GERD DIET: Whats the point????????????

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tracks83
Regular Member


Date Joined Mar 2008
Total Posts : 149
   Posted 7/19/2009 5:23 PM (GMT -6)   
I have a disfunctional LES. Does not work. I have been on Nexium 40mg everyday for like 5 years. It seems like its not working anymore.  Than diet was brought up. If I'm on a empty stomach and drink water Im on fire. If ieat the foods recommended for gerd ( like there's that much) I'm on fire. So if I go out and get buffalo wings or pizza the pain is the same.From water to wings  the pain is the same...so whats the point??? Should I deprive myself of food I enjoy to end up with the same result either barrets or cancer? Should I go on for several years eating bland food to end up with cancer anyway.
The doctor keeps pushing this and I really dont understand why? Than the guy gives me a new drug called Kapidex. It just came out this year. I dont want to take something new. I dont know what side effects it has.  Nexium has been around awhile but to swtich to something new for long term...no way. Im switching doctors.
I asked for surgery he said no way. The outcome of surgery could be that I'll be in the same  situation im in right now or worst. reaccurance is high. So I have absolutley no options.
This disease sucks!!!!!!! How the hell did my LES go bad??? I am so pissed off. Since the visit to the doctor on friday I have had heartburn straight for 3 days even though Im taking Nexuim.
 

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/19/2009 5:56 PM (GMT -6)   
Hey there, this is Kitt.  I am sorry that you are so frustrated and upset.  I hope you feel better venting here.
 
Your choice to see a new physician seems wise to me as you are obviously not getting any satisfication from your current Doctor.
 
Should you  deprive yourself of food you enjoy to end up with the same result either barrets or cancer? Well if your  sure your going to end up with Barrets or cancer then I say go for it but if you are aggravating your condition with your food choices I guess I would back off a bit until I get that new Doctor on board.
 
Your right, this disorder is not one anyone would ask for but then most disorders and diseases are not anything any one wants.  Don't give up on hope.
 
We are here to support you.

With kindest personal regards,
Kitt
 
 

 
 

Kitt,
Moderator: Osteoarthritis, GERD/Heartburn
Anxiety/Panic, & Depression
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couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/19/2009 7:01 PM (GMT -6)   
Why did does he say no to surgery? What kind of disfunction do you have? confused
I have a very weak LES and my doctor says I need surgery. shakehead I'm going to do the Esophyx procedure as soon as I can get in contact with the doctor who does it in my state.
 
Joy yeah

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 7/19/2009 8:00 PM (GMT -6)   
Hi Tracks83,
I'm so sorry to hear you're suffering with GERD. Believe me, we've all been there. This forum is a perfect place for you to vent, ask questions, and get information from people who've "been there". I also had a GI doc who didn't help me at all. I was even hospitalized for a GERD/asthma episode, and honestly, his GI group did nothing for me. They didn't even intercede with the hospital dietary staff to get me meals that I could eat. I was having uncontrolled GERD/gastritis, and they were bringing me things like spaghetti and meat sauce!

That GI doc was very negative on the surgery option for obvious reasons. It is indeed not a perfect surgery, and the results are variable, and sometimes need to be redone. Unfortunately, for some of us it's a necessary procedure. That GI doc told me of other options (like the Esophyx, etc.) had not been around long enough, and weren't very effective. He said that most people who have the surgery are back on PPI's within 5 years. He did not even do any additional tests on me. He told me that I couldn't be experiencing the symptoms I was experiencing, and was no help when I asked him for advice in regards to medications that were easier on the stomach. (My stomach is very reactive.)

I fired that GI doc, and found one who would listen to me with respect, and actually respond to my questions and concerns. He did the prerequisite tests, and initially did not think I was a candidate for the surgery. After another two years of GERD symptoms, and more importantly the subsequent uncontrolled asthma I was having that was caused by the acid reflux, I went back to that GI doc. He did some more testing, and (with the input of my family doctor and asthma doctor) thought that perhaps I should consider the surgery. (I was on so many inhaled steroids and intermittent prednosone to control my asthma and help me breathe that I was having adrenal insufficiency, and symptoms that were very concerning to my physician. They were unable to control my asthma because of the constant onslaught of acid.

