Thanks for your responses! I excluded some important details for the sake of not making my thread longer than it already is....
I should mention that the Pylorus theory did not gain popularity in the United States. It was presented by a European doctor before WWII but did not attract much attention because Penicillin was discovered around the same time. My 6th doctor (Dr. Zubiran) is 87 years old now and says he remembers the story behind the discovery. According to him, the individual that discovered Penicillin won the Nobel prize around the same time that the Pylorus theory was presented - 1940s if I recall correctly (I will look in my notes to find the doctor's name and post it later). The discovery of Penicillin took the limelight in the US. Hence, most of the medical community that believes in the Pylorus theory as the cause of GERD is primarily in Europe - specifically France and Germany. A few doctors in Mexico also practice it although most of Mexico's medical community subscribes to US practices/theories. I should add that Dr. Zubiran was seeing several patients that had undergone the Nissen funduplication surgery and it had not worked out well for them. He succesfully helped several of these patients. I still do not understand why some patients do so well with the surgery and others do so poorly.
I was fortunate enough to be in Mexico during the end of my first year with GERD. This is where I finally healed.
Between the US and Mexico, I had gone to 5 specialists, spoken with 4 surgeons, tried several naturists, tested every diet and Internet gimmick, gone to nutritionists, even saw two psychologists, visited priests, etc. After one year, I had tried everything but surgery and witchcraft. I had lost my social life and close to 40 lbs to this illness at the time. I slept at a 90 degree angle every night for 12 months.
My sixth specialist, Dr. Jose Maria Zubiran senior prescribes heavy doses of Motillium and regular doses of PPIs. He believes acid reflux is a symptom of the pylorus closing up so he relies mostly on mobility drugs to heal his patients. I was an extreme case (my acid travelled all the way to my mouth - symptoms included burned mouth, enamel deterioration, chronic cough, dysphagia, wheezing at night, severe heartburn, etc) so my doses of Motilium and Cisapride were pretty high. A friend of mine was recently under his care for a couple of months and is now free of GERD / acid reflux. He was prescribed much less medicine than me and did not undergo the gastroscopy with dilation. It is so important for your doctor to know what doses of which medicine to prescribe. If you recall, I had been on both PPIs and Motilium with my first doctor but the prescriptions were not long enough, or strong enough, so I did not heal.
My homeopath doctor (Dr. Barba) also practices in Mexico - Cuernavaca. Unfortunately, most homeopaths are not allowed to practice in the US unrestrictedly so they typically practice under the title of Naturist (although it is different from homeopathy. The naturist route did not work for me). Dr. Barba studied medicine and practiced in the US for a few years. He was a family practicioner for years before converting to homeopathy. He is one of the most renown homeopaths in Mexico and his patients travel from as far as Israel for appointments. I should add, as I was told by the individual that referred him to me, that he has a very special gift for connecting with people. I did not believe in alternative medicine before becoming his patient so sadly, I waited 5 months before calling him for an appointment. I worked for years in hospitals as a volunteer and most of my closest friends are doctors so I never thought of alternative medicine as more than superstition. I was pretty ignorant. Nowadays if I get sick, make no mistake - my first route is to make the flight to Mexico for an appointment with this man. He books months in advance, but is worth the wait and the cost of travel.
I do not think it should be necessary to travel for GERD treatment though. If you want to try the pylorus theory I would look for a gastro that is familiar with this theory and believes this is the root cause of GERD. Another check point is to ask whether the doctor does gastroscopies with pylorus dilations. Again, very similar procedure to an endoscopy. You don't lose anything from trying it out since, unlike the surgery, it does not alter anything permanently and is not surgery. As I understand, the Nissen surgery is irreversable. The risks for the gastroscopy are similar to the risks of any endoscopy.
I asked both these doctors for recommendations in the US but unfortunately, they did not have anyone to recommend.
If you want to test homeopathy in the US, my understanding is that many of them market themselves as a Naturists here so you have to ask. The medicine my homeopath gave me was to relax the digestive system's muscles (similar to the mobility medicine). All homeopath remedies are concentrated plant extracts. I was given 4 little jars with different essences at different times. I took this medicine for about one month. I also did breathing exercises 5 times a day. Inhale deeply and hold your breath for 5-10 seconds and then blow out slowly, pushing your stomach outwards (it should feel as if you have a balloon in your belly). Repeat 3-5 times. Finally, Dr. Barba also used to put earphones over my ears and play static music. It sounded like static electricity and was a little annoying. This is to help your mind reset itself and send signals to your systems that it needs to relax. I thought it was funny too, but hey, I wouldn't be writing about it if it hadn't worked.
Well, I want to wish of each of you the best of luck in your process to heal. I know how frustrating this is - I too was told this would never go away, I was told I would take medicine for the rest of my life, I was told all sorts of things. Do not give up on yourself. I think this is the most important part of recovery - believe that it will happen. Please know that I am cheering each of you on, and I will keep you in my prayers. All the best!!!
Post Edited By Moderator (stkitt) : 7/22/2009 10:48:16 AM (GMT-6)