SEVERE BURPING....LIFE'S TERRIBLE

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Ved
New Member


Date Joined May 2009
Total Posts : 9
   Posted 5/16/2009 7:57 AM (GMT -6)   
 
Hi everybody
 
 
This is my first write-up in this forum. I have been diagnosed with GERD. I've been suffering from it for the past seven years. All medication has failed. I hav all the symptoms of GERD, but the most frustrating one is excessiv BURPING. When the burps rise,there's a burning sensation in the chest/esophagus, as if hot air is moving somewhere inside. Sumtimes a sour fluid(acid?) comes up to my mouth during burping. I am REALLY TIRED AND FRUSTRATED. I really don't know what to do. I want to undergo the best surgery invented till date to get rid of this suffering. Sumone plz. share your views/similar symptoms with me. That will at least lighten my heart, if not cure my disease.

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 5/16/2009 8:10 AM (GMT -6)   
What did your doctor say about this when they diagnosed you?

Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
 
06/25/08 - Da Vinci robotic laparoscopy
Catheter in for five weeks.
Dry after 3 months.
 
10/03/08 - 1st Quarter PSA -> less then .01
01/16/09 - 2nd Quarter PSA -> less then .01
xx/xx/xx   - 3rd Quater skipped
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.
 


Ved
New Member


Date Joined May 2009
Total Posts : 9
   Posted 5/16/2009 8:31 AM (GMT -6)   
The docs just listened to me listlessly, and started scribbling their prescriptions. None of them spoke about surgery. One doc told me its too early for surgery. I've been experimenting with different medicines prescribed by different docs, but I've never had any long-term relief. I think I won't get permanent relief unless I undergo surgery. Plz. suggest me the best surgery for GERD available on this planet !

Prevacid and Prilosec aren't available in my city (Kolkata, India). Can sumone suggest other PPIs(Protein Pump Inhibitors) besides these(but as good as these)?

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 5/16/2009 10:52 AM (GMT -6)   
Ved,
Sorry you are having such a hard time. As far as surgery goes, Check out Dencha's posts. She had some really well written post surgery posts. I have taken Prilosec, Prevacid and Nexium in the past. The surgery isn't perfect, but if you go through all the recommended tests and are deemed a good candidate it can be a life saver. Not everyone responds the same to it though. I have had the Nissen Fundo done already and go in Monday for a possible redo of that. I have heard of several trials in work, but don't have any first hand experience with them.

Take care,
Bill

Ved
New Member


Date Joined May 2009
Total Posts : 9
   Posted 5/16/2009 11:24 AM (GMT -6)   
turn   turn
Thanx a lot Bill. I'll definitely check out Dencha's posts. This forum is great !

notbruce
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/16/2009 9:16 PM (GMT -6)   

Gday Groovers
I had a partial wrap 18 months ago.
Prier to the op I had really bad reflux and burping, could not eat much, losing weight, bed jacked up so high at the head I was sliding out of bed, burning and massive chest pain.
Since the op, no reflux. A lot of chest pain with gas and bloating, it slowly goes away, about a year.  Still have a bit of a gas problem.
The biggest mistake I was making was to eat and drink to much. For the first month or two eat a cup of food at a time, no gassy food or fissy drinks.
Over time you can eat more and more, you will learn.
If i over eat ( being a glutern) and drink before going to bed I can still get massive chest pain, same as before the op, not shore what is causing this. Get out of bed and stand for 3 hours untill it gose away.
I would do the op again tomorrow.
Russ
:-)  


Ved
New Member


Date Joined May 2009
Total Posts : 9
   Posted 5/16/2009 10:23 PM (GMT -6)   
Thanx Russ. Now i get the clear picutre. turn

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 5/17/2009 8:14 AM (GMT -6)   
Hi Ved,
I was reading your post, and your plea for help. The laproscopic Nissen Fundoplication is considered the best surgical choice at this time. There are some new procedures that haven't been around long enough to prove their real efficacy.

I had a hard time making the decision to have the surgery, because if you check out many of the posts on the internet, they are very negative and hysterical--warning against the surgery.

I had the surgery because of the GERD's effect on my asthma. The constant reflux was inflaming my lungs and making my asthma intolerable. The doctors couldn't fix the problem, so they kept nudging me towards the surgery. I finally broke down and decided that I needed to take the chance and see if it would help me. Actually, this forum helped me with the decision. Many people have had the procedure, and even when it didn't go perfectly, and had to have the wrap redone, they were happy to do it, since they were so pleased with the improvement of their quality of life after the procedure. Reading their posts gave me the courage I needed to move forward.

If you go way back (my surgery was on February 27th of this year) in the posts, you will be able to read my posts that document my pre and post surgical experiences.

