GERD after Gallbladder removal and ERCP

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Ailie
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Date Joined Dec 2008
Total Posts : 51
   Posted 12/10/2008 5:12 PM (GMT -6)   
I guess I'm just looking for some comfort. I had my gallbladder removed on October 28 along with emergency ERCP to removed stone in common duct. Well, ever since, I've had burning sensation floating thru my chest, sometimes in stomach, sometimes on my back. Never goes away. I've been on Pepcid (worked for a week), Prilosec, Prevacid - also sucralfate and reglan. Nothing helps! Losing my mind - it's like toothpaste or Vicks has exploded inside me. Drs seem fairly sympathetic, but I have to wait almost a week for my next appt. In the meantime I'm on Prevacid and reglan (doing nothing). Burning waxes and wanes at times, but mostly is pretty bad. I wake up with it, and it usually is very bad by evening - eating healthy, low-fat for the most part, not a ton of food. Anyone have similar problem? (I have no other complaints). mad

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 12/10/2008 6:12 PM (GMT -6)   

Welcome to HealingWell , 

I have found the support, validation and encouragement that I receive here, to be so helpful and healing. I hope and trust that will be your experience as a member of the HW family.

You have my emapthy re all the pain your in.  I do not have any ideas for what is causing it but I will be glad when you get to see you physician.

Gentle Hugs to you and stick with us.

Kitt



 

Kitt, Co-Moderator: Anxiety/Panic & Depression
&  Moderator GERD  Forums

*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources

Post Edited (stkitt) : 1/11/2009 3:06:01 PM (GMT-7)


Ailie
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 12/10/2008 8:01 PM (GMT -6)   
Thanks so much - I know everyone has a slightly different story, I just hope someone has had a similar experience and can give me some ideas on coping with this chronic condition.

JBT1234
Regular Member


Date Joined Oct 2008
Total Posts : 34
   Posted 12/11/2008 4:33 PM (GMT -6)   
Hi, I had my gallbladder out 14 yrs ago and just recently had an ERCP with exactly the same symptoms.  I feel like my chest is on fire no matter what I do I am on Nexium 2x a day and just had an scope with bipsy and showed that I have a hiatal Hernia.  I have also taken reglan helped a little but very its bad for you with the side effects etc.  They just put me on questran for bile reflux which he is calling non-acid reflux saying it is bile..  Now he also thinks heart which when I was in the hospital the end of Aug. they worked me up and found nothing wrong with my heart.  He said sometimes it could be a false negative.  Does this sound like you??

Ailie
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 12/11/2008 6:06 PM (GMT -6)   
Well I had ERCP at same time as gall bladder removal to removed impacted stone in common duct. Did you have a stone removed(i've heard they can form years after gb removal)? Or did you have the ERCP to find the reason for the heartburn? I don't think I have a hiatal hernia (don't know what that is) - could that be the cause of your pain? My burning sensation comes and goes to a degree (though never goes away), sometimes in chest, sometimes on back, in lower abdomen, etc. They want me to have heart checked too (just had EKG before surgery in october - even the nurse thought this was nuts!). I'm wondering if I have bile AND acid floating around in me. The drs don't have a clue - they've given me meds for both - nothing works. I will see dr again Monday.
I've been on reglan once a day for a few weeks - no side effects - maybe a bit drowsy - hope I don't get any!
Is the questran doing anything for you?

JBT1234
Regular Member


Date Joined Oct 2008
Total Posts : 34
   Posted 12/11/2008 7:29 PM (GMT -6)   
Hi, yes I did have stones in my common bile duct .  I went to the ER with severe chest and stomach pain and my GI doc told me to go  and the tests that they did showed that I had pancreatitis which was caused by the stone even after all thoses years with the gallbladder removal.   I seem to have never recoved from all of that since Aug. 2008.   They did all the heart studies and found nothing I am at my wits end too.  I am on a very low fat diet and try to eat very small meals.  I am not sure why I have this but with the new medicine that i will try tomorrow we will see if it helps.  If it does than maybe it is from BILE reflux and not acid since I am taking the nexium 2x daily.  The GI doc thinks that is what is it.  I can't wait to see if it works.

JBT1234
Regular Member


Date Joined Oct 2008
Total Posts : 34
   Posted 12/11/2008 7:32 PM (GMT -6)   
PS  I do think the Hiatal hernia is a big part of this pain but the doc doesn't.  I have read alot that they all have siginificant pain with it.  Just like ours.

