Hello. I am new to this site, and looking for some kind of hope. I have had reflux problems (as well as numerous other GI problems) for a few years, which I was successfully able to treat with PPI’s, until recently. Over the last several months my life has turned to hell. I am on the max dose of Nexium (2x a day), and am not able to control my symptoms. I recently recovered from a bout of pneumonia, and still frequently have a hard time breathing (probably asthma attacks). I constantly have terrible heartburn, stomach pain, constant burping, bloated stomach, loss of appetite, headaches, and recently tinnitus. Occasionally I have difficulty swallowing. Sometimes I feel so sick I can barely get out of bed.
I have gone from doctor to doctor seeking help, until I recently saw a different GI doctor, who performed an endoscopy—it showed I have esophageal damage with an abnormal patch that may be Barrett’s esophagus. He was unable to biopsy right now because I am having 48-hour pH monitoring done. Moreover, the endoscopy showed I have gastritis and likely gastroparesis as well, due to the fact that I had undigested food in my stomach. A recent HIDA scan (for gallbladder) was normal. I am having a gastric emptying study done next week, and am then supposed to follow up with the doc.
My esophogeal pH has stayed mostly between 6-7 despite having horrible heartburn and other symptoms. Therefore I suspect bile reflux is the culprit, but I don’t know whether it is causing or being caused by the likely gastroparesis (it appears either way is possible). In any case, I am miserable and depressed. I recently married and will not be having a honeymoon anytime soon. I started a new job, which I was initially very excited about, but now I am having a hard time working and am afraid I will lose it. I am tired of feeling sick all the time, with no answers. I am 33 years old, but I don’t feel I have any real quality of life. I’m sick from the time I wake until the time I go to sleep. I’m tired of hurting. Is there any hope, or point?