Nissan Fundoplication Complications-Gerd-Hiatal Hernia-Celiac-Dumping Syndrome-Cyclic Vomiting Syndr

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hesuffers
New Member


Date Joined Mar 2009
Total Posts : 2
   Posted 3/22/2009 7:15 PM (GMT -6)   

Nissan Fundoplication Complications-Gerd-Hiatal Hernia-Celiac-Dumping Syndrome-Cyclic Vomiting Syndrome

 

No surgery is safe. Surgery may be successful, but that doesn't make it safe.

 

My husband had this laparoscopic surgery in 1999 and continued to have all manner of complications, belching, hiccups, nausea, vomiting, acid reflux, pain, cramping, bowel problems, difficulty swallowing and breathing, chronic pain and fatigue, and diminishing "happiness". The surgery had to be redone open (he now has a foot long scar on his abdomen) in 2006. Apparently, a step in the procedure was not correctly the first time and his stomach had herniated through his diaphragm.

 

He has continued to have complications since the second surgery. Everything listed above as well as having developed Dumping Syndrome, Gluten intolerance, and an inability to each much more than pureed foods. He has not been able to work since 2005 due to these problems. He has not been able to attend college. He has had to place his life on hold.

 

Oh, and all the meds designed to treat symptoms like nausea or cramping tend to cause depression or anxiety. And all the meds to treat the pain cause nausea and vomiting.

 

He is currently hospitalized for uncontrollable vomiting. His pain is unbearable. He has been hospitalized for a week unable to tolerate anything besides clear liquids. He has been seen by nine GI specialists since 1998. He has had more than a dozen endoscopies, as well as multiple barium studies, cat scans, MRIs, motility studies, and an untold number of simple x-rays. His doctor is sending him to UCSF as soon as we can transfer him, so that they can test for nerve damage, external GI scaring and administer a “smart pill” to gather information and endoscopy cannot see.

 

This man did everything the doc ordered. He quit smoking and drinking. He eats a diet far healthier than most people could image. He is fit and works out to the best of his ability considering his constant stomach complications.

 

No one can tell us what is wrong with him. His primary doctor and I both suspect he has vagus nerve damage.

 

Please to anyone considering this surgery, pursue all other options. Spend more time on this internet looking into dietary treatments (preferred treatment for gerd, just requires dietary vigilance, which will be required post-surgery anyway), manipulative therapies (now the preferred treatment for hiatal hernia according to National Institute for Health and Mayo Clinic), and herbal medicines. This gentleman has found greater relief from herbal teas and probiotics than from many medications. Oh, because of course, medications cause stomach upset.

 

Spend more time looking into the complications that may result. Look into vagus nerve damage, look into gastoeparisis. Look at your cancer risk. Because even if they may be rare, you will not want to be one of the rare ones. 10% of patient who have some type of fundoplication end up with vagus nerve damage.

 

I would wish this agony not upon mine enemy. Is agony safe?


stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/23/2009 10:28 AM (GMT -6)   

hesuffers,

Welcome to HealingWell and the GERD/Heartburn Forum.

Thank you for sharing your story.  I did delete one of your posts as it was a duplicate of this post. We ask that people do not post duplicate posts as it takes up a lot of bandwidth and is not necessary.

Thank you and again welcome.

Kitt


 

Kitt, Co-Moderator: Anxiety/Panic & Depression
&  Moderator GERD  Forums

*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources


outtllaw
Regular Member


Date Joined Aug 2007
Total Posts : 69
   Posted 3/23/2009 3:01 PM (GMT -6)   
Hesuffers I know that I cant begin to imagine what you and your Husband is going through right now, but your story is a bit vague. You didnt mention what were his main symptoms prior to surgery, or if he had responded to PPI or H2Blockers treatment, and u also didnt mention which test he had done prior to surgery. As you said, no surgery is perfect especially this one. Before anyone have this surgery done they should do some research. And make sure that they are the right candidate for this procedure. yeah I will keep you and your family in my prayers.

