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cybernette123
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 2/6/2009 4:24 AM (GMT -6)   
Hi

I have been on a PPI for GERD for about 10 months. My symptoms were gone so I quit taking it cold turkey last Friday. Since then, no matter what I eat, I have terrible bloating and intestinal gas right after eating. It goes away 3 or 4 hours later after taking GASX. Anyone else have this problem? Should I maybe taper off instead by using Zantac? Zantac always gives me headaches. Any suggestions?

Jan

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/6/2009 7:18 AM (GMT -6)   

Jan,

Good Morning and Welcome to the GERD forum.  If you were taking a PPI under your physician's care I would suggest you discuss the tapering off of your medication with him. 

Going cold turkey on meds is not always the best way. Tapering is frequently recommended.

Again Welcome to HealingWell.

Kitt


 

Kitt, Co-Moderator: Anxiety/Panic & Depression
&  Moderator GERD  Forums

*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources


Precious
Regular Member


Date Joined Mar 2006
Total Posts : 151
   Posted 2/6/2009 8:31 PM (GMT -6)   
Yeah quitting cold turkey is bad! I did it! I don't recommend it. I would decrease ur dosage and keep on it for weeks and occasionally take Zantac as needed. Keep decreasing it until u just have Zantac. Anyway let your GI doctor know.

You can try Pepcid, Tagamet and Axid, ask ur doc.

What you're having now is acid rebound, all of a sudden the dam that kept the water in is no longer there and there you have it. I would go back to your meds if it was me and then taper down. It may take like 2-4 months, see how it goes.

Hope you feel better soon!

Precious

cybernette123
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 2/7/2009 4:48 AM (GMT -6)   
Thanks for the advice. I'm determined to quit the PPI on my own because I'm sick of doctors. Since Zantac always gives me headaches, I think I'll try the Pepcid. I didn't realize it would take that long to get off them. It's funny that my symptoms are now all in the lower abdomen rather that the chest and esophagus.

Jan

mary Love
Regular Member


Date Joined Sep 2008
Total Posts : 64
   Posted 2/7/2009 12:20 PM (GMT -6)   
CurlyGirly said...
Thanks for the advice. I'm determined to quit the PPI on my own because I'm sick of doctors. Since Zantac always gives me headaches, I think I'll try the Pepcid. I didn't realize it would take that long to get off them. It's funny that my symptoms are now all in the lower abdomen rather that the chest and esophagus.

Jan
I went off mine cold turkey, as they were making me so sick.  Then I used the Braggs acv, 2 teaspoons plus one teaspoon of honey in warm water after each meal.  I did this for two months and now I am taking nothing, not even the Br acv, and occasionaly a few rolaids.  I do however watch what I eat.  Lately tho, I have been branching out and all seems fine.
 
Good luck CurlyGirly :-)

Precious
Regular Member


Date Joined Mar 2006
Total Posts : 151
   Posted 2/7/2009 3:33 PM (GMT -6)   
I also read somewhere to be careful of Pepcid bec. it causes kidney stones in some. I have to look for that info but we're not allowed to post other websites here.

I tried that Braggs AVC, it was so terrible, at least that's my experience with it. I felt like my stomach adn my throat was on fire. I watch what I eat, no carbonated drinks and caffeine, nothing with tomatoes or tomato sauce. I use DGL and that works for me.

Hope u feel better soon!

Perksie
Regular Member


Date Joined Jan 2009
Total Posts : 51
   Posted 2/10/2009 5:36 AM (GMT -6)   
ACV won't help if your stomach is producing too much acid. If your stomach isn't producing enough, then ACV is gold.

cybernette123
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 2/10/2009 6:11 AM (GMT -6)   
Hi

I'm going to see my doctor this afternoon. I'm sick of trying to figure this out. I think the GERD symptoms are slowly coming back (that lump in the throat feeling). I just want to feel better. I also somehow injured my sacroiliac joint on Sunday and have been taking IBU for that which is killing my stomach.

I'll let you know what happens.

Jan

cutiecally84
New Member


Date Joined Feb 2009
Total Posts : 12
   Posted 2/10/2009 11:42 AM (GMT -6)   
You are going through rebound hypersecretion which does get better. People are right, stopping abruptly isn't the best answer. Talk to your doctor about tapering. The rebound is going to happen even coming off of the smallest PPI dose. It's your body's way of readjusting.

I have been off of Prilosec for almost 4 months and am not healed fully but almost there. I actually wanted to share something because when I was on the generic of Prilosec.. I never got a list of side effects like the one I'm about to share. There was never a list in my boxes. I actually had symptoms of overdose and instead of being taken off of the pills I was put on even more.

Most people who deal with GERD have to ask themselves what creates it in the first place. Most doctors do not acknowledge the rebound effect because most of us (not all) do not need the pills in the first place. They in fact, never used to be OTC. It's up to us to speak with our physicians and improve our lifestlyes maybe before trying such a serious medication. Good Luck and don't leave your doctor out of the loop! I learned the hard way by cold turkeying the medicine!


