Is it possible it could be stress related?  I'm not very familiar with Barrett's and would appreciate any input!

LakerChick
New Member


Date Joined Apr 2008
Total Posts : 10
   Posted 5/8/2008 6:44 PM (GMT -6)   
Hi there..what kind of Barrett's disease were you diagnosed with..is it the one with displasia or the one that never develops into anything..there is two kinds..did you have a biopsy done? how were you diagnosed with Barrett's..did the doctor notice just by looking or was it only confirmed with a biopsy..cause I know that my Mom three weeks ago had a biopsy done and it was positive for barrett's and on Friday she had another one done and today her doctor told her that she does NOT have Barretts

TammyGrl0528
Veteran Member


Date Joined Jun 2007
Total Posts : 1345
   Posted 5/9/2008 3:04 PM (GMT -6)   
First of all, welcome aboard here to HEALINGWELL.  I do hope you find that the information here is useful to you, and I do hope you stick with us for the information and support that you need.  This is truly an amazing place!
 
In order to familiarize yourself with Barretts, I have enclosed a link for you to do some reading.  I hope you find it to be useful.  If after reading that, you have any other questions, or concerns, be sure to come back and ask!
 
 
Wishing you all the best, and looking forward to hearing from you again!
 GERD Forum Moderator
    Please share, only if you can spare! 
 Diagnosed with Generalized Anxiety Disorder (GAD) and Panic Attacks.
 Clickable Link that may be of interest to some...as I find I often like to check drug interactions...Drug Interactions
 
~Tammy~


Opie65
New Member


Date Joined Aug 2007
Total Posts : 8
   Posted 5/10/2008 2:10 PM (GMT -6)   
Hi Tammy,
Thank you for the warm welcome and the information.  I am trying to read up and educate myself as much as I can.  I have been on Prevacid for a few months now and find that it is not working as well as it originally did.  The same holds true for Nexium.  Is it common that PPI's lose their effectiveness or is it basically trial and error to find which works best for you?
 
LakerChick,
What caused your mother to have a second biopsy?  Did she go for a second opinion?

TammyGrl0528
Veteran Member


Date Joined Jun 2007
Total Posts : 1345
   Posted 5/11/2008 6:16 PM (GMT -6)   
Opie,

I am glad you felt the warm welcome...that is what I was going for! I am glad you are trying to educate yourself as much as you can. That is the best thing you can do for yourself!

It is common for you to have to try a number of different PPIs before you find one that works for you, and it is also common for them to lose their effectiveness over time. So, both are true for what you were asking me.

I wish you all the best, and I look forward to going through this journey with you!
 GERD Forum Moderator
    Please share, only if you can spare! 
 Diagnosed with Generalized Anxiety Disorder (GAD) and Panic Attacks.
 Clickable Link that may be of interest to some...as I find I often like to check drug interactions...Drug Interactions
 
~Tammy~


Lori120
Regular Member


Date Joined Apr 2008
Total Posts : 29
   Posted 5/17/2008 7:41 PM (GMT -6)   
I've had Gerd/Acid Reflux since I was 19yrs.old. Now I'm 57. Just had another scope and a biopsy was done. It came back stating I have Focal Intestinal Metaplasia. My doc always says: "Don't worry about it" to most everything. Probably changing docs. Anyway, when I go on the web, sometimes it states: Intestinal Metaplasia (Barretts). I keep asking my GI doc about this but he again says "Don't worry about it".
Does anyone know if Metaplasia is pre-cancerous or is it another way of saying it Barretts? Not sure what Metaplasia is anyway. Confused.

Lori

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 5/26/2008 7:39 PM (GMT -6)   
Hey Lori and Opie

I'm jumping in here from another board. I usually post on the MS board, but i have GERD/Barretts Esophagus with level one displaysia....so i read here a lot.

As i understand it, Barretts can be with and without displaysia...and the level of displaysia indicates whether or not there is reason to worry about cancer. Level three being the highest and worst. My understanding of Intestinal Metaplasia is that it's about the location of the Barretts..so the Intestinal Metaplasia being anywhere in the esophagus can now be dx'd as Barretts where it once was not. I'm including a link that to where i found this information.

I had to try three diff meds before finding one that fit me. I tried Previcid, Nexium and Aciphex and finally found Protonix to be the best fit. Yes, i'm told the med is a life long thing, but it beats getting neasuas over everything i eat! I too felt there was nothing wrong with me. I went to have an endo for some choking i was experiencing and low and behold there was the GERD/Barretts. I had only occassional heart burn/indigestion, but when i had it, i had it bad!

