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Date Joined Jun 2009
Total Posts : 110
   Posted 7/6/2009 12:59 PM (GMT -6)   

Hi all, I need some feedback. I will make this as short as I can.

I was having a lot of pain ALL over, and fibromyalgia was always a thought, but one thing led to another and I ended up having an endoscopy in 2003, my esophagus was inflamed so I started on Protonix 40mg 2/day. After ruling more things out, I had a hysterectomy and my gallbladder removed in 2003. I was still in pain and my dr. wasn’t doing anything, so I finally went to Mayo. After extensive tests for 2 days, they confirmed GERD and upped my protonix to 40mg 3/day and diagnosed me with fibromyalsia. I won’t go into any of the fibro stuff on this forum.

I have been having more problems lately but didn’t want to face them, well, I can’t ignore them anymore so I am having another endoscopy next week.

I have been coughing up green mucous and constantly need to clear my throat. After sitting for a while, every time I stand up, I burp. I sometimes wake up with a mouth full of bile, and I have also woken up choking.

I have always had difficulty swallowing. Its sort of like gulping. Sometimes I get all panicky because I can’t swallow, and its like I have to make myself do it.

I am a smoker, and haven’t seen that talked about here as I was looking back at previous topics. My dr. says my lungs have always sounded clear, but in the back of my brain, I guess I thought that was the problem. I know its stupid to smoke, and I am having difficulty quitting, and know its my own fault, and I may deserve it, and feel guilty enough, so I don’t need a lecture on quitting, just some insight. So, I guess I want to know if any of you smoked? Can I have GERD, without heartburn? Has anyone experienced these symptoms? Can someone help me with all my anxiety?

anxiety, avascular necrosis, costochondritis, depression, cfs, hypothyroidism, fibro, gerd, thyroid, uc, crs(can't remember stuff)
in trying times, don't quit trying          

Forum Moderator

Date Joined Feb 2009
Total Posts : 7188
   Posted 7/6/2009 3:59 PM (GMT -6)   
Hi Maggi,
I'm not a smoker, so I can't speak to that issue, but I have suffered from GERD and was non-responsive to 40mg Protonix twice a day. The answer to your question is can have "Silent GERD" in which you get the damaging acid in your esophagus and don't know it. That's not what I had, but lots of people here have had it.

The GERD I experienced wasn't as severe as some have described on this forum (including yours, from the sound of it). It was severe enough, however, to cause my asthma to be untreatable. I was on high doses of inhaled steroids, and periodic oral steroids to keep me breathing. I was using a nebulizer daily to keep my lungs open. My steroid dosage was enough to cause adrenal insufficiency symptoms, and thinning, bruising, and tearing skin.

Finally, in February, I decided I had to take the chance and have the Nissen Fundoplication surgery (laproscopic). I wish now that I'd done it long ago. My lungs are clear for the first time in years. I had been coughing tons of phlegm out of them all the time. (Coincidentally, I actually had a "smoker's cough" even though I never smoked!)

You definitely should find a good GI doc locally, and work on finding out what's up. You need someone you can communicate with, and who will really listen to you. If you need to shop around, by all means, do that. If you decide to opt for the surgery, be sure to select your surgeon VERY carefully. It's the most important part of that decision. The negative posts you see on the internet are mainly from people who had an unqualified, inexperienced surgeon do the job.

If you search with the Google window at the top of this page, you can locate posts and strands that might answer some of your questions.
Good luck, Maggi!
Be sure to keep posting and asking questions. There are a lot of members here who have been through what you're going through, and I'm sure they'll have helpful comments for you. It's vacation time, so some of the regular members are coming and going, but stay around and I'm sure you 'll find lots of support here.
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