Hi everyone, well, the phone call this morning was serious. First thing he told me was that they are all in agreement, I need more surgery. He said that this is not your typical benevolent DCIS, this is High Grade, angry, fast growing, agressive stuff. There's a lot of necrosis, much more so than in the biopsy and how this hasn't beocme invasive yet is a mystery. He said this is serious and I have a serious chance of this becoming invasive.
I think my next step is an MRI of both breasts, and then the decision to go with re-excision with (hopefully) good margins, or a mastectomy, or possibly a double mastectomy. He said that the type of tissue seen in the slides is generally not a unilateral event, most often a bilateral finding, so we'll see.
He said that they did not expect this either, they thought this was a little itty bitty typical DCIS, take out, 5 day rads and I should be good to go. He completely understands my quandry in the treat/no treat with the information I was presented as well. Things have changed completely, though, haven't they!
I should hear from my surgeon this evening and we'll go from there...I love traveling to Goshen!!!! In any event, if I'm not glowing int he dark after this, I may be listing when I walk LOL!!!