Best wishes on this. I hope u all get some answers on this. It's interesing to me to find someone else with Barretts..seems not too many...thank goodness!

http://www.barrettsinfo.com/content/1_what_is_barretts.htm


rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 6/21/2008 9:09 PM (GMT -6)   
Rhonda,
I was diagnosed with barretts 3 years ago.  I didn't have any of the normal GERD symptoms, just started with this terrible taste in my mouth and I was very nauseous.  I had an endoscopy and they found barretts without dysplasia.  I was so shocked.  My husband has suffered with GERD for years and he was so afraid of getting Barretts, and I never thought about it, and I ended up with it.
 
Have you ever heard of ablation?  I think it's also called the HALO procedure?  I'm considering having this done.  It's supposed to get rid of the barretts.   I'm currently on Protonix, it works best for me, too.  I used to take it twice a day, but when I went for my first bone scan, I had the beginnings of osteoperosis, (apparently PPI's affect your bone density), so I backed off to once a day.   I spoke to the Dr. about the ablation and he wants me to have the bravo test with another endoscopy first.  I need to make sure that taking the protonix only once a day is keeping the acid under control. 
 
I have all sorts of digestive problems; I have a colon that doesn't work, and I'm preparing for a colectomy.   I've had chronic constipation my entire life (I'm 52) and  I honestly think the colon problems are causing the reflux problems.  I've spent the last year trying to figure out what to do first!  The doctors are in agreement (after lots of testing) the colectomy is the right thing to do, but I'm not sure about whether to concentrate on the Barretts or colon first!
 
Anyway, just wondering if you or anyone has heard of the HALO procedure. 
 
Janie
 
 

LakerChick
New Member


Date Joined Apr 2008
Total Posts : 10
   Posted Yesterday 12:58 PM (GMT -6)   
Hi Janiepain..I was wondering if you have pain with the Barrett's? My Mom has had GERD For years, doctor thought she had Barrett's but the second biopsy came back that she does not have it..she has to have another endoscopy in November to rule it out again..she had a CAT Scan on Thursday because she still has pain and she wanted to rule everything out..How come you have to remove your colon..isn't that kinda extreme..I don't know what constipation has to do with acid reflux..I know that with me, I have been constipated almost my entire life..28 years with constipation and even though I do have acid reflux issues I hardly see what that has to do with the colon..and my constipation has been HORRIBLE..my colon does NOT work without medicine..but I did find one medicine that works great..it's called Lactulose, it's the ONLY thing that works for me..I have a lazy colon, does not work without medication..otherwise I can go months without making..and I'm not exaggerating..I think you should get a second opinion before going to that extreme..unless there is something else wrong with you that makes it necessary to take it out..but if it's only because it does not work right without medicine I am proof that you do NOT need to take it out

Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted Yesterday 2:29 PM (GMT -6)   

Hi.  No, Barretts doesn't hurt at all.  I would never have imagined I had it.  The first endoscopy showed it, my second showed it again, and the 3rd didn't.  It doesn't mean I don't have it; most likely the Dr. just didn't get a biopsy where the Barretts is.  It was a relatively small area, according to the first 2 endoscopies, and that's most likely why it didn't show up the 3rd time.

Having my colon removed is a huge step....I know that.  I've had severe constipation my entire life, and for over 30 years have relied on taking senna every 4 or 5 days to have a bm.  I've been tested, and was diagnosed with colon inertia about 20 years ago.  At that time, the Dr. told me that one day I would most likely have to have my colon removed, but as long as the senna worked, there was no need to do it.  I thought he was absolutely crazy, and really didn't spend alot of time thinking about it, although taking the senna over the years has been very inconvenient.  I normally take it at lunch time, and it will take between 4 and 8 hours to start working, and I spend several hours running back and forth to the bathroom.  That's IF it works.  If not, I feel terrible the next day, and I have to take it again that day.  It's a horrible way to live, but I've managed. However, last Christmas I had a "spell" where nothing worked.  I took senna, dulcolox, and even had THREE golytely (the prep for a colonoscopy) before I could go.  It took 16 days and I was so miserable I vowed to get to a Dr. and start working on a plan.  I have not had a bm without taking a laxative in 30 years, and that's not an exaggeration. Even as a child, I was miserable, and my mom would put a hot water bottle on my tummy to help, and even had to physically remove stool from me. 

I've been going to a Colon and Rectal Center, and spent a couple months having tests.  I have pelvic floor dysfunction, a rectocele, and severe colon inertia.  The recommendation was to be conservative and start biofeedback treatments, then have the STARR procedure for the rectocele, and if there is no improvement, to have a colectomy.  My large intestine will be attached to my rectum and I shouldn't have to have a bag.  Based on the results of the sitz marker test (123 out of 124 markers were still in my colon) the Dr. doubts anything will help, but he said it certainly won't hurt anything to try everything else possible first.

