Just need to know if it's damaging?....

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DeidPS
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/26/2009 8:47 PM (GMT -6)   
 I am hoping you fellow GERD sufferers can help me.
 
My son, who is 11 years old, has suffered with Reflux since the day he was born. He never outgrew the awful baby reflux.
He is NOT a sickly child... infact he is very healthy and of good size and weight...
 
My main concern was whether the constant 'daily' reflux was causing damage which would cause problems later in life.
 
Recently we attended  3 days at the Royal Children's Hospital where he underwent several tests to try to find a reason for his Reflux. He had a full blood test/iron panel, ph monitor for 24 hours... a gastroscopy (biopsies were also taken) and  then several days later he had a gastric stomach emptying test.
 
His ph monitor showed 51 reflux episodes in 24 hours. We aware that he has many episodes of reflux every single day...but wasn't aware it was quite so much. The doctor said that although they are very frequent they are fast...straight up the esophagus and down again...no lingering.
 
The gastroscopy showed no damage... everything appeared normal.
His stomach emptying test also showed 'normal'
 
The doctor says he is a candidate for fundiplication surgery but I am hesitant to allow the surgery if the reflux is not causing any damage? He is a healthy child, and accepts his constant reflux well as he knows no different.
I would like to give his condition more time and make the decision at a later date when he is a bit older, but only if it's not causing damage...
 
...How can so many episodes of Acid Reflux every day cause no damage? His ph readings during his monitoring were often only .5
 
Just after opinions.
Many Thanks.

beareilly
Veteran Member


Date Joined Mar 2009
Total Posts : 553
   Posted 5/27/2009 5:25 AM (GMT -6)   
Hi,
we do not know how many episodes do or do not cause damage unless we get the endoscope. There is no damage so this is a great thing.I would think, the longer the backwash stays up and the frequency of it should determine this.I had 200 episodes of gerd on that test within 48 hours. But I have had 3 strictures of the esphagus,sour taste bakwash,lost weight esphagitis etc.So good luck in your decision making. I say hold off for a little while on the surgery for your son.I had the fundoplication done on 5 -7.I must say I feel great!!! It wasnt that bad.
Good luck
Bea

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 5/27/2009 4:38 PM (GMT -6)   
 
Hello and welcome to the GERD forum.  As most infants outgrow GERD by the time they are your son's age you have a tough decision.
 
Have you thought of obtaining a second opinion? 
I am sorry I do not have any magic answer for you but I do understand your wanting to have as much information as possible before making a decision.
 
Take care and again welcome.
 
Kitt

 

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dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 5/27/2009 5:14 PM (GMT -6)   
Hi Mary,
I'm sure your son's GERD worries you, and I understand why you're not jumping into Fundoplication surgery. I would concur with Kitt, that a second opinion might be in order. Even if the second opinion agrees with the first, at least you'll have a better understanding of the situation, and be more comfortable with considering the surgical option for him.

Another doctor might look at the situation in a completely different way.
I wish I could answer your question about reflux damage. It seems like your doctor should have addressed this concern after the tests were completed. Maybe you can find someone who is a good communicator...it would be nice if you could find a doctor who would take the time to thoroughly discuss your concerns. That type of attitude is a prerequisite when I'm shopping for a doctor.

Good luck finding an answer to your question.
Denise

DeidPS
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/28/2009 9:10 AM (GMT -6)   
Many Thanks Bea, Kitt & Denise for your opinions... it was much appreciated... and helpful.
 
Denise, you have 'hit the nail on the head'... I would LOVE to have the specialist that performed all my son's test etc to be able to spare some time to answer my questions and give his recommendations. He is ordering and reading all the tests but is so busy that he does not have time to "discuss" any of the results with me... or to give any guidance or advice.
I know he says that my son is a 'candidate' for fundoplication but that does not tell me if it is necessary or advised, and if so, why?
 
I just want 15 minutes of his time!
 
 
 
 
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