Dysphasia two and a half years after Nissen

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opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 12/23/2008 8:59 PM (GMT -6)   
Hello,
I am wondering if anyone has had a Nissen redone due to dysphasia? I had my Nissen done 2 and 1/2 years ago and about a year ago things started to get stuck again. Not just meats, but also soft foods. I had an esophogram done the 1st of Oct. and the 12 mm tablet stuck at the junction for 20 minutes. My GI decided they needed to dilate the LES. I since have had it dilated 4 times, the last being on 12/22. They have used a 51, 54, and a57 dilator. They say there is only one larger one, but I still have food getting stuck.
A different surgeon believes the wrap could be too tight or overly scarred and my esophagus may also have shortened. I see him again tomorrow since the dilations didn't work. After a year and a half of good results it's really frustrating to deal with this now. Also, the GI Dr's found Barrett's now. What a bummer.
Anyhow, I was just wondering if anyone has had experience with a redo for this?

Thanks,
BIll

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 12/24/2008 9:00 AM (GMT -6)   

opnwhl4

Welcome to HealingWell.  I know some of the members have had redos and I am sure one will be along to help answer your question.
 
Due to today being Christmas Eve/Christmas Day tomorrow please be patient as I know many of the members are away or celebrating the holiday.
 
Again a Warm Welcome.
Kitt
 

Kitt, Co-Moderator: Anxiety/Panic & Depression
& GERD  Forums
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opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 12/24/2008 12:05 PM (GMT -6)   
Thanks for the welcome.
I saw the surgeon today and he wants me to go to the Mayo Clinic. He says my GI Dr. hasn't given him enough information for a good diagnosis. They just want to rely on 2 1/2 year old tests and keep dilating. So I guess I'm gonna go there and see what happens.

Bill

saddaze
Regular Member


Date Joined Dec 2008
Total Posts : 74
   Posted 12/28/2008 3:09 PM (GMT -6)   
hey bill

im sorry for all this crap youre going through! I swear, i cant remember the last time i laughed?

it looks as though im on my own beginning path of throat issues -- thanks to my new friend GERD !

Im suffering from such throat tightness and burning pain -- i wake up in the night with acid coming up my throat

i know im doing some damage in the espohogus -- but the weird thing is -- ive never to my knowledge been a gerd sufferer until recently ( seemingly coinciding with my gastritis) but i cant figure out if gastritis can bring on gerd??

anyway -- ive been trying to stave off prevacid by popping 1 in my mouth as opposed to 2x a day -- but ive got to save my throat first and worry about pneumonia and bone problems later(all problems with ppi) . -- really a crappy choice to make

bill how did your issues begin? did you just wake up one day with gerd and tried medicines and then surgery/

its a shame that its only been 2 yrs and youre back to this scenario? do you think it was a surgical problem and they made your les tighter than it should be> ? im glad you are pursuing the answer bravely - perhaps redoing the surgery would help? im just shooting in the dark here .. im really very new to all this... i hope to learn more about your outcome

peace with you

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 12/28/2008 6:25 PM (GMT -6)   
Saddaze,
I first noticed the "heartburn" probably about 18 years ago. I had a bad habit then (chewing tobacco) and thought that was the cause. Well I quit that habit Jan. 21st 1995 and the problem didn't go away. Then about June of 2000 I started to have food getting stuck and worse "heartburn". I talked with my family Dr. and he set me up with the GI Dr. Followed the normal regime of EGDs, dilations, etc. Finally after about 5 to 6 years of PPI's not working they decided to do a 48 hour PH study. They said mine was the highest they had ever seen and recommend I see a surgeon for a Nissen Fundoplication. I had some dysphagia prior to the surgery, but it would go away for about a year or so when they would dilate the stricture due to GERD. I never was diagnosed with Barrett's before surgery either. Anyhow, I decided to go ahead with surgery in June of '06, had 2 dilations within 2 months of surgery due to it being to tight. The radiologist that did the barium swallow the day after surgery told me it was "really tight". I asked the surgeon about that then and he told me he made it that way due to my very high acid numbers. After bout 3 months things weren't too bad. I had some trouble swallowing certain foods, but could manage with several drinks of water. November of '07 I went back to the GI's and told them I was having worse trouble swallowing and felt like the GERD was back, hadn't had to use PPI's since the surgery. So they did another PH study, Bravo this time. WOW, what an easier way to do it. Anyhow they said the acid levels were in the normal range, but they saw a stricture and dilated it. Things progressively got worse through the winter and spring to the point my stomach would hurt when ever I ate and the horrid taste was back from acid. Went back to see them again in June '08. Did another EGD. This time they found Barrett's, an unusual "Z line" and severe gastritis, and esophagitis. Had to start taking previcid twice a day again. Scheduled a barium swallow test again. This time they said I possibly had Achalasia, took 20 minutes for the 12mm tablet to pass into my stomach. Apparently it should pass in under a minute. So back for another EGD and dilating the wrap/ LES with a 51 dilator with no results. 2 months later they used a 54 dilator then a 57 dilator 2 weeks after that with no results for the dysphagia. That leaves me where i am today, waiting for my surgeon to get my insurance to OK me to go up to the Mayo Clinic in Minnesota.
Sorry this is so long, but sometimes it helps me to vent a little. It's been very frustrating year or so. When the doctors tell you that if the dilation doesn't work they don't know what to do. I, like many people, don't want to take the PPI's forever. And my GI Dr. said they don't want people taking them for a long time anymore due to liver problems. I actually have seen 2 different GI Dr.s in the last 2 months and they don't agree with each other what's wrong except to keep dilating.....I am done with that though. So, now I eat a roll of Rolaids and 2 Previcid solutabs every day.

Thanks for listening,
Bill

Post Edited (opnwhl4) : 12/29/2008 6:37:36 AM (GMT-7)


rsapooh
New Member


Date Joined Dec 2008
Total Posts : 8
   Posted 12/30/2008 10:50 AM (GMT -6)   
Has anyone had the Nissen procedure without having the esophageal manommetry test done first?

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 12/30/2008 5:41 PM (GMT -6)   
rsapooh,
That's an interesting question. I know my surgeon told me he wouldn't do the Nissen without it.

Bill
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