Hi folks- I am basically a newbie here but a veteran of sorts on the Ulcerative Colitis (UC) forum. Along with UC, for years I have had chronic epigastric pain localized mostly to the center of my abdomen about five inches above the naval, where the rib cage ends. I always, falsely, assumed this pain was from active UC in my transverse colon but an upper GI a few months back revealed there is gastritis, esophagitis and patchy erosions, plus a Schatzki' s ring as well. The past few months it has been more severe and unremitting, but the inflammation was still described as mild by my GI. I have tried omneprazole OTC for a couple months to no effect, and since then have been on rx panteprazole also to no effect. I have also tried 'heartburn free' orange peel extract but not sure it is doing anything either.
I do take alot of probiotics and certain vitamin supplements for my UC and occasionally try cutting those out altogether for a few days but I don't see any big improvement. (Maybe I need to go supplement free- or at least most of them- for a long period, but the probiotics I do not want to do without, on account of my UC). I am also stuck on oral steroids- prednisone and entocort - on fairly low doses (though I was on much higher before several times) while I try to get off them altogether via other treatments for my UC, and possibly surgery. However, I would sure feel better dealing with my UC surgically if I could get a handle on the epigastric pain, which after all could stay with me no matter what i manage to do to my colon. I am hoping maybe that once I get off steroids for some time maybe that will cause this upper inflammation to let up. Any ideas on what to try beyond these PPI's? If PPI's are doing nothing for gastritis/esophagitis, is it possible it is some overgrowth of candida or some bacteria or virus that is actually to blame and which would need to be dealt with using antibiotics or something?
Pancolitis >20 years, allergic to all 5ASAs
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up
Remicade Humira, lots of probiotics, entocort, tapering pred again, maybe surgery this year
Post Edited (Probiotic) : 5/21/2009 11:03:32 AM (GMT-6)