GERD, LPR, muscle spasms, or something else? I'm losing my mind!

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pfcspengler
New Member


Date Joined Jun 2008
Total Posts : 1
   Posted 6/2/2008 10:01 AM (GMT -6)   
I'm a 27 year old male. 6'1", 145lbs. I was on a benzo medication (Klonopin) for 5 years, and finally got off benzos completely last summer after a long and difficult taper. During and after this withdrawal, I had all kinds of bizarre muscle problems, so I'm not convinced that my current throat/stomach issue is not in some way related to the benzo - however, this is maddening.

In late Febuary, I developed something like globus sensation. It feels like there's something stuck in the back of my throat, right on the inside of the spot where my lymph node on that side is. Other symptoms are:
swollen lymph nodes on either side of neck
frequent burping
some "half burps",feels like my lower esophagel sphincter relaxes but not the top
occaisional reflux of stomach acid into throat (tastes like vomit in tha back of mouth)
sore throats
"fluttering" sensation at top of stomach, feels like my lower esophagel sphincter may be in spasm

Out of all of these, the sensation of something stuck there is the only one that's constant, and so it's the only one that really annoys me. Everything else is pretty infrequent; I've only brought stomach acid into my mouth three or four times over the past three months.

I've been seen by my GP, 2 ENTs, a neurologist, a speech therapist and even an acupuncturist. Tests have included:
barium esophography (showed nothing)
CT scan of neck (normal, except for swollen glands indicating some kind of inflammation)
basic thyroid test (normal)

I've been taking Prilosec at a double dose for close to two months now, which is starting to worry me in and of itself.

Doctors have variously diagnosed me with: post nasal drip, reflux, neuralgia, anxiety.

I am anxious by nature, but also convinced there's some kind of physiological issue here. When the "stuck in throat" sensation gets really bad, it feels more like "tissue at back of throat is twisted into a ball", and when I stick my finger in my throat and press hard against the area in question (right behind my left tonsil, more or less), it does provide some temporary relief.

What I've read online makes me think I'm dealing with a spasm of the upper esophagus, acid reflux, or both. People who have recovered from benzos have told me that they had weird symptoms up to 18 months off the benzo, and just to give it time, but this is really degrading my quality of life pretty severely.

edit: one other thing I should mention; twice in the past 3 months I have had severe pain in my stomach at the site of the lower esophageal sphincter. It felt like a hot knife was stuck there. Once this lasted for a good 5-10 minutes, the other time it only lasted for a minute. This would be a more distressing symptom except that it hasn't happened much at all. I've also had a very small amount of traditional "heartburn" pain, but not any more than I have for my whole life.

Does anyone have any advice on where I should go next?

Post Edited (pfcspengler) : 6/2/2008 9:07:52 AM (GMT-6)


Acid Prone
Regular Member


Date Joined May 2008
Total Posts : 46
   Posted 6/3/2008 12:22 PM (GMT -6)   
Go to Gastroenterologist. Get checked out. I have your symptoms and I'm being treated for them. I had a stricture in my esophagus which was adding to my symtoms. So, go see a GI doc. Hope you have good luck.

Mary Lynn


JLR
New Member


Date Joined Jun 2008
Total Posts : 5
   Posted 8/12/2008 9:13 PM (GMT -6)   
I also have swollen glands and sore throat. I have actually had the sore throat and gland problem since August of 2007. It has been a year. I just had a test done at the ENT and he said it is acid reflux and put me on prilosec. It really angers me that I racked up all these Dr. bills going to the regular Dr. and they could never figure it out. It is frustrating to have such a bad sore throat along with the glands that worried me. I was beginning to think I had a worse problem than Reflux. Now, the only time my glands swell is when I will have a little coffee or pop. I am getting way better at controlling my coffee habit though because I have to.

Heyman
New Member


Date Joined Feb 2009
Total Posts : 1
   Posted 2/16/2009 7:01 PM (GMT -6)   
Hello, my wife is having a terrible time coming off Valium (Benzo).  Her doctor gave her no instructions on tappering, so not knowing she went cold turkey and had some pretty dramatic withdrawal symptoms, including acid reflux.  This Gerd will not go away. She went back on Valium and tappered off from July thru Sept, had a good Oct but then it all came back.  Just the Gerd.  She's got the constant burning and feeling of something in her throat.  The only time it seems to subside is when she takes her Ambian to sleep.  Sometimes we think it's all stress/anxiety related, for she's off the charts worrying about long term damage to her esophogus.
 
Her gastro doctor gave her the esoscopy and found nothing to worry about, a little acid was coming up but nothing else noticable or no damaged or signs of trouble.  He put her on Nexium, but it didn't work and when she came back to see him he recommended an SSRI, noting it was stress related.
 
All I can tell you is she's very uncomfortable and can barely function. She's in bed all day stressful and crying.  We are thinking about going to another GI but maybe she needs to see a phychopharmacist or phychiatrist.  She seems to need something to calm her down during the day.  She's been taking Lexipro for the last week, hoping it may help her depression and anxiety, but so far, nothing is working.
 
We read the Ashton manual on benzo withdrawal, and all it says is gastro problems may take a long time to go away.  All she can think about is that it won't go away and she'll eventually succumb to something horrible.
 
A distressful husband....Anybody out there with any hope to share?

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/17/2009 7:40 PM (GMT -6)   

Heyman

Welcome to HealingWell. This is a great site. I look forward to getting to know you better.

I know the members will be along to help you with your issues so please hang on and know we care.

Again a warm welcome.

Kitt


 

Kitt, Co-Moderator: Anxiety/Panic & Depression
&  Moderator GERD  Forums

*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources


LPR2010
New Member


Date Joined Dec 2010
Total Posts : 1
   Posted 12/23/2010 1:46 PM (GMT -6)   
Hey pfcspengler,
If you are still on this Forum, how are you now and did you find a suitable treatment, my symptoms are 100% like yours and I have been diagnosed with LPR by my doc after an endoscopy. I do want want to take PPIs and looking for an alternate. Thanks

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/23/2010 2:16 PM (GMT -6)   
Hello, LPR2010,
I've been here for nearly two years and pfcspengler has not posted since this thread.

If you don't want to be on PPIs the rest of your life and you've been told you have LPR, surgery is the best option for you in my opinion. Make sure to choose an excellent surgeon with a lot of experience in doing the NF.
Joy
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