I know that my asthma story doesn't match your problem, but I am telling the story so you understand that for some of us, there is no other option. I was very fearful of the procedure, but found the recovery much easier than I had expected. I could end up requiring a redo because of the two months post op coughing due to the pre-op lung inflammation and infection that I experienced. It took time for the effects of the surgery to be felt. Unfortunately I'm afraid that I might have harmed the wrap due to the fact that I had to cough so much, and my internal tissue was compromised by the prednosone I was taking. It was so fragile that the surgeon had to place extra sutures to make up for it.

There are many people on this forum who have suffered with symptoms like yours. You are the one who has to make the decision as to how you will deal with your severe GERD symptoms, but surgery should not be rejected without giving the option some thought. While it is far from perfect, the surgical option has improved the lives of many people suffering from symptoms like yours. It sounds like you've tried lots of things to control your symptoms, and none have been effective.

Selecting a surgeon who is eminently qualified and experienced in the Nissen Fundoplication procedure is the most important thing you can do to ensure a positive outcome. Unfortunately there are many surgeons who agree to do the surgery, but do not have the skill to do it correctly. The horror stories you read about online are the result of improper procedures. Also, you should keep in mind that most people who have the procedure and do well aren't likely to seek out forums on the internet. They're off enjoying their lives.

I expect you'll be hearing from lots of people who have experienced symptoms like yours.
I hope you find the relief you're looking for.
Take care,
Denise

bummedbyGERD
New Member


Date Joined Jul 2009
Total Posts : 8
   Posted 7/26/2009 1:48 PM (GMT -6)   
H Tracks83,
 
I feel just like you.  I had my GERD under control for a couple of years but for the past couple of months nothing works to stop the pain/burning.  I'm not happy about giving up the foods I like - I always thought I was a healthy eater and drank alcohol and coffee in moderation but now I learn I have to give up both.  I'm not happy!!!  I also have IBS which has been under control with diet, exercise, etc for 15 years.  But it limits what I can eat - like bananas, sour cream, heavy cream - I know what will set me off.  Now I feel like there is a whole new list of things I can't eat - chocolate, citrus, tomatoes (I love a spaghetti dinner), chardonnay and coffee.  What's left???  I've been trying to do without all of the above for the past couple of weeks - with mixed success - and as I sit here I have a major lump in my throat and burning in my chest.  So, has all the sacrifice done any good?  No!!  Meanwhile, my husband is off enjoying himself at the bars while I stew about my upcoming endoscopy and change in lifestyle.  It's not like I've been a glutton - I am fit, athletic - but I guess that doesn't matter.  For whatever reason my LES decided to give up proper functioning.  Okay, time to stop venting.  Just wanted you to know I can TOTALLY relate to what you are saying.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 7/26/2009 3:26 PM (GMT -6)   
Hi BummedbyGERD,
This is a great place to vent. GERD is a tough thing to live with, and I know what you mean about the limited diet. I go to a restaurant and watch everyone eating and drinking whatever they want, and think to myself that they have no idea what GERD sufferers go through. But, such is life.

You're in a good place to receive advice and support. There are lots of people who are suffering or have suffered what you're experiencing. There is hope, though. There are medications and procedures that can help alleviate the pain you're experiencing.

I'm sure others will stop by and try to give you advice and share their experiences. If you have specific questions, be sure to start a new thread so people can see it easier.
Take care, and good luck!
Denise

NOGLUTEN
Regular Member


Date Joined Jun 2009
Total Posts : 22
   Posted 7/28/2009 3:17 PM (GMT -6)   
Tracks83,

What kind of diet do they recommend? I was having heartburn issues even on an empty stomach until I found out I had Celiac disease. I was not a good paitient however. My doctor just keep issuing me more and more pills to cover symptoms even though I kept insisting I would not consume pills to cover up my symptoms. I have not had heartburn since I gave up gluten and have not taken any of the medication my doctor insisted I needed. I was eating "comfort" foods such as pasta and bread just before my diagnoses because I continually had heartburn and stomach issues. Come to find out the comfort foods weren't so comforting. I have lost almost all confidence in doctors. It took a rash not goig away for 6 months to get a proper diagnoses. The dermatology clinic was more aware of Celiac disease than my primary doctor. I am now able to eat most of the foods I have avoided for years. As a matter of fact other than Gluten, I can't think of anything I avoid.