I went to another Dr. a week ago, taking all of my test results, and he confirmed that this was the best plan.  Living on laxatives is a horrible way to live, and it can't be good to have toxins in your body all the time.  I just don't want to live like this anymore.  I know the surgery is no picnic, but living like this isn't either.  I'm leaving Tuesday for a 9 day vacation out west, and I've already planned which nights I have to "stay in" and try to poop.  This is just ridiculous. 

The reason I think my GERD is related to my colon issues (and the Drs. all say the same thing) is that food just sits in my stomach and backs up into my esophagus.  I have extremely slow motility and there's no where for the food and the acid to go but back up.  I don't know if this surgery will help with the acid problems for sure or not, but if it does, it will be just another benefit.

I don't plan to have the surgery until after the first of the year, and I'm just praying tht my senna will continue to work until then, and that I don't have another episode like I did at Christmas.  It was terrible.  After the first week I just stopped eating and lost 8 pounds.  I lived on liquids because there was no room for anything else to go!!

I hope your mom does well nd that  she doesn't have Barretts; although I've been told that once diagnosed, you most likely do have it; it's just that if it's small, it can be hard to find everytime you have an endoscopy.

Janie


LakerChick
New Member


Date Joined Apr 2008
Total Posts : 10
   Posted Today 1:06 PM (GMT -6)   
Janiepain..WOW you sound like me in the future..I never knew that other people suffered with the kind of constipation that I have..I always thought I was the only one that suffered this badly..you should really try Lactulose..cause it has been the ONLY medicine that has actually worked on me. I go to Kaiser Permanente and they told me to go to UCLA because I had no other option..I had taken EVERYTHING and I mean EVERYTHING and it never worked. Most of my life I lived off of Haley's MO which worked fine but then as the years went by my colon got more and more used to it and it didn't work anymore, plus it has magnesium which is why I think I am so short(5'1) I have tried that Senna tea..heck I've drank the whole thing before and didn't even give me a stomach ache..Dulcolax did work but the stomach pain, WOW like your stomach is on fire so I will NEVER take that stuff again..when I was in the hospital two years ago(To get myself cleaned out for a colonoscopy) I had 6 of those Go-lightly's..yep SIX..the doctor was able to see 80 percent of my colon, which for us was a huge accomplishment..the other 20 percent he said that my colon twists so it would have been dangerous for him to try to look inside there..said my colon is huge(of course..it had to be able to hold 20 points of poo) and it is also very lazy since it only works with medicine..when I went to UCLA they told us about Lactulose..it's a drink given to people with liver problems(which I dont have) but the side effect is that it makes you go..ALOT..so this medicine does not do anything to your liver..and it works..works on me, it is the only thing that works, been taking it for 2 years and it works..sometimes I do get full again but the Lactulose always ends up working..and boy when I go..like a river, I lose 10 pounds in 24 hours..So if I had to give you any advice I would say don't remove your colon..you can still use it..the colon can be completely dead and still work right with the right medicine..the doctor one recommended to me that I remove half my colon so that I can hold less but I don't want to because won't that just mean that I get fuller faster..I don't want that..as far as the Barrett's goes..hehe now my Mom is all nervous..but she had two endoscopies and biopsies, first came back positive second came back negative..I doubt she has it since the second one came back negative..but she will have another endoscopy in November..the doctor told her even if she does have it, it's the kind that never becomes anything, without displaysia or whatever you call it..I believe that's the kind that you have..Anyways if you have any further questions, write me anytime..sounds like we have A LOT in common..take care

Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 6/24/2008 6:16 AM (GMT -6)   
Lakerchick,
I've tried everything over the years, but no one has suggested lactulose.  I've been on amitiza, zelnorm, miralax and even a few others, but to no avail!  I will ask about the lactulose; is this something you can be on long term?  I've been taking the senna for so long that I really don't want to have to take something to go any longer.  Two different surgeons at two different times have done extensive testing on me, and both said at some point I would have to have my colon removed.  It's just a genetic thing, and I've lived with it for as long as I can remember!  I had another colonoscopy in January and my colon for "tortuous and twisted" so I can relate.  I'm just tired of this.  I'm planning on having surgery the begining of next year, if things go as planned.
 
Good luck to your mom.  She probably had barretts without dysplasia, which is what mine was the first 2 times I had endoscopies.  The last time showed no Barretts, but like I said, it's most likely they just didn't get a biopsy at the barretts point.  I'm going to have another one in a few months, and I'm anxious to see how that goes.  Unfortunately just because you have barretts without dysplasia doesn't mean it won't change to various levels of dysplasia.  That's why once you're diagnosed with barretts that you should have an endoscopy every 2 to 3 years, to check for changes.  Is she taking any medicine for the GERD?
 
 
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