Ailie
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 12/11/2008 7:45 PM (GMT -6)   

My gastro dr said it's not uncommon to have stones 10 years after gall bladder removal. So we never get rid of this misery I guess. I'm almost at the point where I think they missed a stone (s) - today I started having gnawing stomach ache - like I did before I had my gall bladder out!

Did you have the burning sensation before your ERCP or did it start after? I was told that because they are "mucking around" inside it kind of messes things up in our systems and takes a while to get back to normal. Supposedly the Previcid, etc. will "heal" it. I'm also starting to think hiatal hernias are common too, but I don't know what they can really do for it other than try different medications.

This is so hopeless - as the days go on I feel worse with more symptoms!


JBT1234
Regular Member


Date Joined Oct 2008
Total Posts : 34
   Posted 12/12/2008 2:27 PM (GMT -6)   
Hi, no I didn't have this type of chest pain.  My pain was more in my stomach and chest but now for the most part it is in my chest after I eat.  I just picked up the questran today and will try it tomorrow.  I will cross my fingers that this will work.  Of course today i am feeling pretty good who knows?  I think the end of Aug is long enough time to recoop. from ERCP I should be feeling fine.  After I had my glall bladder removed I had a very bad pancreatitis attack which lasted months I was really sick did they do pancreatic blood work on you??

Ailie
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 12/12/2008 4:05 PM (GMT -6)   
Yes they were at first afraid I would get pancreatitis, but I didn't. My liver enzymes were high for several weeks after - they kept checking them. Monday I go to the dr again and they take more blood. I'm at my wit's end. I keep getting worse - first it was mild warmness in chest now it's stronger in stomach, chest, sometimes even on my back - comes and goes a bit. Plus I'm getting more twinges of pain where my gallbladder was! I'm starting to think they left part of it?? And the awful gnawing stomach pains are back that I had before my surgery. When I talked to dr on phone the other day I asked him if he thought there were stones they missed and he didn't think so. I would hate to have another ERCP so soon - they do say a lot of people get pancreatis after. Did your symptoms get better at all after your surgery? You've been recovering two months longer than I have and at this point I feel I'm getting worse and not better. Did your "fire" keep getting worse?

KayPeng
New Member


Date Joined Dec 2008
Total Posts : 2
   Posted 12/13/2008 3:45 AM (GMT -6)   
My gall bladder was removed in 2002. I had ERCP in 2005 and suffered from GERD symptoms (daily pain and burn sensation in the chest/abdomen/gall bladder area) for about 7 months after ERCP. However, since 2006, I am glad to say that I am free of all GERD symptoms PROVIDED that I take one 20mg Omeprazole daily or nightly. My point is that you have to be patient. I panic when Omeprazole or Nexium couldn't get rid of my pain 1-2 months after ERCP. I stopped taking the medicines. I consulted more doctors, take alternative medicines (chinese herbs, supplement, aloe vera), but was not able to get rid of the painful symptoms. After about 5 mths or so, I decided to get back to Omeprazole, (having given up on alternative medicines cure), and add on the fact that my body had begun to adapt to the pain, I felt less pain. Eventually, after resumed taking Omeprazole for 1 month or so, I was free of any GERD related pain. I must add that if I stopped taking Omeprazole daily, the abdominal and chest pain will come back after 1-2 days.

Ailie
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 12/13/2008 8:05 AM (GMT -6)   
When you say Omeprazole - is that the technical name for Prevacid or Prilosec? I've been taking Prevacid for a few weeks now and just seem to be getting worse - the burning seems to be more noticeable in abdomen and upper back and also gnawing stomach pains have started. The dr wanted me to take it for 2 months along with reglan (which gives me a headache and makes me groggy). I am seeing dr in 2 days and he said to stay on both meds til then. I seriously thought of not taking the Prevacid this morning but after your post I will take it!
I was seriously starting to look into alternative treatments, because my dr said the Prevacid should be working by now! Please let me know which one worked best for you.
Thanks!

KayPeng
New Member


Date Joined Dec 2008
Total Posts : 2
   Posted 12/13/2008 8:50 PM (GMT -6)   
Hi

The medicine that I take are PPIs (Nexium and generic PPI - Omeprazole which is less costly - both work for me). The painful and burning symptoms will go away overtime, I learn that in GERD, I cannot rush it. Do take care.

JBT1234
Regular Member


Date Joined Oct 2008
Total Posts : 34
   Posted 12/13/2008 8:57 PM (GMT -6)   
Hi after reading the last post maybe we need to give things to calm down 7 mos or so.  Mine was Aug. 2008 and things are not quite as bad right now.  I am still taking the nexium 2x daily and very careful with what I eat...very low fat diet.  Maybe it takes longer to heal with the ERCP.  Maybe you need to change to nexium in stead of what you are currently taking.  Are you on a low fat diet?  Also, try to keep your meals very small and eat like 4 or 5 small meals a day...be sure to take your medicine on an empty stomach very important according to my doctor.  Let me know what is happening. 

