Burning in throat and heartburn despite PPIs and negative test results

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sari30
New Member


Date Joined Sep 2004
Total Posts : 4
   Posted 9/28/2004 7:55 AM (GMT -6)   
HI,
  My name is Sari, and I am new to this board. I have had this terrible throat burning , belching, and bloating since last October. I have had all the tests you can think of, EGD,24 hour ph study, esophageal motility test, you name it. They all seemed pretty normal. I have just now recently started getting the burning sensation in my stomach and lower esophagus, which when all this first started I only got the burning in my throat and upper chest. I am even taking neurontin (a nerve drug) my doc gave me just in case it was nerves in my esophagus causing this burning. It has only helped minimally. How accurate are these 24 hour acid tests anyhow? I do know that my burning does get worse after I belch. I am currently already taking aciphex everyday. Any suggestions or advice would be greatly appreciated.
                                          Sari 

kathypb2
Regular Member


Date Joined Jul 2004
Total Posts : 30
   Posted 11/2/2004 5:21 PM (GMT -6)   
it sucks i too have a burning throat and tongue i had a egd but it showed i had a heria and my stomach and throat are inflammed...im taking neximem and i too take nerrontin when i feel i need it.. i hope you find out what it is .. kathypb

frankoeo
New Member


Date Joined Nov 2004
Total Posts : 8
   Posted 11/23/2004 11:34 AM (GMT -6)   
I had similar symptoms for 3 years. Doctors with all their tests and PPIs turned out to be good for nothing. It wouldn't be far from the truth if I said that my life was ruined. A month ago I stumbled on a book on vegetables. In one of the chapters I read about sour kraut ( fermented cabbage ) and its beneficial effects on intestines. I ate one 1liter jar of it per day before meals for 10 days. I don't want to say that this therapy made away with my problems completely but one thing is sure: I don't have burning throat and bloating, belching and burning in my stomach subsided considerably. Make your sour kraut yourself from organic cabbages in the following way: 1. chop your cabbages 2. put the mass you obtain in a large enameled container in a few layers adding some salt to each layer and pressing until the chunks of cabbage give out juice (you should use 1/10 kg of salt for a 12 liter container). 3. Put some wooden plate and weight on top so the stuff stays compressed. 4. Cover with some mesh made of cotton and leave to ferment for about 2 weeks in a worm ( 10-18 degrees Celsius) place where the stink of gases won't bother you. After 2 weeks your sour kraut is ready. Take off the mould that often occurs on the surface. Don't get rid of the juice. Drink it with your sour kraut. This recipe worked for me. There is another one on http://www.happyherbalist.com/sour_kaut.htm. If you live in Chicago go to a Polish deli and ask them about sour kraut made with traditional methods. They should have it in barrels with a lot of juice. I don't know what is the value of sour kraut available in food chainstores ( I did't go for it because of additives used in mass produced food) After drinking the juice or eating a lot of sour kraut don't go away from home as it is almost sure you'll get short lasting diarrhea (start the teraphy on the weekend). Good luck.

Debbie L
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Date Joined Jan 2005
Total Posts : 3
   Posted 1/4/2005 8:41 PM (GMT -6)   
    Hey everyone I too have been suffering from back pain and burning, but also from excessive phlegm I keep choking up.  I to had a endoscopy and they did not see anything but a small amount of redness and noticed I had some bile in my stomach.  I took nexium on and off for years did not seem to do much, but since I have been off of it ( because of side effects) I have experienced a lot more phlegm and I hate it.  Has anyone else had anything like this.  I hate saurerkraut so dont think I could do that method.  But have also heard that a tsp of vinegar before meals works also.  Please let me know. Thanks

MELPY
New Member


Date Joined Feb 2005
Total Posts : 2
   Posted 2/7/2005 10:24 AM (GMT -6)   
What can you do for the throat burning? It is killing me.

LIEF E
New Member


Date Joined Jul 2005
Total Posts : 3
   Posted 7/24/2005 9:55 AM (GMT -6)   
I had a daily burning sensation in the back of my throat for easily 7 years from the age of 20-27.  I underwent every medical procedure and drug that was available at the time.  Nothing worked well for any amount of time.  At my worst point, I was taking 30 Tums a day and drinking Mylanta like it was water. 
 
