Ill for 2 and half years

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oggy22
Regular Member


Date Joined Jan 2009
Total Posts : 23
   Posted 1/20/2009 6:19 PM (GMT -6)   
Hello
 
My name is Paul, I am 22 years old and have been suffering from medical problems for the last 2 and a half years! Before my problems started I was in perfect health, went to the gym atleast 3 times a week and played 5 a side football and had a manual job.
 
It all started in september 2006 when I went to University, it was freshers week and had drank alot all week. I woke up on the Friday of that week feeling very unwell but put it down to a bad hangover and put my feet up. The feeling did not pass that weekend and carried on so I thought maybe flu or a virus? My symptoms were feeling sick, genrally run down, a swollen throat with white pathes at the back, loss of appatite and stomach pain and then within 2 weeks of initial symptoms I had a discharge from my penis which was a thick white colour and it hurt to urinate etc.
 
At this point I decided to go to the doctors who said go the the GUM clinic. I went and they said I had NSU so I took the antibiotics they gave me. Within days I felt 100% better and discharge had gone. However within 2 days of stopping the treatment, my symptoms came back. Since then I have taken numerous amouts of antibiotics but now seem to make things worse. I have been back to the docs more times than I can remember and have seen numerous specialists and had every test under the sum done! Been to the GUM clinic 10 times and only 7 of those times have said its NSU but never pinpointed anything.
 
Over time, other symptoms have developed such as constant phlegm at back of throat, pain in left side of chest and aches and pains down my left arm and left leg. Still got nausea problems which are worse in the morning
 
My pathetic doctor thinks that it is chronic fatigue syndrome even tho I have never read anything about someone with this constantly having discharge problems for no apparent reason
 
Tests I have had done are:-
 
Endescopy
Camera in colon
Camera down penis
barium meal
Numerous x rays
scan of kidneys
 
My eyes hurt when run down which is basically all the time. I feel depressed by it all, working for a day or being in uni all day really takes it out of me and my throat swells up again and I feel like I have a virus all the time!
 
 
Any advice by anyone would be much appreciated. GERD, Chronhs have also been mentioned

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 1/21/2009 4:16 AM (GMT -6)   
Ask them to refer you to a teaching hospital. Why? They are the best of best..they have more equipment, more tests, more staffing, better training. You can suggest you want a MRI and CAT scans of entire body. Look for any abnormalities, like inflamation. I had extreme naseau when I was diagnosed with an autoimmune disease. Also request a full panel blood work. Sounds like your me, but with something else. The "Rare" patient who cant be diagnosed...how I got diagnosed was i got send to a teaching hospital, and i did a few things, then had a biopsy done. The biopsy told answers :S
 
Smurfy Shadow
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux
 
Medications: Imuran, Prednisone, Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D


stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/21/2009 1:47 PM (GMT -6)   

Smurfy is right on, try a teaching hospital.  One of the well known ones would serve you well in finding out what is going on with you.

If you do not have a trust relationship with your physician I would recommend you find a physician that you bond with and be sure to be your own best advocate.

Hope you get a dx soon.

Sincerely
Kitt


oggy22
Regular Member


Date Joined Jan 2009
Total Posts : 23
   Posted 1/21/2009 6:49 PM (GMT -6)   
What are these teaching hospitals? I have never seen one? Are they just in America? I like in England?

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 1/22/2009 2:45 AM (GMT -6)   
Oggy a teaching hospital is exactly what it is. its where interns are, etc. Where they learn. There are teaching hospitals world wide.
 
Smurfy Shadow
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux
 
Medications: Imuran, Prednisone, Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D


stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/22/2009 10:28 AM (GMT -6)   

Mr Grinch posted today at 9:14 for Ill fo 2 and half years.

Teaching hospitals are those hospitals that teach young students to become doctors... so they tend to see the sickest of patients and have the most specialized physicians working there to give the students best expose to the most complex cases.  Usually though you can't just walk into a teaching hospital and ask to see a specialist... your family physician will need to refer you based on what he/she thinks the problem is.

 
My advice:  Find another primary care physician who can be your primary care physician.  When you schedule your first visit tell the receptionist that you want to start by having a complete physical so you can start fresh with the new doctor.  In knowing this they will scheudle a longer appointment time for you.  He'she will take your history and do a physical assessment.  He/she will probably do a wide range of standard blood tests... white blood count, red blood count, platelets, Cr, Na, K, lipids, liver enzymes, cholesterol, etc.  They will also probably do a urinalysis to measure creatinine or eGFR (kidney function) as well as blood or proitein in the urine.  They may also send you to the hospital for a chest X-ray and an EKG to measure your heart function.  You are kind of young, but being male they may also do fecal occult which measures possible blood in the stool.
 
This is a good start if you can get this done!  These are all standard complete physical tests... from there they will detect any anomalies and refer you to the right specialists based on the results.
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