Concerned Sister - Please help

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kiki17
New Member


Date Joined Apr 2009
Total Posts : 4
   Posted 6/10/2009 6:46 AM (GMT -6)   
 Hi there
 
I am new to this forum but have reading a lot of your posts and would really appreciate any help and advice you can give me.
My brother, who is 67, has suffered with breathing difficulties and coughing for many years as a result of smoking.  8 years ago he was diagnosed with 'Acute Obstruction of the Airways Disease' and naturally stopped smoking but has been using a nebuliser with steroids ever since but always has a persistent cough.  Each time he gets a cold, he then gets a chest infection and has just had another course of anitbiotics for this.  He also seems to have a sore throat most of the time.
 
Anyway, he began having difficulties in getting food to go down - he said it goes so far and then gets stuck !  He also gets hiccups when this happens. 
He went to the doctor and explained his symptoms and the doctor booked him for an urgent endoscopy (which he had 4 days later!).  That was 9 days ago.  The report he got after the endoscopy said he had Grade B Esophagitus, at least 1 mucosal break longer than 5mm confined to the mucosal fold but not continuous between 2 folds, a slight stricture beginning 35 cm from incisors (easily overcome with scope) and nodularity (biopsies taken to determine nature !!).  They also said he had a sliding hiatus hernia. 
He was put on Nexium and told he would have to return in 6 weeks for a further endoscopy to check the stricture had healed.
On Monday, just one week after the endoscopy, he got a 'phone call from the hospital saying that they want him to go for a CT scan on 22nd June as they want to look at the outside of his esophagus and believe there could be some nodules there.  They said he would then be seen on 26th June to get the results following the doctors' review board (?).
I guess they must have the biopsy results back from the endoscopy and naturally he is panicking as everything has happened so quickly.
I have tried to assure him that I'm sure all is well and that they are just being thorough, but I can't help worrying myself also.  Is it normal for things to happen this quick, and do you think that (without stating the obvious) something has shown up on the biopsies and they are now checking further afield.
We live in England and all of this is being done on the NHS, not privately, and things normally take a lot longer here. 
Is a CT scan a normal follow-up after an endoscopy or is it only if they suspect something serious.
Could it also be linked to his Airways Disease problem ?
 
(My mother, who is 89, suffers with gastritis and Barretts Esophagus plus a hiatus hernia, but she has never had a CT scan for it, only endoscopies).
 
Any advice anyone can give would be much appreciated as I am trying to stop him panicking, without much success.
 
Thanks so much

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 6/10/2009 7:52 AM (GMT -6)   

Good Morning Kiki,

Welcome to HealingWell and the GERD/Heartburn Forum.  I am so sorry to hear of your brother's problems.

I would like to suggest that your brother call his physician or make an appointment to see his physician to find out what is going on, why the need for the CT and what the biopsy results indicated.

He has the right to know the outcome of the tests already done and to have an explanation of why more tests are needed and what the Doctors are looking to rule out.

Please do continue to advocate for your brother.  You are obviously a very caring sister and you have my admiration.

Again a warm welcome.

Kitt

 


 

Kitt, Co-Moderator:
Anxiety/Panic, 
Depression,  & 
 
 GERD/Heartburn
*~*
http://www.healingwell.com/donate *~*
"When you find peace within yourself, you become the kind of person who can live at peace with others."
Not a mental health professional of any kind
Clickable Link: Anxiety-Panic Resources


kiki17
New Member


Date Joined Apr 2009
Total Posts : 4
   Posted 6/10/2009 8:01 AM (GMT -6)   
Thanks so much Kitt
My brother did say he was going to contact his GP and ask the questions, but then changed his mind and said he would just wait and see after the CT scan..... (I think he is too scared of what he might be told). I will suggest it to him though and see what he says. I know he is so frightened and I keep trying to re-assure him but then he just says "can we change the subject?". I understand his mind must be in a whirl and I would rather he did speak to his GP. Thanks for the advice and I'll let you know if I manage to convince him.
Regards

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 6/10/2009 3:23 PM (GMT -6)   

kiki,

My husband is the same way and will not discuss anything re his medical condition.   He is a fatalist............what will be, will be so why discuss it.

I find this hard as I am a talker so I have to really step on my tongue to keep from bringing things up at are bothering me re his health.

Your in my thoughts, sweetie.

Take care

Kitt


kiki17
New Member


Date Joined Apr 2009
Total Posts : 4
   Posted 6/11/2009 4:59 AM (GMT -6)   
Hi Kitt
Thanks again for your kind words. I think most men tend to want to keep it to themselves which can be very frustrating for us. My brother has always come to me with any problems and I know he is frightened! I did suggest to him that he speak to his GP but he said that he would rather wait till he has the result of the CT scan as he says he doesn't want to get bad news re his biopsy results and then have to worry for the next 2 weeks till the scan. He thinks, if it is bad news, then he would rather get it all in one hit !
He has had a couple of blood tests done, one as a fasting test which showed a high level of inflammation, the second was a full blood-count yesterday to see if it is still as bad but he wont get the results for another week. I guess if necessary, his GP will contact him when those results come back and then he will be forced to talk about the situation.
It's just so hard for me to know what to say to him! I am trying to think positively myself and pass on that positivity to him, but it's hard when I really don't have a clue what it all means. When I start looking on the net, bad news seems to be jumping out at me and I know that a little knowledge can be a very dangerous thing!
I'll keep you informed Kitt but thanks so much again.
Regards
Chris

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 6/11/2009 7:08 AM (GMT -6)   

Chris,

You are doing the right thing in just being there for your brother.............standing beside him.  He is holding on to his diginity and independence.  It is a scary thing he is facing and he is using his own way of coping with it.

I know how hard it is to stand by and watch a sibling go through a rough time.  ((((((((HUGS)))))))))

I am here for you,

Kitt


kiki17
New Member


Date Joined Apr 2009
Total Posts : 4
   Posted 6/11/2009 7:21 AM (GMT -6)   
Thanks so much Kitt - I really appreciate your support !!!

Regards
Chris
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