I wish you lots of luck with your decision. If you decide on the surgery, make sure you research your surgeon. You'll want someone who has lots of experience with the procedure. That's really important.
Hope you find an answer to your problem soon.
Seven years is too long to suffer that much!
Good luck to you.
Denise

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 5/17/2009 8:43 AM (GMT -6)   

Helo Ved,

I am wondering  if you have had any testing done as you say the docs just listen to you and toss out meds.

If your symptoms are particularly severe or don't respond to treatment, you may need to undergo other tests to check for GERD and other conditions.

Endoscopy. A more direct test for diagnosing the cause of heartburn is esophagogastroduodenoscopy (EGD). In this test your doctor inserts a thin, flexible tube equipped with a light and camera (endoscope) down your throat. The endoscope allows your doctor to see if you have an ulcerated or inflamed esophagus (esophagitis) or stomach (gastritis). It can also reveal a peptic ulcer. During an EGD, your doctor can take tissue samples to test for Barrett's esophagus — a condition in which precancerous changes occur in cells in your esophagus — or esophageal cancer, two potential complications of severe heartburn. Your doctor also may take biopsies of the stomach that may reveal the presence of a bacterium that may cause peptic ulcers. Some of the reasons you may need an endoscopy are if medications aren't working for you, you have had GERD symptoms for a long time, you experience difficulty swallowing, weight loss, regurgitation of blood or black material, or your doctor is not sure whether you have GERD. Although endoscopy results often appear normal despite GERD, sometimes endoscopy can reveal inflammation, stricture, Barrett's esophagus or cancer.

Ambulatory acid (pH) probe tests. These tests use an acid-measuring (pH) probe to identify when, and for how long, stomach acid regurgitates into your esophagus. This information can help your doctor determine how best to treat your condition. In the standard tube test, a nurse or technician sprays your throat with a numbing medication while you're seated. Then a thin, flexible tube (catheter) is threaded through your nose into your esophagus to insert the probe. The probe is positioned just above the lower esophageal sphincter. A second probe may be placed in your upper esophagus. Attached to the other end of the catheter is a small computer that you wear around your waist or with a strap over your shoulder during the test. It records acid measurements. After the probe is in place, you go about your business and then come back one or two days later to have the device removed. Another ambulatory test called a Bravo pH probe may be more comfortable than the standard test, because it eliminates the need for a tube in your nose. In the Bravo test, the probe is attached to the lower portion of your esophagus during endoscopy. The probe transmits a signal to a small computer that you wear around your waist for about two days, and then the probe falls off to be passed in your stool. Another benefit of the Bravo test is that you can shower and sleep more comfortably than with the standard test. Generally, if you have symptoms of GERD your doctor will likely first treat you with medication. If the medication doesn't work or you have side effects and can't tolerate it, your doctor may order an ambulatory acid (pH) probe test.

Esophageal impedance. Rather than measuring acid, this test can measure whether gas or liquids reflux back into your esophagus. It's helpful for people who have regurgitation or reflux of materials in the esophagus that aren't acidic and wouldn't be detected by a pH probe. The test works by placing a catheter through your nose and into your esophagus, similar to a standard pH probe tube test. However, because the test is new, its role in helping people with GERD hasn't been clearly defined.

I know our members that have gone through surgery have had testing done before surgery is considered.

I hope you find a good GI physician that will start to take your symptoms seriously and do some testing.

Take care and please do read the threads by dencha as the informations shared in the threads is  awesome and I am sure you will find it helpful.  Great dialog between the members in those threads.

Welcome to our world.

Kitt


 

Kitt, Co-Moderator:
Anxiety/Panic 
Co-Moderator Depression
  Forums
Moderator: GERD/Heartburn
*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 5/17/2009 8:45 AM (GMT -6)   
 
Welcome to HealingWell and we are so pleased you found us.
 
Please feel comfortable in starting a thread of you own and do read the threads started by the members who have had the surgical procedures as they are wise and savy in the information they share about their own procedures.
 
Take care
Kitt
 

Kitt, Co-Moderator:
Anxiety/Panic 
Co-Moderator Depression
  Forums
Moderator: GERD/Heartburn
*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources


Ved
New Member


Date Joined May 2009
Total Posts : 9
   Posted 5/18/2009 9:47 AM (GMT -6)   
tongue  
A big THANK YOU to all who have helped me with their suggestions in this thread. The medical fraternity in my country (India) is one of the best in the world. Still it's good to know about GERD from common people like you and me, and that is where this forum stands out as a beacon of hope for people like me. I shall consider all the suggestions made in this thread before taking a decision. And I shall also be waiting for more suggestions......  
 

notbruce
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/18/2009 5:12 PM (GMT -6)   
 laproscopic Nissen Fundoplication
Hi every body
yesterday I wrote a bit obout my operation, thought I would add, my surgen will not do full wraps any more, says he has to many come back with problems.
I also suffer form having only 5 % of my swallowing abilaty, suprisingly I can still swallow. I am told 2 out of ten operations do not work. don't know why.
Russ
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