Ailie
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 12/14/2008 12:36 PM (GMT -6)   
This is second time I've been recommended to take nexium. (The prevacid I've been on for 2 weeks doesn't seem to be doing much). I am seeing dr tomorrow and will beg for nexium if I have to :)
I am eating very low fat - small amounts of food several times a day. I will keep my fingers crossed on this one.

Ailie
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 12/15/2008 3:17 PM (GMT -6)   
Well believe it or not I'm feeling a bit better yesterday and today! So when I saw the dr. today he said stay on the Prevacid for a total of two months. (of course if the burning gets worse before that he will refer me back to my surgeon who he thinks should do some imaging/ultrasounds, etc.). The weird thing is when I started the Prevacid on Nov 20 I got a cold soon after - that lasted about a week. During that week the heartburn greatly subsided. Well now I have a "mini-cold" - and once again the heartburn has subsided. I told the dr. this and he didn't know what to make of it. Is there any connection between GERD and headcolds?? I'm afraid once any cold symptoms are gone the burning will be back 100% with a vengeance. He did not want me to try nexium right now, just finish out the prevacid. So because I'm not feeling terrible right now it doesn't matter to me. It's like my body is haywire! He said he is optimistic that all this crazy stuff is my body trying to settle down after the surgery/ERCP. I just don't know -

JBT1234
Regular Member


Date Joined Oct 2008
Total Posts : 34
   Posted 1/6/2009 1:02 PM (GMT -6)   
Hi, It has been a while and I was wondering how you were feeling.  My chest pain had gone for a while also and then I had a couple of glasses of wine big mistake since new years eve back to square one.  I hope it will clear up my dr. told me that it would be fine to have a couple of drinks??

cherryhillgirl


Ailie
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 1/6/2009 1:31 PM (GMT -6)   
Oh my goodness - a similar thing happened to me! I had about two weeks of the burning gone! Then gradually over that time I started eating more "bad" stuff - like candy and even some chocolate. On New Years Eve I had a few sips of champagne, but also ate a lot of food - and this had been pretty much what I did over several holiday parties. Well, late on New Years Day I felt the familiar burning starting in my abdomen and to make a long story short I am in total misery 5 days later! I am to take Prevacid until Jan 20th and I really can't call the dr until then (especially since I know I ate poorly). So now I'm dealing with burning in chest and gnawing stomach pain, burping - some of the symptoms are what I had before I had gallbladder out. I attributed my temporary recovering to drinking aloe vera juice - I have a brother-in-law who swears it cured his ulcer. Now I'm hardly eating anything - just broth and bland warm cereal. I've felt worse every day since the 1st, but this is the first day I'm really on top of it and strictly limiting my food. This is so awful - in some ways I'm glad to hear someone else is dealing with it too! redface

JBT1234
Regular Member


Date Joined Oct 2008
Total Posts : 34
   Posted 1/8/2009 9:03 AM (GMT -6)   
Hi, I can't believe this happened to you also.  I am so crazy with all of this.  I want to be able to eat and have a drink once in a while also>>I am hoping that this will calm down I haven't been the same since the 1st either.  Burping, horrible chest pain all the same as before.  I am back on a very strick low fat diet and no drinking at all and trust me I hardly drink at all to begin with.  I am going to a Cardiologist tomorrow and I am having him call the GI guy to see if this pain could be do to my Hiatus hernia  he never did say the extent of it although he did tell me that is was impressive what ever that may mean...I have been doing alot of reading about that too and they say they cause this type of pain too!  Also, I am going to raise the head of my bed 6" maybe this will help.  I keep reading about this and it makes sense to me. 

cherryhillgirl


Ailie
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 1/8/2009 10:35 AM (GMT -6)   
I haven't raised my bed yet - just using a bunch of pillows (I know this isn't the right thing to do). I am going to try to stick to small meals of lowfat food for an entire month (with no lapses, no alcohol, no chocolate, etc.) and see what happens. I ate EVERYTHING during the holidays. Today the burping has subsided and the gnawing pain - it usually lasts in it's "bad" phase around 2 days so I'm not surprised. The burning of course is still here - though not horrendous. I just can't believe I feel WORSE than before the gallbladder surgery/ERCP. I've had 3 "attacks" of trapped gas/constant burping/stomach pain since these procedures on 10/28 - each lasting 2 days, along with a varying degree of constant burning in chest/abdomen/back, etc. The amazing thing is that I was completely fine for over 10 days! No burning, no burping, etc. I hate to go back to the dr - they will probably suggest another ERCP or something investigative - equally as horrible which will make things even worse! We have to take charge of it ourselves. I am drinking aloe vera juice a couple of times a day and only drinking purified water. I'm wondering if I also have a hiatal hernia. What is the treatment for it?