Good luck with your health issues.

Gabby123
Regular Member


Date Joined Jan 2007
Total Posts : 113
   Posted 8/2/2009 9:02 AM (GMT -6)   
My LES does not work properly at all, the nerve controlling it has been damaged.....so no matter what ive done, nothing seems to help.  I had the surgery also, the nissen fundo, which did not help me at all.  It took me 5 doctors before anyone would even consider doing the surgery on me.   If your esophagus does not contract properly they will not do the surgery on you because the surgery could make things worse.  And from my own experience the surgery was complete hell, I would never want to experience that horrendous pain ever again.  I have some sort of neuropathy in my stomach which has left my digestive tract crippled for many years.  I am so sick of this disease, somedays I just cry because there seems no end to this suffering.  I have lived with this for 6 years now.  Yes, even water gives me horrible heartburn.  I would give anything to be healed and normal.  When you arent sick u take your health and life for granted. 

amo
Regular Member


Date Joined Sep 2008
Total Posts : 70
   Posted 8/3/2009 11:18 AM (GMT -6)   

tracks83,

I have to agree with you. I had GERD for 18 years, meds quit working, it did not make any difference what I ate or drank, even water, I would have acid reflux. I went and had all the test and they found Barrett's. I had the surgery in October of 08 and presently I do not have any acid reflux or heart burn. The test showed I had an LES that did not work at all and I have very slow motility. I am going for another endoscopy this month to check on the Barrett's. I know it sounds bad, but my favorite foods are pizza, olives, cheese, and red wine. Well, good luck with your new doctor and diet. It is very nice to have a place where you can talk to people in the same boat.

amo


Marburg
Regular Member


Date Joined Mar 2006
Total Posts : 492
   Posted 8/3/2009 12:08 PM (GMT -6)   
Hi tracks83,

One of the things I learned from a cardiologist (who at one time worked with a gastroenterologist) and my GI doctor is to never skip a meal. What both doctors said is that your body gets accustomed to having meals at certain times. about an hour before the expect meal, the stomach starts ramping up the acid and will continue to pump out acid until it gets the expected food. He also suggested taking an acid buffer either before or immediately after each meal. This buffer is in addition to your prescription med. In my case when I am having a bout of GERD I take 2-4 oz of aloe vera juice before my meal and then chew 3 papaya enzyme tablets after my meal. I pick foods that are easy to digest. I also take a probiotic and eat activa yogurt which all seems to help. BTW--this also helps my IBS.

Marburg

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 9/11/2009 3:58 AM (GMT -6)   
Hi Laurie,
That's good information...I do notice that when I don't eat, my stomach bothers me more. It definitely feels better with food.
Denise

jules12345
Regular Member


Date Joined Sep 2009
Total Posts : 59
   Posted 9/13/2009 6:25 AM (GMT -6)   
FOR GABBY...maybe U can check the NEW surgery on Google-

MAGNETIC REFLUX SURGERY...BY LINX SYSTEM

My sphincter does not work either:(
I know how it feels like ...I have the same issue too...
I dont know but I am praying the FDA approves this surgery , and they put a magnet on my sphincter and finally, no more acids crawling back up...