At some point of desperation, I went to a "natural-health-practioner".  I think he called himself a kinesiologist or something like that.  He sent me walking with a $300 bill for mostly what I'd call a bunch of quackery.  However, he did provide some simple advice that went like this :
 
1.  Don't eat any sugar
2.  Don't consume any carbonated beverages
3.  Don't drink any milk
4.  Don't eat any processed foods
5.  Don't eat any wheat
6.  Eat a green vegetable at every meal including breakfast.  (The darker the better)
 
I went home thinking, "well that's impossible".  It's actually not...  And over the course of 6 months, I learned to eat rice based food, avoid anything that tastes good, and eat bags and bags of dark green lettuce. 
 
It worked.  It's been 6 years.  And today, I still limit my wheat consumption.  I don't drink any milk or ice cream.  I keep a very simple diet (low sugar and carbs) and have probably eaten over 2000 bags of Dole Romaine Lettuce. 
 
So if you were like me, had underwent all the tests, and the doctors were unhelpful in doing anything more than providing an antidepressent or a mild sedative, then I would encourage you to try my regiment.  For me, this began to work in under 2 weeks.  The feeling of relief after 7 years is not something that anybody would understand; unless they've been trough it.
 
Take Care,
 
 
 
 

Searchin'
Regular Member


Date Joined Feb 2005
Total Posts : 70
   Posted 7/24/2005 12:08 PM (GMT -6)   
 Lief Ericsen -
Gee, your post sure gives me hope.  Did you lose a lot of weight eating this way?  I hate to think of giving up milk.  Right now, it's about the only thing that can relieve my burning throat.
I think I am going to be one of those people who are not helped by medication.
I have the same symptoms you did, and have had them about as long.  It's almost impossible to think that there is relief out there.
Thanks for sharing!  Are you still doing well?

Teri16
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Date Joined Dec 2003
Total Posts : 5230
   Posted 7/24/2005 12:44 PM (GMT -6)   
Hi everyone!
I've had GERD with Barrett's esophagus and a hiatal hernia for a few years now.  I've also had a diagnosis of mild dysplasia - that's when they start watching for cancer of the esophagus.  However, thanks to my medications and changes in diet my last EGD (endoscopy) showed the dysplasia was gone!! 
 
I found a couple of sites that may help;
and
 
Wishing you all the best!  Hugs, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


Searchin'
Regular Member


Date Joined Feb 2005
Total Posts : 70
   Posted 7/24/2005 3:03 PM (GMT -6)   
Teri16 said...
However, thanks to my medications and changes in diet my last EGD (endoscopy) showed the dysplasia was gone!! 
 
Teri16, what "changes in diet" did you make?  (Thanks in advance.)
 


Teri16
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Date Joined Dec 2003
Total Posts : 5230
   Posted 7/24/2005 3:57 PM (GMT -6)   
Hi Searchin'!
 
I'm also a heart, lung and diabetic patient, so my dietary changes have been life savers for me!
 
I drink water almost exclusively, and very occasionally a white diet soda.  I eat fiber cereal for breakfast and soy milk, fruits, veggies (one's that I have found do not bother me), fish, chicken, pork.  I eat smaller meals and more of them - I sort of 'snack' during the day.  It's worked for me and it's helped my heart and cholesterol levels...don't get me wrong though - I do eat off of that diet some and there are days, or nights that I wish I hadn't! yeah
 
Hope this helps!
Hugs, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


Searchin'
Regular Member


Date Joined Feb 2005
Total Posts : 70
   Posted 7/24/2005 7:45 PM (GMT -6)   
Teri16 - You have a very positive attitude!  I can tell why you do well.  We have a loved one in our family with insulin dependant diabetes.  That seems to be the ultimate challenge for a person.  
 
Thanks for answering my question about your meal plan.  I think you have it together! scool

LIEF E
New Member


Date Joined Jul 2005
Total Posts : 3
   Posted 7/25/2005 7:25 PM (GMT -6)   
Searchin'
 
Yes, I lost about 25 pounds on the regiment  (I went from like 200lbs to 175lbs).  But more than that, I looked a lot less "puffy" as some people called it.  My cholesterol numbers became "normal" as well.  Interestingly enough, my triglycerides (sugars) were very high and also came down about 100 points into the normal range. 
 
By no means am I a doctor, but I believe the cause of my problem was sugar related.  For whatever reason, my system does not handle it.  Now for the first 6 years or so, I relied heavily on the fact that some doctor would find the right drug and all would be well.  Only when I had exercised every last option, did I start to realize that food was a huge contributing factor. 
 