Symptoms were (these can be considered overdose)

* confusion
* drowsiness
* blurred vision
* fast or pounding heartbeat
* nausea
* vomiting
* sweating
* flushing (feeling of warmth)
* full feeling in my head
* dry mouth, very thirsty

I also experienced:

* constipation
* dizziness
* tooth and gum decay and pain
* left upper back/shoulder pain
* severe stomach cramps
* rash
* itching all over my body, mainly chest and arms
* my feet and ankles were swollen
* difficulty breathing
* muscle spasms,
* tingling in my face, lips, and limbs

mtjbob
New Member


Date Joined Nov 2008
Total Posts : 15
   Posted 2/13/2009 11:34 AM (GMT -6)   

CurlyGirly I pop out my sacro every spring when I start driving my my old sports car. I have a tough time getting in and out. I go to a chiropracter one time and get instant relief. I go in in pain, and I come out good as new. If you had a disc problem I might not advise it, but the sacro is so easy to manipulate.

Have you had a gastroscopy? If so, did it show damge to your esophagus? If not, then there may be other ways to control or eliminate your discomfort. Check out my lastest thread. I am now 3 months ppi free.


SecPro
New Member


Date Joined Apr 2009
Total Posts : 1
   Posted 4/22/2009 1:03 PM (GMT -6)   

 

 I am glad to have found this forum. I was prescribed 40 mg (once a day) of Nexium on 3/10/2009 (acid reflux- symptoms mistaken for cardiac issue). After 4 days of being on the medication I began to develop stomach issues. After two weeks, I began to feel very sick (severe ab pain, loose BM, loss of appetite-lost 10 pounds in 2 weeks, muscle and hip pain, dizziness, and severe anxiety). Doctor stated that I must have a viral infection (after blood, urine, and flu test came back negative) and I should allow it to run its course. After the 2nd week of feeling sick, I figured out that the symptoms began when I started the Nexium.

I stopped cold turkey on 4/9/2009 (following doctor's advice) and have just started to feel better. However, I am experiencing rebound symptoms (headache, cramping, muscle and back aches, etc). My stomach has started to get back to normal, but I continue to have cramping and gas when I wake up in the morning. My appetite has returned and I have started to feel "normal" again. I should have considered reducing the dose and weening myself off slowly, but I feel that this medication has poisoned my system.   

I did see a GI who did agree that the Nexium was probably the cause of the stomach issues, but disagrees with the muscle pain. I was given Aciphex in lieu of Nexium (told that the side effects were not as severe) but refused to take another PPI.

I have an endoscopy scheduled for tomorrow morning. I plan on trying more natural remedies and controlling the symptoms through diet.                  


colabear2890
Regular Member


Date Joined Nov 2008
Total Posts : 103
   Posted 4/22/2009 5:32 PM (GMT -6)   
be careful. just quiting prevacid wasn't that fun. im back on it now, and my doctor told me to just stop it to try a different med ( i was also on a high dose). it wasn't so much fun for a week. im sure its worse if you're not taking anything for your reflux

good luck with it!!!

-Aliza
"never regret something that made you smile"


LittlePeanut
Regular Member


Date Joined Oct 2008
Total Posts : 81
   Posted 4/28/2009 1:57 PM (GMT -6)   

CurlyGirl:

Quitting cold turkey is not the way to go. I did it and it was the worst month of my life. Talk to your doctor and work out a plan for getting off the PPI. They were the ones that put you on that treatment to begin with. What is infuriating is that they just might tell you that you have to be on them for life. Not the answer that any of us want to hear. I can tell you that things will get better but just as you have heard from other members the ride is rough. It takes alot on your part you have to change the way you eat and eliminate any of the trigger foods. These are the same foods that used to give you the heartburn maybe years ago but you payed no mind to it because it was only occasional. Look at the amount of stress in your life any things that may have caused the stomach issues to begin with. Eat in moderation exercise take up a hobby on other words occupy your mind and get it off your stomach. Its going to take some time but the mind is an amazing thing if you really want to get better you can.

 

Good Luck

 

LittlePeanut


stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/29/2009 6:51 PM (GMT -6)   
Wondering how your scope went?  I have never had one so I guess I am lucky.
 
I take my Priolsec daily and most of the time I do well.  I was on Priolosec twice daily for awhile but dropped back down to daily.
 
I will add here that I just weaned off of one of the SSNI antidepressants and that was a tough one even though I went very slow. So do be careful going cold turkey if you choose to go off of any med.
 
Knowledge is  power.
 
Gentle Hugs to all,
Kitt
 

Kitt, Co-Moderator:
Anxiety/Panic 
Co-Moderator Depression
  Forums
Moderator: GERD/Heartburn
*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources


bokbok
Regular Member


Date Joined Aug 2007
Total Posts : 67
   Posted 4/30/2009 4:06 PM (GMT -6)   
hi i,m ten days in off ppi,s after 4 years and i not been getting heartburn but feeling sick and bloated and have a sick bile taste in my mouth its really hard to get relief with out going back on ppi,s my doctors it does not matter that i taken it so long and she did not appreciate that i said i dont no anybody who come off ppi,s .
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