Possible Barrett's, bile reflux, gastroparesis--need help/hope.

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NewPraetorian
New Member


Date Joined Oct 2008
Total Posts : 1
   Posted 10/23/2008 10:52 PM (GMT -6)   
Hello. I am new to this site, and looking for some kind of hope. I have had reflux problems (as well as numerous other GI problems) for a few years, which I was successfully able to treat with PPI’s, until recently. Over the last several months my life has turned to hell. I am on the max dose of Nexium (2x a day), and am not able to control my symptoms. I recently recovered from a bout of pneumonia, and still frequently have a hard time breathing (probably asthma attacks). I constantly have terrible heartburn, stomach pain, constant burping, bloated stomach, loss of appetite, headaches, and recently tinnitus. Occasionally I have difficulty swallowing. Sometimes I feel so sick I can barely get out of bed.

I have gone from doctor to doctor seeking help, until I recently saw a different GI doctor, who performed an endoscopy—it showed I have esophageal damage with an abnormal patch that may be Barrett’s esophagus. He was unable to biopsy right now because I am having 48-hour pH monitoring done. Moreover, the endoscopy showed I have gastritis and likely gastroparesis as well, due to the fact that I had undigested food in my stomach. A recent HIDA scan (for gallbladder) was normal. I am having a gastric emptying study done next week, and am then supposed to follow up with the doc.

My esophogeal pH has stayed mostly between 6-7 despite having horrible heartburn and other symptoms. Therefore I suspect bile reflux is the culprit, but I don’t know whether it is causing or being caused by the likely gastroparesis (it appears either way is possible). In any case, I am miserable and depressed. I recently married and will not be having a honeymoon anytime soon. I started a new job, which I was initially very excited about, but now I am having a hard time working and am afraid I will lose it. I am tired of feeling sick all the time, with no answers. I am 33 years old, but I don’t feel I have any real quality of life. I’m sick from the time I wake until the time I go to sleep. I’m tired of hurting. Is there any hope, or point?

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 10/24/2008 12:06 PM (GMT -6)   

NewPraetorian

Hello and Welcome to HealingWell.  I am sorry you are miserable and depressed.

Chronic Illness and Depression go hand in hand. Depression is a natural part of dealing with a chronic illness. When your body is challenged physically, it often times challenges the affects your brain chemicals which can lead to depression. Not to mention that with a chronic illness a person is dealing with an avalanche of new experiences both physical and emotional and that can affect their emotional health.

Depression is an illness in itself and combined with other medical issues makes for a truly challenging situation.  Yes, there is hope.

One of the best ways to deal with depression is CBT.

Cognitive-behavioral therapy is based on the idea that our thoughts cause our feelings and behaviors, not external things, like people, situations, and events. The benefit of this fact is that we can change the way we think to feel / act better even if the situation does not change.

There is a free online CBT site you can join and use for free.  You may work through it at your own pace. Here is the link:

CBT
The MoodGym Training Program

http://moodgym.anu.edu.au/

Take care and I hope this helps you.

Kitt


 

Kitt, Co-Moderator: Anxiety/Panic & Depression
& GERD  Forums
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JBT1234
Regular Member


Date Joined Oct 2008
Total Posts : 34
   Posted 10/24/2008 3:51 PM (GMT -6)   
Hi, I want to say that I can truly feel for you....I have been sick for a long time too....same type of stuff with the added bonus of pancreatitis....I hope there will be a dr. out there to help both of us.  It is very frustrating...Have you ever tried any other type of medicine?  Maybe nexium isn't for you or you need two types at one time.  Let me know!  I can relate.

RoadHog
New Member


Date Joined Nov 2008
Total Posts : 5
   Posted 11/18/2008 7:23 PM (GMT -6)   

Hi! If I may offer a slightly outside the box idea, I have seen it work for some.  Depending on what is available in your area, it may be possible for you to attend a bariatric support group.  It sounds strange, but bariatric surgery has many side effects that people with GERD experience.  Talking with each other with a medical person in the group can be very helpful.

This may not be for you or your local group may not welcome someone whose primary reason for being there is not weight related, but if you can get in such a group it could help.

Talk to your doc, he/she should be able to help you locate someone locally who can empathize (not sympathize) with you.

If you try it, let us know how it goes.

Rick


beemer
New Member


Date Joined Jul 2008
Total Posts : 19
   Posted 11/20/2008 1:40 AM (GMT -6)   
sorry that you are not feeling well........you can get better, first wait to see what the doctor recommends
maybe nisson surgery will help you heaps, its for people like you that are still refluxing on meds.......the operation is apparently about 90% successful, so thre is always hope............also if you have gatroparises there is diets and medication that can help wiht this.domperidone is the safer choice of drug rather than raglan but you cant get it in usa, not sure where you live, i have read that people can by it online thou from NZ where i live and have no isses getting it...it helps to make your stoamch muslces contract and push food throu faster..............also you could also try seeing a natropath who may have some herbs etc that may help you.........i no how you feel i have had stomach issues for ages to........oh and take probiotics everyday incase some of your issues are form bacteria overgrowth (candida)  eat lots and lots of natural unsweeted palin yog that has lots of good bacteria.eat it every day this may help.............you couls also try taking yalkult as well.........
hope this helps
ness

beemer
New Member


Date Joined Jul 2008
Total Posts : 19
   Posted 11/20/2008 1:44 AM (GMT -6)   
oh and also try another PPI sometimes they stop working and most people respond to one sort of PPI better than others..its worth a try..............prevacid, losec, protonix etc there are a few to try......
ness
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