In my case, and possibly in yours, milk was the biggest problem.  While if feels good going down, it's brutal when it comes to burning.  I stopped drinking all milk, yogurt, and ice-cream.  I remember when my burning was the worst, I'd swing into the Dairy Queen for a large chocolate shake to "curb" the burning.  Yeah, little did I know that was about the worst thing I could do! 
 
Previous to going hard-core, I did a lot of experimenting...  I'd stop eating one thing, while continuing the others.  Nothing ever worked until I quit them all.  And the dark green vegetable IS VERY IMPORTANT. 
 
Here's what I did...  First get yourself mentally prepared.  This is a huge lifestyle change that nobody will understand.  Your friends will say, you can't do that., blah, blah, blah.  If you feel as crummy as I did, you can do anything!  They'll say you can cheat just today, have a little ice-cream.  You can't cheat.  I think milk stays in the system for like 14 days.  Each time, you reset the clock.  Next, find some things that are low in sugar and carbs.  Think of it as an atkins diet X 10..  Now some foods even publish a glycemic index.... That wasn't around when I did this.  When I started, I fasted for 3 days.. I then lived on meat and dark rice based food, at first... Then I started introducing the most benign food possible, staying away from everything on the list.  I drank lots of water and ate all kinds of dark green vegetables.  Spinich, romaine lettuce, asparagus, etc.. three times daily.  I did all this for 6 months before introducing new things.  I brought back bread for example.. but only small amounts.  Also, beer, from time to time and orange juice.  I still don't drink any milk, ice-cream, or yogurt.  I don't drink any soda, candy, or processed foods.  I don't do any fast food. 
 
It's been six years and I still feel great.  It changed my life so profoundly I can't explain it.  I now have no problems ever, unless I knowingly eat or drink something bad or miss my greens. 
 
In my case, this started to work in 2-3 weeks; maybe a month.  I recall feeling better every day.  And then... no burning.  Finally, an entire day came without a Tum or a swig off the ole' Mylanta (I recall having a case of mylanta underneath my desk at work) .  It was weird, since I always carried a handful of Tums with me ever where I went.  It was an incredible feeling and the end of 7 years in misery. 
 
So if you're at your last nerve, try this for a few weeks... what do you have to lose? 
 
Keep me posted and I wish you well!!!
 
Take Care,
Eric. 
 
 
PS : You may have some of my other symptoms as well... If you don't, I'd still encourage you to try this!
 
1.  Messed up cholesterol levels including high Triglycerides
2.  Infrequent bowl movements including diarehha
3.  Occasional pains in my lower abdomen
4.  A general look of puffyness, almost resembling swelling.
5.  A general addiction/compulsion to carbs and sugar...
 
 
 

Searchin'
Regular Member


Date Joined Feb 2005
Total Posts : 70
   Posted 7/26/2005 7:22 AM (GMT -6)   
Lief - Thanks so much for your post!  Am sure others will get as much out of it as I did.
 
I am like you were in that I have a general compulsion/addiction to carbs and sugar.  (pop, doughnuts, and potato chips, plus fast food.)  However, in the past month or two, I have seriously tried to give them up and thought I was doing pretty well. 
 
Your post really enlightened me to the need for a major change and not just a 'cutting down' on the poor food choices.  Skim milk was a staple in my meals and I have now cut it out completely as of yesterday. :-(  Sure hate to give up dairy, but I will do anything it takes to get rid of this acid.  Water is all I drink now with the exception of that occasional Pepsi which is becoming less appealing all of the time.
 
Don't you get 'hungry'?  You are correct when you say that a person has to be mentally prepared for this.  Your testimony is VERY inspiring and I do think that food plays a major part in getting over this curse.  Thanks again.

LIEF E
New Member


Date Joined Jul 2005
Total Posts : 3
   Posted 7/26/2005 9:03 PM (GMT -6)   
Searchin'
 
I'm glad you have found some hope in my experience.  If I can help just one person, my post has been well worth it! 
 
I'm glad you've stopped the milk,, a very, very good first step.  I'd say if you can ditch the pop, you are well on your way....  I know it is hard...  I was a 3 can a day'er.  Remember the carbonation + sugar is a killer.  A double whammy, if you will. 
 
