Hi Everyone! I have to say I am feeling more confident going into this surgery now knowing that you are all here for help and support
I have been so worried that I was not doing the right thing, and after reading so many posts, I know I am, and that I am the only one who truly knows what my body is telling me. So thank you! It is so hard to explain what I am feeling to people who are not in the same situation, and while reading posts I find myself feeling not so alone.
Carly - this is not a gurgling sound at all. All I can describe it is as the terradactyl... I was sick a few months ago with no voice, and the noise changed to a mouse sound... a small squeak. But for the most part, its this loud sound. If you have seen the movie Nims Island, there is a lizard friend the girl has, and I kinda sound like that... There is no other way I can describe it.
I have not had swallow tests because i did a manometry test, and the results came back that my esophagus function was normal. When I make the noise i can feel my larynx contracting. I saw an ENT and he looked my larynx and said the whole area was red and irritated, due to acid coming up and irritating the area. He said has a result, the vocal cords would spasm and cause the noise...
Also, sometimes I make the noise alone, and sometimes I make the noise and have food/acid come up (which is scary if you are talking because I am so afraid it will come out... gross I know). People often say "bless you" when I make the noise and try to keep it quieter if they dont know me... because they know I made a noise and think its some strange sneeze.
I get the tight feeling once in a while, but I think its just from the reflux...
Hope that helps... Let me know if you have any other questions :)