Living with Laryngopharyngeal Reflux

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Kathyinthekitchen
New Member


Date Joined May 2009
Total Posts : 9
   Posted 5/24/2009 5:52 PM (GMT -6)   
I have been diagnosed with Laryngopharyngeal Reflux and have had an ulcer on my vocal cords twice from acid backing up. As a result I have to be on the GERD diet. I am wondering if there is anyone who has this disease that can give me some advice about it and how they deal with it. I have a few questions and I hope you can help me. I was wondering about the length of time having it and how you deal with any anxiety you may have and also the very bland diet. Is it possible to eat some things you really enjoy once in a while? Is dining out a problem for you. Do you have any suggestions about it? If you have any meal plans or recipes that help improve the bland diet I'd appreciate it so much. I am very unhappy with the few choices in food I have but am so afraid of getting cancer. Also, what do you think about soy milk? I really could use some advice. Thank you very much for your time. K

iamamy
New Member


Date Joined May 2009
Total Posts : 12
   Posted 5/24/2009 6:38 PM (GMT -6)   
Hi Kathy,

I'm sorry you are having a rough time right now. I have had reflux for about 6 years, and still when my flares up, I get very anxious. The anxiety really does make things worse, but thats its hard to make yourself relax. I am actually having a flareup right now. I will tell you that it takes a long time to get things under control. WIth my first episode, it was probably 3 months before my medicine starting working, and probably 6 months before I could sing in church without it hurting. I followed a GERD diet for a long time, and then gradually started eating normal again. Its hard to figure out what will bother you, and what will not. For a while, eat small bland meals, don't exercise...especially with bending for a while after you eat, cut out your vitamins for a while, and most importantly, try to relax. Believe me, I know that is hard to do, but the more anxious you are, the more acid your stomach produces. If needed, you can ask your Dr. to prescribe you a very mild anti anxiety med. Good luck. Hand in there....

Amy

Kathyinthekitchen
New Member


Date Joined May 2009
Total Posts : 9
   Posted 5/24/2009 6:45 PM (GMT -6)   
Hi Amy,

Thanks you for your reply. I appreciate it so much. I am on a mild anti-depressant currently and am taking Ambian to help with sleep. Right now all I can have is a bland diet. If you or anyone else here could suggest some recipes to improve the bland diet I'd so much appreciate it. I was also wondering about soy milk and my last question is about how you deal with dining out when your on the bland diet. Thanks so much for your help. Kathy

iamamy
New Member


Date Joined May 2009
Total Posts : 12
   Posted 5/24/2009 7:18 PM (GMT -6)   
Kathy

I will have to defer the question about soy milk. I have never tried it. Right now, I am eating oatmeal, green beans, rice, a little boiled chicken, mashed potatoes, dry crackers, and thats about it. As far as dining out, its hard. I am staying away from all spicy, and fried foods, as well as red meat right now. I have gastritis as well, so my stomach hurts when my reflux is really acting up. Denise, a very knowledgable poster on this site recommends egg custard. I haven't tried it yet, but I plan to. I hope this is some help....I know it seems like you aren't getting any better, but it does take a while. I'm sorry you are having to go through it.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7180
   Posted 5/24/2009 8:28 PM (GMT -6)   
Hi Kathy,
I'm sorry to hear that you're suffering from your GERD issues.  I've always had plain old GERD, not Laryngopharyngeal Reflux,  so I'm not sure if the eating restrictions are the same, but I can share some of my experiences if you'd like.  Are you having a flare-up that started recently?  GERD can be very difficult to deal with when the acid starts burning your esophagus.  It takes a long time to heal, and it's easy to get a little down when your symptoms don't clear up right away.
 
Yes, egg custard is my most favorite food for healing GERD flare ups.  It's very good, and is so gentle on your stomach.  I find I can eat it comfortably when nothing else works.  Fortunately, I had the Nissen Fundoplication surgery the end of February, so my GERD symptoms have cleared up, but I am going through the post-surgical healing process, which is a different type of challenge.  Actually, I was pleasantly surprised with the surgical recovery--compared to the recoveries I've experienced after GERD flareups, the surgery was a piece of cake.
 
In my experience, I could exercise comfortably without GERD symptoms as long as I did it on an empty stomach.  I'm talking fitness walking here...not situps.  Not sure how those would go.  Your LES valve doesn't work, so be sure you don't bend over to pick things up or tie your shoes...the acid just spills on into your esophagus.
 
When I've gone out to eat during a GERD recovery, I just stayed away from fried foods (really bad...the grease allows everything to reflux easily), spicy foods, and rough foods like popcorn.  Of course no alcohol or coffee.  Did anyone tell you that chocolate, caffeine, and peppermint are big triggers?  I find that decaf tea (I make it weak) is always tolerated well.  Everyone is different.  You'll have to see what works for you.  Cream soups are soothing to my tummy, too.
 
Fortunately, I don't suffer with anxiety during GERD, but I know many people do.  Generally it's because they're worried about their symptoms and are fearful that there is something more serious going on.  If you read around the posts on this forum, you'll find that many people have experienced similar symptoms.  You don't have to worry.  You will recover, your burned esophagus and vocal cords will heal, and you'll feel your old self again.  If this problem is chronic for you, you can seek other options.
I assume you're on PPI's for acid, right?
 
