New Diagnosis - Achalasia

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Uncle Leo
Regular Member


Date Joined Jul 2009
Total Posts : 32
   Posted 8/24/2009 7:18 AM (GMT -6)   
Well, when my GI saw the film he said I have a classic case of achalasia. that's when the LES won't open up to allow food in.   He's gong to do an endoscopy next monday to confirm it's not something else like cancer, etc, but he's recommending I have a heller's myotomy.  It's where they cut the muscle on the esophagus to relieve the pressure, and then they do a partial wrap to avoid the reflux.  The surgery would be done laproscopically.
 
It's one of those diseases/disorders that only about 1 in 200,000 get (why can't I be that lucky in the lottery!)
 
There's also the balloon dilation, but I hear most people have to have several, and often end up doing the surgery anyway.
 
anyone here been diagnosed with achalasia?
 
 

Spasms are bad...


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 8/24/2009 9:16 AM (GMT -6)   
Hi Uncle Leo; I'm a mod from a different forum, but I wanted to let you know my mother has Achalasia. It's a tough thing to have, and she is basically drinking  Ensure to get most of her nutrition. She decided she did not want to have any surgery or anything to help relieve the problems...she thought the surgery details were more than she wanted to deal with. Let me know how you are doing, and if you have a lot of problems with eating/swallowing. What types of foods can you eat?

Carol

Remicade - will have my 30th infusion on September 2 
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 8/24/2009 9:43 AM (GMT -6)   

Good Morning Uncle Leo,

I am glad to hear you finally have a dx and a way to treat the Achalasia.

I hope you have bought that lottery ticket as 1 out of  200,000 are good odds for winning the big jackpot.  I know how unfair this seems to you so please know you have my support.

Gentle Hugs to you,

Kitt


Uncle Leo
Regular Member


Date Joined Jul 2009
Total Posts : 32
   Posted 8/24/2009 12:13 PM (GMT -6)   
Hi Lonie,

My GI said the older you get the less they recommend surgery. your mom may find relief (at least temporary, from botox injections. She may want to ask her gi about that, it's done during an endoscopy, so it's a fairly simple procedure she can have more than once.

I have had a lot of problems swallowing, and there is no rhyme or reason... obviously, the softer foods are a bit easier, but when I'm stressed (like when I had to discuss my findings and options with my doctor last thursday) I can't even swallow water! I've lost almost 50 lbs now in less than a year. My doctor told me I should drink ensure also in order to get some calories in me.

One thing that did help me a bit was acupuncture! While it hasn't gotten rid of the achalasia, it has improved the symptoms dramatically. I was miserable a month ago, and now at least I can eat some. I still feel the food getting stuck, but I eventually feel it go down (again, unless I'm really stressed!)

All the best to your mom, I know what she's going through! I'll let you know how it goes for me.

Kitt,

Thanks for your support as always! It IS good to finally know exactly what I have, but it is depressing to find out it's an uncommon disorder...so much that it was actually missed months ago!

I wonder if eventually they can add a forum for other not so common digestive disorders? Achalasia, Esophageal spasms, etc? I've found another forum for people with achalasia, but it's not as active as this forum!

Thanks,
Leo
Spasms are bad...

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