GABBY...

do you take PPIs? they do really help...

do you eat foods that have no acidity in it, and are non-fatening or easy to digest

when you drink water, drink tiny zips
if you drink the h20 heavily, fast, the sphincter opens and does not close, the nerves get more damage or the muscle loosens more

when you eat, choose soft foods, chew little bites...try yogurt-like foods with low acidity

over 1 month, the sphincter nerves/muscles SOMETIMES somehow tiny-bit improve on these...plus the PPIS

also ive noticed when I put my arms up in the air, or walk fast, or climb stairs, the sphincter opens/loosens, it is when I reflux so I am avoiding body-involvement that would cause the sphincter to loosen alot

Ive also noticed that when I stuff my stomach, it loosens

When I sleep on my stomach, it loosens

always try to notice what loosens it and you reflux after it immediately...keep me posted please...I am praying for you and everyone with this...I am living a nightmare.

goodluck

phixgrrrl
Regular Member


Date Joined May 2005
Total Posts : 229
   Posted 11/14/2009 9:54 PM (GMT -6)   
What causes a weak LES? I was originally put on a PPI b/c I was told I had acid in my larynx--I felt this feeling like I was gonna vomit all the time; no heartburn or any of that. Now that I'm on it, if I stop for 2 days, I get major reflux...even diarrhea with it. So the meds CAUSED my "reflux" to get worse.

Anyway, they're assuming my LES is not working right. Is there a way to actually look at it and know for sure? I have no idea what would cause MY weal LES, except maybe my taking of Prozac.
When I asked my gastro about this, he said there's no way to see if it's weak with an endoscopy. Um, huh? Why the hell not?

He wanted to do surgery on me and I said, "hmmm, yeah I don't think so, EVER!" He seemed uninterested in any natural remedies. He said "as long as these meds work, why not take them?" Let's see...b/c they ruin your gastro system! Where do these quacks study?/

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 11/15/2009 8:56 AM (GMT -6)   
phixgrrrl,


Gastroesophageal reflux disease (GERD) is a digestive disorder that affects the lower esophageal sphincter (LES)--the muscle connecting the esophagus with the stomach.



Some doctors believe a hiatal hernia may weaken the LES and cause reflux. Hiatal hernia occurs when the upper part of the stomach moves up into the chest through a small opening in the diaphragm (diaphragmatic hiatus).



Certain foods and beverages, including chocolate, peppermint, fried or fatty foods, coffee, or alcoholic beverages, may weaken the LES causing reflux and heartburn. Studies show that cigarette smoking relaxes the LES. Obesity and pregnancy can also cause GERD.



There is much information here in the forums that you should find helpful.



I am sure you will be hearing from others here in the forum re your questions.



Take care,

Kitt

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/15/2009 9:32 AM (GMT -6)   
There is lesser evil surgery for acid reflux. It's called EsophyX TIF.
There is no cutting involved. They enter by your mouth and staple your stomach around your esophagus. Less pain, less healing time.
I'm going to get evaluated for the surgery in two weeks. I chosed this because I'm a whimp when it comes to pain.

Please find a doctor who can do this for you.

Joy
Health problems: sleep apnea, hypothyroidism, GERD, glaucoma, OA, environmental, food, and drug allergies, asthma, high cholesterol, pre-diabetic
Medications:Nexium 2X a day, 300mg Zantac, K-Dur, Lasix 2X a day, Zyrtec, Zocor, Lumigan, fish oil, B12, Substex, calcium + D, Advair, Albuteral, nebulizer
 
I don't suffer from insanity, I enjoy every minute of it!
 
 


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 11/17/2009 9:40 AM (GMT -6)   
I was dx with GERD 7 years ago and have been on PPIs since.  I was told at the outset (and I believe it), diet does not have a great deal to do with the GERD associated with a dysfunctional LES.  Your stomach will produce the same amount of acid with a sip of water, as an actual food item.  That being said, I have found that there are certain foods that can aggravate my stomach, particularly the heavier meals.  they don't really produce more acid, but the reflux definitely gets worse. 
 
Overall, I eat what I want, but I limit the heavier food items to much smaller portions.  Still taking nexium and zantac, and was told I would have to continue for life (I'm 41).
 
Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Lupus
Current Meds: Enbrel, Methotrexate, nexium, tramadol, nasonex, Nifedipine, Folic Acid, Tylenol PM


Nolique
Regular Member


Date Joined Nov 2009
Total Posts : 43
   Posted 11/19/2009 1:43 PM (GMT -6)   
I am so glad to find this website!  I was just diagnosed with Esphogitis and gastritis.  I had my gall bladder removed 4 years ago and have given up gluten/wheat, alot of dairy and now all the acidic foods!  I feel like it's such a challenge to find foods to eat (especially when going out to dinner).  My doctor has put me on prilosec. I have heard that it is not safe to take for a long time.  Do you guys know of any natural alternatives to medications?  Does apple cider vinegar work?  My biggest regret was getting the gall bladder out, it has ruined my digestive system.  I now have to take the hida scan to see if this is all bile related?  Any advice?
 