Also, remember the greens, dark greens...  Eat lots...  I can't emphasize this enough.  Even today, if I miss this for a few days, a minor discomfort will begin.  Again, I'm no doctor and I've never taken a chemistry class; but the greens seem to neutralize the sugars.  Thus, they are a key component.  This was really hard for me, actually.  Since I don't think I'd eaten more than 3 servings of greens in my entire life before turning 27 years old....  But they have worked incredibly well for me.
 
Yep, chips, candy, cookies, bars, chocolate, breads, pasteries, beers, milk, ice-cream, soda, wine, all my very favorite things... and all so very bad. 
 
When I first started, I was hungry all the time... This went away partially in time.  But after I got through my first 6 months, when I started re-introducing some 'real' food.. things got better.  One thing I did learn is that hunger pains are often the result of dehydration.  So drink lots of water... 
 
Also, in terms of bread, you may, for awhile, consider spelt bread.  It's the other component of wheat.  A bakery called 'French Meadow' out of Minneapolis makes some fairly decent all natural breads... including spelt bread.  They often ship to health food stores and larger grocery stores (in the health food section).  You might want to check into this, as well.  As a warning, I wouldn't recommend any rice-based breads...  I think they might be the worst thing I've ever tasted.
 
Again, remember the greens, I consume 7 bags of Dole Romaine Bag Lettuce every week.  But any dark greens will work.  I chose the Dole Romaine because it was easy.  I also found that blueberries didn't bother me, kindof curbed by sweet tooth and later found they are a great anti-oxidant to boot.. 
 
If the doctors have found no reason for your problems, then food is everything... I am a true testiment to this...  In seven years, I had two barium tests, 3 GI scopings, a water motality test, an acid montoring test twice, was on every drug in the book at the time... Zantac, Pepsid, Propulsid, Reglan, Previsid, and on and on...  As an aside, one of those drugs they later discovered led to heart-valve problems in a large majority of the patients and was recalled.  Lucky, I didn't take it very long!  I quit the doctor route when they started recommending anti-depressants and sedatives. 
 
IF that sounds like your history, then the probability that food is your culprit is very, very high.  Unfortunately, this is hard to pin-point because the combinations of different foods is probably infinite.  Because this is difficult and complicated, most doctors will poo-poo any mention of food being a contributor.  They'll test you for allergies and stuff like that...  (Oh, yeah, I did that too with no results)  Likely your problem is sugar and carbs.. which is in almost everything.  So my advice is keep the end-goal in sight (relief and a life free of misery); resist every temptation to consume the bad stuff (stop them for even a few weeks, consider it a test)  and get yourself some greens! 
 
Take Care and keep me posted,
Eric
 
 
 
 
 
 

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 7/26/2005 11:12 PM (GMT -6)   
That's why I believe in fiber so much Eric. And Water. I think it helps your system to keep it flowing in the right direction so to speak. :) The veggies and the fruits that you are able to tolerate help as well. I, too, now watch my sugar intake due to diabetes and I've given up the colas, due to the caffeine and my GERD and Barrett's seem to be well under control.

Thanks for sharing!
Hugs, Teri :)
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


VV
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Date Joined Jul 2005
Total Posts : 1849
   Posted 7/27/2005 6:49 AM (GMT -6)   
Hello Everyone,
I also experienced trigger/allergy foods to be a big culprit w/me. I usually don't consume any carbonated drinks, coffee, tea, chips,cookies, tomatoe base products, whole milk, or ice cream and the list goes on and on. (Refined sugar seems to be a big no no)I pretty much watch everything I eat, but sometimes cheat a little w/problems later.

I could not imagine eating sour kraut at all, just seems like it's a trigger food for me. My sister uses it occasionally for weight reduction. I can't afford to lose a pound. I'm going to see a Nutritionist next week for weight gain. I'm trying lactose free ensure, drinking it very slowly, usually one bottle over the course of a day, because somehow I think it would bother me if consumed too fast.

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 7/27/2005 5:39 PM (GMT -6)   
Oh, I'm so sorry to hear this! I've had similar problems re weight issues and I tried the sugar free Boost (I think that's the name)- it actually tasted sort of good and didn't seem to bother my stomach. I sure hope this helps you!!

Take care.
Hugs, Teri :)
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


VV
Veteran Member


Date Joined Jul 2005
Total Posts : 1849
   Posted 7/27/2005 9:53 PM (GMT -6)   
Hi Teri,
Did you actually gain weight w/Boost????Thanks for the tip, will look for it tomorrow.




