GERD-ACID REFLUX-DIAPHRAM HELLLPPPP

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RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 8/5/2009 1:19 PM (GMT -6)   
Hi Everyone,
 
I'm new to this chat and writing in for my husband that is suffering with his Acid Reflux.  He's has to take Nexium every single day in order not to get severe heartburn.  They're saying he's to young for surgery (36) and he has to live like this until it gets worse.  But what's worse? He can't eat anything without throwing it up and now he's having breathing trouble.  He feels his chest is closing in on him.  Has anyone been through any of this??? I don't know what to do anymore.  I've tried moderating his diet and nothing!!
 
He's got an appointment again today with the gastroenterologist and I'm going to let them have it good!!!!!
 
Please ....any advise ....I truely appreciate it.  My heart aches to see him in so much pain and discomfort.
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Bowl resection/Stoma repair June '08
6ft. intestine left
Currently trying to learn about the "new me"


dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 8/5/2009 3:29 PM (GMT -6)   
Hi Rita,
So sorry to hear that your husband is suffering so with GERD. I don't understand the "he's too young" argument. They do this surgery on infants and children. I've hear, "too old", too--from a woman in her early 50's. Their theory is probably that it won't last a lifetime if he gets it at age 36, but that shouldn't deter him. There are many people on this forum who have had re-dos, so it can be done. At first I thought redos had to be done with an open procedure, but have found out recently that it is routinely done laproscopically.

I had the surgery in February, and wouldn't hesitate to have a redo if it was necessary. (I'm 57, and had the surgery because the GERD was causing my asthma to be out of control. What a wonderful relief to be able to breathe and not cough up tons of mucous every day.)

It sounds like he needs to shop around for another GI doc. Has he had any tests done? Traditional ones are the endoscopy, 24 hour PH monitor, barium swallow, sometimes a stomach emptying test, and manometry. I had a GI doc who was not helpful--he wouldn't listen to my experiences and take me seriously. I fired him, and found a GI doc who respects me and listens to what I'm saying. He also worked well with my family and asthma doctors--suggesting the possibility of surgery, although my test results didn't indicate a traditional level of GERD symptoms generally indicating surgery.

You're in a good place, Rita. Your husband deserves better--the surgical option is something to be considered. He's definitely not too young. I'm sure he doesn't want to live with the difficult symptoms he's experiencing, so he needs to be proactive--searching out physicians who will take him seriously and really help him.

If he decides on surgery, then the most important thing to do is find an excellent and extremely competent and experienced surgeon. The surgeon he chooses is the absolute most important piece of the puzzle. The surgeon has to be experienced SPECIFICALLY in laproscopic Nissen Fundoplication.

I hope you and your husband find an answer to his health issues soon.
Stick around this forum, and I'm sure you'll get lots of responses from other experienced members. It's a very supportive forum, and we will all be your husband's cheerleaders as he searches out an answer to his problem. yeah yeah yeah yeah yeah

Take care, and welcome!
Denise

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/5/2009 6:37 PM (GMT -6)   
Hey I'm only 41 and I need surgery. Tell him it will never get better if he don't do something soon. My aunt was the same way and she has a nissen, she was 62. My doctor's nurse's 17 year old daughter just had it done last year.
 
If he's worried about the "Cutting" of a nissen. Think about the possiblity of the EsophyX procedure. They go down your throat with a special scope and "staple" your stomach to your esophagus. There's less healing time and no stitches :-)
 
Joy yeah

griffdawg
Regular Member


Date Joined May 2009
Total Posts : 247
   Posted 8/5/2009 8:34 PM (GMT -6)   
im 22, and my surgeon who is setting the date for my surgery told me thats at my age im perfect to have it done and hopefully never see him for another 10+ years...! there's hope so hang in there!:D

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 8/5/2009 9:46 PM (GMT -6)   
Got to chime in here! I hate it when doctors tell people they are too old or too young for this or that. Everyone is different. I had my first Nissen when I was 35 and should have had it a couple years sooner than that. I had a revision done at 38 because the first was done wrong. Fire that doctor and go find someone who really understands this disease and is willing to help. If there is a good teaching hospital in your area check them out.

Take care,
Bill

mariex800
Regular Member


Date Joined Mar 2009
Total Posts : 171
   Posted 8/7/2009 12:30 AM (GMT -6)   
Hi RITA and everyone,
Hope everyone are doing well tonite.
 
Rita, one of my GI dr. told me that I am too old for surgery. I am 40.
I told him about my problem acid reflux- I have bad reflux and none of the med control my symtom.  He say surgery is for young people because young people have many years to live and enjoy life. He told me to take more and more med - add more stronger and stronger dose until it stop reflux.  I didn't go back to see that dr.
 
Everone on this forum are so cool  and  told me to get a 2nd opinion.
I did - I went to a specialist.
 
I went to see another specialist. I told my new GI about the incident and he laugh at it. The new GI dr. put me on 24PH test, and other tests.
Next, he recommand me surgery since none of any med work for me and that my reflux is sever.
 
I haven't had the surgery yet. I am on the waiting list - waiting for paper work, etc...
 
Rita, I hope your husband get a second opinion from another GI.
Don't listen to any dr. that say you are too young or too old....
I think some dr may have their screw loose and need fix themself ...
Take care.
Marie
 

Post Edited (mariex800) : 8/6/2009 11:54:11 PM (GMT-6)

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