Scared but just want to know...

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so_sazzy
New Member


Date Joined Jan 2009
Total Posts : 4
   Posted 1/15/2009 2:05 PM (GMT -6)   
Hello,
 
Reading the forums here I didn't see anythign that related to my symptoms but I am scheduled to have the Bravo ph study done on Monday and am scared to death after reading some of your experiences.  I have had a constant clearing in my throat for past 3 years...and never really thought much of it...but then in April I started to experience a shortness of breath when working out (now mind you I work out 7 days a week...lift weights, run 4 miles a day...30-40 mile bike rides...hiking...rollerblading...you get the picture I am considered at an elite level for my endurance or was...I am 45 yr old female and trying to explain to dr. this shortness of breath is impossible...of course you will experience shortness of breath when you work out...ummm not like this...I know what it feels like when I have my heart rate at 165 or so...that is short of breath...not walking up a flight of steps...anyway...diagnosis...exercised induced asthma...inhalers...pills..nope...asthma...(by the way...no wheezing or any of the other typical symptoms) stronger inhaler, more pills..nope not asthma...really???  CAT scan, allergy testing...breathing tests...echo of my heart...stress test...mri of my lungs...no clots...last dr. told me I was in need of a good therapist because I was becoming a bit depressed that they can't figure out what is going on with me.  New pulmonologist sends me to have an upper GI with the nasty barium...finds out I have some sort of blockage or obstruction by the duodenum and it takes a very long time to digest my food.  I got really sick there because it wasn't digesting...but eventually it started to pass.  The dr. also was concerned because I apparently have alot of debris in my stomach...but he doesn't know why or what...but says I don't have acid reflux..so that brings us to Mon.  My dr. says he believes this is my problem of shortness of breath because whatever isn't digested in my stomach is being aspirated into my lungs?  Has anyone ever heard of this...or what this could be called? 

LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 1/15/2009 7:03 PM (GMT -6)   
So sazzy, I'd say you are lucky to have found a good pulmonary specialist; I had to go to Nat'l Jewish in Denver to get a good one.

First, lets discuss your Bravo. I have had two and had no problems; you're prepped for endoscopy, normally given a mix of versed and demerol, so no pain, no memory..life is good. They will check out the esophagus for any number of things and while there will insert a capsule into the wall of your esophagus. I can't say that it made much of an impression on me because I may or may not remember feeling it...so not a big deal. The capsule has a transmitter and it will electronically send signals to a little recording box you will wear on your belt (honestly, the whole wearing it around your neck really bothered me, so I wore it around my waist).

You will record information as instructed for a period of 48 hours, after which your recorded turns off and you return it to the Dr.'s office. In the meantime this capsule is hanging around taking up space in your esophagus and will let go and move through your system without you even knowing it.

Don't fear the test!

Your pulmonary symptoms; I was treated for years for different types of pulmonary issues, and while everyone agreed that the symptoms weren't exactly this or that, they didn't know what it was...trips to the pulmonary specialists in mid-Michigan were of zero value. Eventually I was sent to National Jewish; there they determined that the reflux (which I thought was a minor matter) may actually be a major player. They sent me for tests and holy cow, was it a big deal. The reflux was making me a pulmonary cripple; I was aspirating while sleeping (who knew) and by this time my lungs were very inflamed and my alveoli, fibrotic as are the very ends of the bronchiols.

The surgery I had in July (Nissen-Cleveland Clinic) probably saved me from a life connected to oxygen tanks. My lung function is amazingly wonderful, and while the damage I have is permanent, I can breathe, hike, walk up hills and stairs and walk miles on the treadmill. An amazing feat for someone who could hardly walk two blocks one year ago!

It sounds like you are on the right track; take the steps to find out what and when and why and how and go with it.

Good luck, don't fear, check in with us often to let us know how you're doing!
Janice

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/15/2009 7:17 PM (GMT -6)   

so_sazzy

Welcome to HealingWell and I am so glad Jane has answered your post.  I understand your fears and I feel you have every right to be afraid.

Stick with us and know we care.

Again a warm welcome

Kitt


 

Kitt, Co-Moderator: Anxiety/Panic & Depression
&  Moderator GERD  Forums

*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources


so_sazzy
New Member


Date Joined Jan 2009
Total Posts : 4
   Posted 1/15/2009 7:38 PM (GMT -6)   
Thank you LdyJane for replying so quickly and so informative.  I feel much comfort knowing there is somewhere I can discuss my issues without sounding like a debbie downer...but as you all know...not knowing is horrible...I just want to know what it is and how to deal with it.  I will let you know how my procedure goes.  By the way what type of surgery did you have?

so_sazzy
New Member


Date Joined Jan 2009
Total Posts : 4
   Posted 1/15/2009 7:40 PM (GMT -6)   
thanks for the warm welcome stkitt...this is an amazing forum...just a sigh of relieve that others know what I am talking about....

LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 1/15/2009 9:20 PM (GMT -6)   
A Nissen Fundoplication, so sazzy; many of us have had it with varying degrees of success; most people that I have spoken to are glad that they had it. It takes a lot of testing and verification to get to that point, but my life has been given back to me with this surgery.

Lets take this one step at a time (one test at a time!) and see what they come up with, but you are with friends!. They've gotten me through the fear, the unknown and helping me with the hurdles. Kitt is the best; a strong shoulder, a wise, wise, women and a friend!
Janice

acscr9
Regular Member


Date Joined Jan 2009
Total Posts : 55
   Posted 1/16/2009 9:44 AM (GMT -6)   
Sazzy,

Of all of the tests I had done to "prove" I had reflux, this was easiest. LadyJanes' post explained it great! The device I wore was a bit bigger than a pager and I had to push one of three buttons when feeling "pain." It is pretty cool how they calculate the reflux and tell you just how bad yours is in comparison to a "normal" person. It was a pretty reassuring test for me. Also, it will definately help to rule out reflux if you don't indeed have it.

I also had the Nissen-Fundoplication and it was the best decision I have ever made! :-D We are all here to help!

Good Luck Monday! You won't remember a thing! ;)

Aimee
24. Diagnosed with Fibro in Aug. 08 and Seasonal Affectiveness Disorder in December 08. Gluten free since Nov. 08.
 
Surgeries: Compartment Syndrome/Medial Tibial Stress Syndrome Dec. 05; Lap Nissen Fundoplacation Aug 06; Exploratory Lap Feb. 08.
 
Played college soccer. Going back to school to be a Registered Dietitian.
 
"I control the disease, it does not control me."


so_sazzy
New Member


Date Joined Jan 2009
Total Posts : 4
   Posted 1/16/2009 4:03 PM (GMT -6)   
Aimee,

I so appreciate the feedback and experiences that you have shared. I am hopeful that Monday is the first step in finally diagnosing my problem and once I know what it is....I will kick it's butt~

Will let you know how I do...

Thanks again~
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