Nancy S Estes
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/11/2009 11:59 AM (GMT -6)   
I have had two fundoplication surgerys in the past 7 years. I have had nothing but problems with it. Pain in my throat and vomiting back up every thing and any thing. I can not eat solid foods since my last surgery. I have lived this way for the past 2 years. Last month I had to be taken out of work because the pain in my chest is unreal. The pain is going up into the sides of my neck. They did a stress test and a nuckler test and it was not my heart. I can not lift or lug on my job becase it causes so much pain. I was told by the surgen that did it that every thing was OK. Well it is not. The gastro doc here where I live did a scope and said you have some problems in there. I am sending you to have a G.I. motility test done. They did the test and find out there is sever problems in my esophagus. And that there is little to no preasure where the wrap had been done. This is the feeling of my soft food stacking. Soft foods, liquids. I live on carnation instant breakfast drinks. And some times they do not want to go down. I have to sleep sitting up in a chair. Most days I just don't try to eat. It is not worth it. I am hoping that the new doc will be able to help me. If not I am told that this is just some thing I will have for the rest of my life. I was also told that this motility test should be done first before the Fundoplication surgery to see if there are any problems with the esophagus. I was never given this test. It would have saved me alot of pain and suffering if they had. There are a lot of us out there going through the same thing because of this surgery. This is all needless if these test are done first. I tell every one not to have this surgery done. nono

beareilly
Veteran Member


Date Joined Mar 2009
Total Posts : 553
   Posted 5/11/2009 1:27 PM (GMT -6)   
Hi,
I had this surgery last week and my quality of life has signifacantly improved. I had a great surgeon who explained I had no options.This was true. I had a classic wrap according to the surgeons.I am blessed that the surgeon who performed my surgery did well over 1000 of the. You r in my prayers.good luck
Bea

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 5/11/2009 5:31 PM (GMT -6)   
I'm very sorry to hear your husband's (outlaw) and your (Nancy) post surgery problems. Your stories are like the ones I read all over the Internet while I was making the decision to have the Nissen Fundoplication surgery. Stories like these kept me from moving forward with the surgery.

I have had severe, uncontrolled asthma for at least four years, having been hospitalized for GERD/Gastritis, which caused life threatening asthma. I coughed constantly, and had to do nebulizer treatments at least twice a day for a couple of years.

My doctors wanted me to have the surgery for a long time, and I researched it thoroughly. I finally decided to have the surgery on February 27th of this year. I carefully selected my surgeon, after talking to many people, and have been extremely happy with the results of my surgery.

The recovery was very easy, and I have had no problems with eating. Obviously, I'm still in the healing process, but I was very pleasantly surprised.

To all those people reading scary, upsetting posts...be aware that for every unfortunate result, there are many, many very successful surgeries. People who are likely to search out websites like these and others, are more likely to do so because they are experiencing problems. That's why it's important for those of us who have had positive, happy results to post their experiences.

Again, I'm very sorry that you have had these problem, and I understand that you are upset.
However, you should know that many people have found relief and an increased quality of life after this surgery.
I would definitely RECOMMEND the surgery, and was very pleasantly surprised with the recovery, as I had read so many horror stories.
Best wishes to all.
Denise

beareilly
Veteran Member


Date Joined Mar 2009
Total Posts : 553
   Posted 5/11/2009 9:20 PM (GMT -6)   
I second that emotion Denise

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 5/11/2009 11:30 PM (GMT -6)   
+2 for Denises motion!

Bill

beareilly
Veteran Member


Date Joined Mar 2009
Total Posts : 553
   Posted 5/12/2009 8:59 AM (GMT -6)   
and thank smokey robinson too lol.
But seriously, I am sorry for the pain and suffering anyone is going thru for a failed fundoplication. I am just wondering if you checked out your suregeons skills and history b4 allowing him to have u under the gun.
Take care
b

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 5/12/2009 4:52 PM (GMT -6)   
 
Welcome to HealingWell and the members have spoken wisely.  I suspect like with every disease that the people who are doing fine and have had successful surgeries don't always take the time to post on the internet how well they are doing as they are out there living their lives.
 
It is often the bad outcomes that people post or are upset about that are posted in cyber space.
 
I am so sorry your husband did not do well but I do feel that members need to look at the good outcomes, their own situation and have a trust relationship with their physicians and then make their own  choices.
 
Thank you for sharing but all or never are not words in my vocabulary. 
 
I wish you the very best Nancy, and I am not belittling your husband's poor outcome at all.
 
Sincerely
Kitt

 

Kitt, Co-Moderator:
Anxiety/Panic 
Co-Moderator Depression
  Forums
Moderator: GERD/Heartburn
*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources

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