JBT1234
Regular Member


Date Joined Oct 2008
Total Posts : 34
   Posted 1/8/2009 3:06 PM (GMT -6)   
Hi, I don't know what the treatment is for the hernia yet?  What kind of drink are you are talking about?  Never heard of that and what is it for?  I am also paying very close attention to my food and fat.  I may never have another glass of wine again.  This is no way to live.  Does it hurt when you eat or drink down in your chest or when you burp does it hurt your chest?  I actually mean when the food or liquid is going down does it hurt you? 

Ailie
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 1/8/2009 3:45 PM (GMT -6)   
Aloe vera juice is available at health food stores. The aloe vera gel is known for healing properties like burns etc, so I figured it might work on the inside too. It doesn't hurt for me to eat or drink while the food is going down. It's afterwards I either start tons of burping, or get gnawing pain, etc. Actually the burning subsides while I'm eating! (But comes back worse after I'm done). Burping doesn't hurt my chest, and my burning sensation moves around - sometimes in chest, sometimes in abdomen or even on my upper and lower back - it's as if liquid is flying around inside me that should be contained.
I've hardly eaten anything today - oatmeal (with no problems), a plain piece multi-grain toast, a few pretzels - burped a lot - even though there is no fat! My system is so screwed up = somedays I'm much better than others, but when it gets out of whack it takes several days to calm down. I dread calling dr. again, they have no idea what to do.

DEE6651
New Member


Date Joined Jan 2009
Total Posts : 14
   Posted 1/11/2009 3:42 PM (GMT -6)   
I have been reading all about the burning pain you are having. I also have some burning at the top of my chest into my throat. I feel like a dragon breathing fire. I had an ERCP 5 days ago, but I also had some of the burning for a couple of weeks before the procedure was done. I had my first ERCP in Dec. of '03 and then in Feb. '06 I had my gallbladder removed followed by an ERCP 2 days later. I did fine until March '08 when I again had stones form in my bile duct. Another ERCP. In July '08 I had an attack of stone pain that lasted 16 hours and I ended up in the hospital with an infection in the liver (duct was blocked by stones). It turned into sepis and I was very sick for a while. I then thought I was okay for a while, all of 5 1/2 months and again an ERCP and this time 3 more stones. I keep making stones. I just had a horrible attack of pain a few hours ago and I know the doctor said he got all the stones, but what could the pain be from now? Any ideas? I take Protonix every day to prevent reflux. I wonder if it has stopped working.

Ailie
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 1/11/2009 4:05 PM (GMT -6)   
Wow - I can't believe you keep making stones! That is my worst fear that they missed stones. Gallstones can cause acid reflux I've heard. I had a touch of it right before I had my gallbladder out/ERCP in october, but I didnt' know what it was. It's gotten much worse since the surgery - on Prevacid - don't think it's working well - though I felt better for a while. I'm actually calling my surgeon tomorrow (on recommendation of my PCP) for more imaging - possibly ultra sounds, etc. ERCP is an awful procedure - I can't believe you've had so many. Doesn't it increase your risk of pancreatitis each time? And how do they know you have stones? For instance in March 08 - did they do tests or ultra sounds first or just the ERCP not knowing what they will find? You couldn't possibly have more stones since your last ERCP 5 days ago! In fact, I'm amazed you have more stones in July - since you them removed in March! How fast can a body make stones?? Could they have missed them? The dr. that did my ERCP said he was confident there were no more stones, but I am now constantly burping - even with a bit of food - the past entire week, in addition to the burning abdomen/chest/throat. What are your stone symptoms??

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/11/2009 4:14 PM (GMT -6)   

You guys are doing a great job of sharing info here....... :-) .

The two types of gallstones are cholesterol stones and pigment stones.  Yes you can develop the stones in the common bile duct as youhave discovered.  I would keep an eye on my cholesterol levels too.

I am sorry you are having the pain but happy to hear you are working with your physicians.

Know I care and I am here to support you.

Gentle Hugs

Kitt


 

Kitt, Co-Moderator: Anxiety/Panic & Depression
&  Moderator GERD  Forums

*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources

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