feeling bad after hiatus hernia surgery

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

rebecca16
New Member


Date Joined Aug 2009
Total Posts : 7
   Posted 8/19/2009 6:40 PM (GMT -6)   
I had a hiatus hernia repair a week ago . I wanted a fundoplication but the Dr wouldn't do it because my reflux had been atypical. He said the fundo would give me more problems. Since the surgery I have had ten times more acid and have been chocking at night even thought the Dr said the surgery had been succesful, at the hospital. I am realy scared that the Dr won't do a fundoplication and am worried that I will stay like this for the rest of my life. My acid symptoms are now very typical with strong acid whereas before I had more non acidic reflux. I have lots of pain in my throat.  I have restarted medication which controls the acid somewhat but leaves me with the most awful tasting non acid reflux 24/7. I can.t see the Dr for follow up for several weeks and am getting very depressed. I may now have to take a year off my university course. My 3 children have been negatively affected by this as I have been ill for over two years and am so depressed. I am struggling to get through each day because I feel so down because of this.This operation was my one chance of recovering and it does not seem to have worked. Does anyone have any advice or has had a similar experience to this. Also does anyone have acid reflux 24/7 instead of just around meal ties.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/19/2009 7:23 PM (GMT -6)   
According to my doctor I have it 24/7, but I only cough constantly with a bad taste in mouth. I understand the frustrations you are having. What is atypical about your reflux?
Have you tilted the head of your bed?

Joy

rebecca16
New Member


Date Joined Aug 2009
Total Posts : 7
   Posted 8/19/2009 7:39 PM (GMT -6)   
Thx for your reply. Yes I have done that, it seemed to help a bit at first.. He reckons my reflux is atypical because I have some ibs symptoms and the acid has been more non acid reflux which gives me a constant horrible taste without so much burning. This has all changed completely since the op. Now I have severe burning acid . Strangely the ibs symptoms seem to have improved, maybe because my stomach is now in the right place. Do you use medication for your reflux?

rebecca16
New Member


Date Joined Aug 2009
Total Posts : 7
   Posted 8/19/2009 7:42 PM (GMT -6)   
Thx for your reply. Yes I have done that, it seemed to help a bit at first.. He reckons my reflux is atypical because I have some ibs symptoms and the acid has been more non acid reflux which gives me a constant horrible taste without so much burning. This has all changed completely since the op. Now I have severe burning acid . Strangely the ibs symptoms seem to have improved, maybe because my stomach is now in the right place. Do you use medication for your reflux?

LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 8/19/2009 8:00 PM (GMT -6)   
Rebecca, welcome. We'll help you as much as we can! I too, had atypical symptoms, but symptoms aren't the driving force here; it's the results on the testing that are more telling. Have you had a barium swallow, a 24 hour ph or a bravo?, a manometry? These are all important indicators on the function of the lower esophageal sphincter.

Are you now on a PPI? if not, contact your Dr., they should be able to prescribe something over the phone.

My initial thought, though, when I read your post, was find yourself a new Doctor! You do not deserve to be treated this way! What area of the country do you live in? I had my surgery done at Cleveland Clinic and I was treated with a great deal a respect and consideration, but they do want to do their own testing. You say you are going to school, which University?, is there a medical school and university hospital affiliated with it?

You will find that most of us have been dealing with chronic illness for many years, and one thing that we have all learned is that there is always hope! You say this was your one chance, I'm willing to bet that it isn't, you just have to find the right doctor to make you better.

The children will be okay, they're worried about their Mom. If you have a family practice Dr. you need to make an appointment with him/her and speak with them about finding a new GI DR and about helping you with your depression. You need to do this for your family, but more importantly, for yourself!
Janice

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 8/19/2009 8:36 PM (GMT -6)   
Rebecca-
I have to agree with Janice. My first thought was also fire that doctor and find a new one. That is no way to be treated and I am not sure that doctor truly understands this disease. My first Nissen was done wrong and it took me 3 years to get it done right. I ended up going to a university teaching hospital and things are great now.
I also recommend seeing your PCP and let him/her know what went on and what is now happening. Whether your symptoms were atypical or typical shouldn't have mattered if you had problems the doctor should have addressed them.

Take care,
Bill

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 8/19/2009 10:12 PM (GMT -6)   
Hi Rebecca,
I second Janice and Bill's conclusion that it's time to consult with a different GI doc. You do not need to be depressed...you can still get help for your symptoms, so don't give up hope. If you have a good family doctor, it would be good to make an appointment and discuss your symptoms.

I had very atypical symptoms--even the testing didn't show that my GERD was as severe as most Nissen Fundoplication candidates have. My problem was severe asthma, and it took a long time before I got the support and courage to have the surgery. I'm so glad I did. Finally, I'm breathing easily, and not coughing up mucous constantly.

This forum gave me the information, support, and encouragement I needed to move forward with surgery and my recovery.
We'll be here for you, and try to support and help you as much as possible.
I wish you lots of luck. Don't give up or get discouraged. You will find help!
Take care,
Denise

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/20/2009 4:56 PM (GMT -6)   
I take 2 @40 mg of Nexuim and a 300mg of zantac a day. Please find someone better. If you are in GA or one of the neighboring states contact my doctor: Dr. Vito John Bagnato. He can set you straight.

Joy

rebecca16
New Member


Date Joined Aug 2009
Total Posts : 7
   Posted 8/20/2009 6:43 PM (GMT -6)   
Thanks for all of your replies. It is so nice to speak to people who have been through this. I had two ph studies done and an endoscopy and barium study. I also had a manometry which showed slight dismotility.The pressure of the les was in the lower end of normal. The ph studies did not seem to show much reflux except at night and showed more non acid than acid reflux. The barium study and the endoscopy however clearly showed reflux. I think your right about finding another Dr and I am feeling better tonight that I am going to do something about seeing my gp to arrange this. Im not sure if my university has a teaching hospital but I know there are nursing students so it may be worth looking into it. Thanks for your recommendations about the doctor but I am in the UK. I think in the states you have a better and more advanced system. I've been taking omeprazole and pepcid but this non acid reflux is a big problem because the taste is so horrible. Does anyone else have non acid reflux on ppis. Thanks for your replies, I really appreciate it.

beareilly
Veteran Member


Date Joined Mar 2009
Total Posts : 553
   Posted 8/20/2009 6:44 PM (GMT -6)   
hi rebcca, I am with our gang here a 2nd opinion wouldnt hurt good luck
B
 
Hi GUYS!!

LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 8/20/2009 6:55 PM (GMT -6)   
Hi Bea!! Hail, Hail, the gangs all here!!! (oh yeah, I'm from Michigan..forget I said that!!)

We had someone from the UK before, does anyone remember who that is? I'm sorry Rebecca, my brain is old!!

Truly, though, don't give up, don't despair, there are better doctors and ways to help. I didn't have Non erosive reflux, so I'm not the right person to ask but someone here may know!
Janice

beareilly
Veteran Member


Date Joined Mar 2009
Total Posts : 553
   Posted 8/20/2009 7:07 PM (GMT -6)   
my brain is dead too. it must be becuz i will be 45 in oct.st johns wort any1 lol
b
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, July 16, 2018 5:57 AM (GMT -6)
There are a total of 2,981,914 posts in 326,942 threads.
View Active Threads


Who's Online
This forum has 161795 registered members. Please welcome our newest member, onm86975.
312 Guest(s), 6 Registered Member(s) are currently online.  Details
DianeB, tickbite666, Jerry_Delaware, onm86975, fiddlecanoe, Noggin2u2