Please help, I need some advise

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Tourmantiger
New Member


Date Joined Jul 2009
Total Posts : 15
   Posted 7/1/2009 11:21 AM (GMT -6)   
OK I need some advise from you guys with expereince about this god awful disease on my current situation and some advise on what I should do next.

so a quick background, I was diagnosed with LPR in January this year after 12 months of repeated sinus problems, I had a throat scope and my Larynx was very red and angry with a lot of mucus, I was put on 80 mg a day PPI's and Liquid Gaviscon after every meal, in March I had an endoscopy and a biopsie taken showed a small about of inflamation at my lower junction, the GI DR said this was not something to worry about and the PPI should take care of this and he would like me in time to come off them altogether.

I had my throat scoped again two weeks ago and the ENT said things were better there was still some redness and swelling and mucus but a lot less than there had been and he has asked that for the next two months I take just one PPI a day and then stop, he has also said I should only take the gaviscon at bedtime and not after every meal

so, the questions I have is that I am still refluxing, and it does not yet feel in control, I could do with losing a couple of stone and I am finding sticking to the bland diet really really hard, I know if I do both of these things it will help

the question I have is, how worried about the longer term should I be?

should I be worried that the small amount of inflamation in my espohagus could get worse and if so what time scale should I be looking at?

should I be getting scoped again for my throat and espophagus the two DR's did not feel the need to see me again

I am really worried that my body has turned into a ticking time bomb and I am on death row just waiting for this to turn into Cancer, how likely is this

I would really appreciate anybody's thoughts with expereince on this to give me their thoughts on where I am at and what I should or should not be worried about and what I should be pushing the DR to do or no do

thanks in advance, this board has been a real blessing

Best Wishes

Tourmantiger

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/1/2009 6:58 PM (GMT -6)   
Tourmantiger
 
Hello and welcome to HealingWell. I know each person's disorders run their own course and I think perhaps that is what is happening with you as your scopes indicate you are slowly getting better.
It feels to me like you have a fair amount of anticipatory anxeity going on. Anticipatory anxiety is where a person experiences increased levels of anxiety by thinking about an event or situation in the future. The worries you experience specifically focus on what you think might happen, often with catastrophic predictions about the event.

Tips for dealing with Anticipatory Anxiety

Exercise! When we exercise it burns up the extra adrenaline produced when we are feeling anxious.

Distract Yourself! If you can find a task to occupy yourself in the short term this can reduce anxiety and occupy your mind, e.g. doing a crossword, counting (this is not a long term solution, however).

Do some relaxation! Yoga, breathing exercises and listening to music are all good ways to decrease you physical anxiety symptoms.

Try an experiment! See if you can postpone your worry to a set time in the day, it can help you feel that you are more in control of when you worry- rather than letting it take over your day.

Look at the evidence! Ask yourself ‘What's the best that could happen, the worst that could happen and what is the most likely thing that will happen?’. What could you do to cope if the worst did happen?

If you continue to feel ill do not hesitate to make an appointment with your physician or get a second opinion. 

And remember to stay in the moment, the now, right now.  Kick that anxiety to the curb whenever you can.

Wishing you the best,

Kitt


 

Kitt,
Moderator: Osteoarthritis, GERD/Heartburn
Anxiety/Panic, & Depression
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http://www.healingwell.com/donate *~*
"When you find peace within yourself, you become the kind of person who can live at peace with others."
Not a mental health professional of any kind


opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 7/1/2009 7:12 PM (GMT -6)   
Tourmantiger -
Did the meds help your symptoms? If so you may want to stay on them at a lower dose maybe. It has been my experience that the root problem causing the symptoms doesn't fix itself. Mine was so bad that I had to go the surgery route. If the doctors aren't giving you satisfactory answers I would get another opinion. You didn't say which PPI you are taking. For me Prilosec never worked. Nexium and Prevecid did for a while, but stopped working and instead of going to 4 doses a day I opted for the surgery. I have been on Protonix and Aciphex the last few weeks because of complications from my Nissen redo, but will be off them in another week. If you are taking Prilosec and aren't getting relief you may want to ask for a different one to try.
You said you had a couple scopes, but have they mentioned anything about a manometry or PH study? If you are refluxing bile the PPIs won't help and I believe the only way to tell if it is bile or acid is a PH study. I have developed Barretts and have to have an EGD every year now to make sure it doesn't get worse. If it was me I would find a different GI doctor. When I first was diagnosed with GERD I was told I would have to probably take meds from that point on to control it.

Take care,
Bill

Tourmantiger
New Member


Date Joined Jul 2009
Total Posts : 15
   Posted 7/2/2009 8:11 AM (GMT -6)   
Hi Kitt / Bill,
thanks for taking the time to respond,


Kitt, you have so totally got me sussed in one post, I am a total worry and control freak, I need to know the outcome to everything and run through all the various scenarios and then I tend to get fixed on the worst case and convince myself that this is then the only option, particularly when it comes to health

my dad died of Cancer when I was 2 and I never got to know him, so I know I have a big issue with Cancer so adding the whole reflux thing and what this can lead to has made this fear even bigger

Tourmantiger

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/2/2009 8:42 AM (GMT -6)   
Tourmantiger,
 
I understand exactly how you feel. My Father and his 5 siblings died of cancer.  My oldest sister had cancer but died of a heart problem.  My middle sister just died in April of Ovarian Cancer.  I have a long family history of cancer and I  had 4 skin cancers removed last year. Yes, I have fears too but I have learned not to  dwell on what may be ahead for myself.  I just take it one day at a time.  I do have my moments however and then I have to pull back to staying in the moment.
It is normal to experience some fear. Telling yourself not to worry or criticizing yourself for being afraid won't make these feelings go away. Accept that you are going to experience some fear and focus on finding ways to help yourself manage the anxiety is the best advice I can give you. 
It may also help to remember that the fear usually lessens over time, and that you won't always feel so anxious.

Talking about your fears and feelings or writing down your thoughts in a journal can help reduce your anxiety. Talking and thinking about your concerns can help you explore the issues underlying your fear.
For me, I chose therapy and it helped me a great deal.
 
Please do feel comfortable continuing to post your fears and anxieties here in your own thread.  We are here to support you and please know we care.

Wishing you the best,
Kitt
 
 

LittlePeanut
Regular Member


Date Joined Oct 2008
Total Posts : 81
   Posted 7/2/2009 1:44 PM (GMT -6)   
Tourmantiger:

Kitt has put it quite well Anxiety becomes your enemy here because it sets in to motion a wheel of more symptoms in essence you worry about your stomach and the worry makes your stomach worse. Set aside time to yourself to read or otherwise occupy your mind. When those stomach thoughts come back and they will push them out of your mind with better thoughts.
Think of the future and how much healthier your eating now than you did before. If you were on a bad diet think of how better this will make you in the long run. You mentioned how long on the meds. Things change and the sooner you identify the underlying cause the sooner the change can happen. If it takes a little while to find the underlying cause then you might have to take something for you stomach for a little while longer. Your doctor will make that determination.

Therapy would be a very good thing in that it will give you something to look forward to in addition to releasing those emotions. I went the accupuncture route and that has helped a great deal in dealing with the stress. I found that the treatment time was a quiet escape that was relaxing.

This forum is a wonderfull support please feel free to speak what is on your mind.

Little Peanut
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