If I'm missing the mark here, let me know.
Good luck, Kathy.  Hope you feel better soon.
Denise 

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 5/25/2009 9:11 AM (GMT -6)   
 
Hello and welcome to HealingWell.  I have plain old GERD and I have certain foods that will kick it in.  Unlike Denise, custard is a huge no no for me, especially frozen custard.  I know if I eat frozen custard I will regurge this for sure.  I have learned this the hard way by waking up choking and coughing and making a mad dash for the bathroom. 
 
I guess each person is different in what they tolerate.  Also buffets are not a good choice for me as there are to many temptations and if I am feeling good I will try a combo of things that don't mix well and back to the regurge.
 
I use Prilosec for the heartburn and of course I am addicted to Diet Coke and have some days where I will kick into heartburn and  if I did not know better would fear I am having a heart attack.  The bruning will go up into my jaw, into my back and both arms as well as chest pain.  That is when I take Mylanta, ugh.
 
The BRATY diet may help you when you are feeling really ill,  Bananas, Rice, Applesauce, Toast and Yogurt.
 
Here is a link to a site that you may find helpful:
 
 
Again a warm welcome.
 
Kitt
 

Kitt, Co-Moderator:
Anxiety/Panic, 
Depression,  & 
 
 GERD/Heartburn
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Jay333
New Member


Date Joined Jan 2013
Total Posts : 1
   Posted 1/4/2013 5:54 PM (GMT -6)   
iamamy, please tell us what medicine you were using, what food were you eating on your diet, and why do you still have symptoms? is GERD/Laryngopharyngeal Reflux uncurable?!

Pat Tall
Veteran Member


Date Joined Aug 2012
Total Posts : 950
   Posted 1/4/2013 6:32 PM (GMT -6)   
Iamamy has not been on here since 2009. This might help answer some of your questions. This is a good starting place-->>

http://www.healingwell.com/community/default.aspx?f=45&m=1483795

Pat Tall
Veteran Member


Date Joined Aug 2012
Total Posts : 950
   Posted 1/4/2013 6:38 PM (GMT -6)   
This page is very good for LPR and GERD.

http://www.healingwell.com/community/default.aspx?f=45&m=2535318

thegspeak
Regular Member


Date Joined Nov 2012
Total Posts : 196
   Posted 1/4/2013 6:49 PM (GMT -6)   
Hi Kathy, I have been diagnosed with LPR recently as well. Actually I think I've had episodes for years but this one had too many new symptoms to ignore. You'll see a few posts where I ask about lifestyle issues like sleeping elevated with your husband next to you (very sexy;0), diet, and exercise. I too get anxious. I do fear something worse is going on (knock wood) and I'm working on that.

The hardest thing for me was giving up a glass of wine or beer. I thought i would miss the chocolate but I don't that much! From what I've learned first and second hand, you can't really cheat with your trigger foods. At all. It's just not worth it. And it may take a bit of trial and error before you can pinpoint what your triggers are.

I figured I'd give you a rundown of how i eat (not everything just a typical day), I definitely crave a little flavor where i can get it safely, maybe it will give you some ideas:

Breakfast - Feta Cheese/Yellow Bell Pepper Omelette (combo of 3 egg whites and one yolk) Sea salt on top (key here is small portions, and salt is fine)

Snack - A banana or a couple of low fat graham crackers which I love to dip in tea

Lunch - Half turkey breast sandwich in Pita bread with lettuce and either a tablespoon of vinaigrette or lowfat Mayo.

Snack - Carrots dipped in humus

Dinner - Grilled Salmon with a half cup of Gluten Free Whole Wheat pasta which I toss in a little vinaigrette or olive oil and salt. Maybe some roasted Kale.

I also love to make smoothies in my vitamix. And Low Fat Fig Newtons has been a lifesaver for me in terms of my sweet tooth. Thank goodness for the feta, the salt and the little bit of vinaigrette because for me other than the portions, the blandness is pretty depressing as I am a foodie who cooks and loves all the things that are no go.

Feel free to email me if you want to trade recipes and ideas. There may be things I eat that aren't right for you but this kind of day works well for me. I also chew DGL a half hour before my meal and dip a small piece of bread in Manuka Honey to soothe and prepare my body for the meal. Take a very good enzyme with meals and sit very still for a while afterwards AND finally I drink very alkaline water, up to 11.5. I also gargle with it, use it in my neti pot AND put it in my humidifier when I sleep. That's it and if it seems like it's a full time job managing food, i have found it is. But it's new for me. I hope at some point soon I can focus on things other than my next meal.

Good luck!

gigglesalc25
Regular Member


Date Joined Jan 2013
Total Posts : 79
   Posted 1/11/2013 2:51 PM (GMT -6)   
Thanks for all those tips Thegspeak! Might bea silly ? but what is DGL?

thegspeak
Regular Member


Date Joined Nov 2012
Total Posts : 196
   Posted 1/12/2013 2:48 PM (GMT -6)   
this is what it is: http://www.e-tyh.com/cscart/index.php?dispatch=products.view&product_id=29877
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