Vanessa

Searchin'
Regular Member


Date Joined Feb 2005
Total Posts : 70
   Posted 7/28/2005 9:00 AM (GMT -6)   
Vanessa - Hope the nutritionist will benefit you and help with your need to gain weight.  Keep us posted about your visit next week.  Keep looking forward. 
 Best regards, Searchin'

Searchin'
Regular Member


Date Joined Feb 2005
Total Posts : 70
   Posted 7/28/2005 9:14 AM (GMT -6)   
Lief,  Thanks for your post.  You are an inspiration to me.  I am going to keep your remarks front and center so I will be inspired to keep positive thoughts. 
 I am a fool if the right answers are there to this problem and I don't follow them.  Your success is because you have your head on straight.  It does take a lot of determination. 
 I read all of time where the foods we eat are the key to good health.  It's that old saying, "You are what you eat." 
 For me, the spirit is willing but the flesh is weak.  I have to really try hard.  Thanks again for sharing.  Best regards,  Searchin'
 

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 7/28/2005 8:33 PM (GMT -6)   
Vanessa, this was right after bypass surgery, so I didn't really gain any weight, but I held my own at the time.  Which was what I needed as I'd lost my appetite and was loosing so much weight.  Plus the nutritional value to it!
 
My best wishes to you!
Hugs, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


CathyA
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Date Joined Mar 2005
Total Posts : 1538
   Posted 8/10/2005 12:48 PM (GMT -6)   
Hi Sari,
How does your tongue look? I was just treated for "hairy tongue" with antibiotics, and now I think I have some yeast growing there too. With today's eating habits, like was mentioned above, it's easy for our digestion to get totally off balance. Our guts are sooooo important to our well-being.
I would suggest buying a really good probiotic and taking it every day. I've just recently started taking "Threelac", and we'll see if it helps. Can you eat yogurt with live cultures? I'm just wondering if you have a yeast problem. That can really make your mouth and throat burn too.
Also.......B vitamin deficiencies can cause that. I would look at your eating habits, and consider making some big changes. The diet that Lief mentions is a good one. We abuse our GI tracts soooo much. I would also suggest taking some B12 sublingual tabs to quickly get your B12 level up. The other B vitamins are important too.
Good luck!

jeannygrrl
New Member


Date Joined Aug 2005
Total Posts : 1
   Posted 8/17/2005 7:49 AM (GMT -6)   
Wow. You have no idea what a relief it is to hear that other people are suffering as I am! Not that I want anyone else to suffer :) I've been dealing with horrible burning throat pain since January and just got my latest negative test results yesterday and was really thinking I was losing my mind. Ironically my problem arose *after* I had made a lot of dietary changes including increasing fiber intake and cutting back on fats and sugars, but clearly there's room for improvement, particularly in the realm of dairy as I've been trying to have at least 3 servings a day as recommended for women in my age group. I do love ice cream but I'd give it up in a heart beat for some relief. Right now I'm just happy there might be something I can do and that this isn't just all in my head.

Norm1
Regular Member


Date Joined Jul 2005
Total Posts : 326
   Posted 8/17/2005 8:26 AM (GMT -6)   
Jennygrrl,
Some great posts here. Just a note: Many people as they are hearing carbs are bad and fat is bad (for GERD) end up cutting back on both. The result is you are starving your self. Most of your energy needs to come from either fat or carbs (you can burn protien for some of this energy). You need to consume sufficient quantities of fats or carbs for energy. My book provides documented evidence that fats are not the problem but carbs are. I recommend significantly reducing carbs but not fats. Do strive to consume healthy fats like liberal amounts of olive oil, fish (especially salmon), and avacados. Carbs need to be kept at very low levels at least for the first week to stop reflux. The good news is you can start adding carbs back after the first week, but no where new the levels typical in the USDA food pyramid. Write me if you want more details.

Thanks,
Dr. Norm

littlelulu
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Date Joined Jun 2010
Total Posts : 1
   Posted 6/7/2010 1:12 PM (GMT -6)   
Please see new thread started just for you by couchtater. Your name is in the topic line.  By making you a thread of your own you will have the opportunity to meet many of our members. 
 
Welcome aboard.
 
Kitt

Post Edited By Moderator (stkitt) : 6/7/2010 4:06:03 PM (GMT-6)

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