I am glad that we can all understand what this is like!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/19/2009 4:58 PM (GMT -6)   
Welcome, Nolique.

I ,personally, am scared to put more acid in my stomach, so I've never tried apple cider vineger.
Another poster on here has gall bladder troubles, maybe she'll come along and discussed this with you.
I'm going to have the newest surgery for acid reflux...EsophyX TIF. Have you discussed surgery options with your doctor?

Joy
Health problems: sleep apnea, hypothyroidism, GERD, glaucoma, OA, environmental, food, and drug allergies, asthma, high cholesterol, pre-diabetic
Medications:Nexium 2X a day, 300mg Zantac, K-Dur, Lasix 2X a day, Zyrtec, Zocor, Lumigan, fish oil, B12, Substex, calcium + D, Advair, Albuteral, nebulizer
 
I don't suffer from insanity, I enjoy every minute of it!
 
 


Nolique
Regular Member


Date Joined Nov 2009
Total Posts : 43
   Posted 11/19/2009 5:12 PM (GMT -6)   
Hi Joy!
 
What exactly happens with that surgery that you are having?  It sounds better to fix gerd permanently then to live on meds. for the rest of our lives!  Do you know any of the side effects of prilosec over time?  I hope that your surgery goes well!
 
Nolique

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/19/2009 5:24 PM (GMT -6)   
They go down your throat with a special scope and "staple" the top of your stomach around your LES. There's a website about the surgery and video on youtube. Just type in EsophyX TIF.
It takes about and hour to hour and a half to perform. I'm excited about the prospect of stopping my cough and getting off the medications.
I've heard that long term use of of PPI can cause bone loss due to the fact your body needs acid to absorb Calcium.

Joy

redfreeman7
New Member


Date Joined Nov 2011
Total Posts : 3
   Posted 6/26/2012 11:00 AM (GMT -6)   
there is a lot of point to a diet... i have had GERD for years and have cured myself with a diet. some basic advice:
General Advice for GERD Sufferers.
Avoid foods that precipitate heartburn
Avoid large meals
Eat smaller meals more frequently
Eat slowly
Chew food properly
Avoid lying down for 3 hours after eating
Avoid going to bed for 3 hours after eating
Let food and drinks cool before consumption
Take care with alcoholic drinks
Lose weight if overweight
Wear loose fitting clothes around abdomen
Stop smoking
Sleep on your left side
Elevate the head of the bed
Take acid suppression medication before vigorous exercise
see this site for more info:
good luck ben and thanks for a great forum http://gerddiet.co/gerd-diet-general-advice/
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[url]http://www.gerddiet.co

sorry about the number of links i don't know how i did this!

Post Edited (redfreeman7) : 6/26/2012 11:24:54 AM (GMT-6)


redfreeman7
New Member


Date Joined Nov 2011
Total Posts : 3
   Posted 6/26/2012 11:12 AM (GMT -6)   
If you are following a GERD diet you should avoid large meals, eat small meals frequently, cut down on fatty food and not eat within 2-3 hours of bedtime. Keep a diary or mental note of foods eaten and their effect. If you are following an acid reflux diet this will help to decide which foods are causing the problem. With an acid reflux diet, avoid acidic foods, spicy and hot foods. Also avoid extremely hot foods and drinks. Let foods and drinks cool before consuming them. Drinking very hot drinks has been shown to correlate with gastric and duodenal ulcers and should be avoided when on a reflux diet.

Jonh71
Regular Member


Date Joined May 2012
Total Posts : 121
   Posted 6/26/2012 11:46 AM (GMT -6)   
Good info I never knew that hot drinks corellate to issues, I have big problems with warm drinks when having reflux they result in a lot of pain.
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