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BGdancer2010
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/17/2009 7:58 AM (GMT -6)   
Hi,
I am a 17 year old female with GERD.  We are not sure what the underlying cause is though.  For someone my age, it is usually caused by a hiatal hernia or ulcers, but my endoscopy showed neither.  I have take large amounts of antacids, H-2 Blockers, and PPIs and none of them help.  I have had this problem for almost 2 years and it is getting worse.  I am a professional dancer, but we have already ruled out the dancing being the cause of this.  I can not quit dancing, it is everything to me, so what do you suggest?  How do I get past this?

rlopez75
Regular Member


Date Joined Jul 2009
Total Posts : 199
   Posted 9/17/2009 9:28 AM (GMT -6)   
Hello BGdancer2010, and welcome to this great and informative board. Here you will find information and be prepared to ask your doctor specific questions and some time sugest to him/her tests that have helped others find the cure they needed.
 
I'm really sorry to hear about your problems at such a young age. You have the rite attitude by not givivng up dance especially since it means that much to you. You will need something to focus on through this little journey. I want you to know that your not alone and there is plenty of ways to treat this desiease to get you back to enjoying life.
 
 
An endoscopy can be helpfull to find ulcers and in my case it was the first procedure that showed my eroded esophogus and my hernia. What it cant tell is if you have a leaky Lower Esophagial Sphincter(LES). That may be the cause of why you are getting the reflux. If you havent allready, find a GI specialist who can do the necessary tests to see if that is the problem. They can order you to have a barium swallow which simulates the swllowing of food. They do this with you on an xray video machine and it records the movement of the barium through your upper GI systmem. They can see if and how much comes back up. They kind of shake you around and have you lay flat and on your sides as you swallow to try and simulate reallife scenarios.
The other test is a Motility test. This test is very acurate at measuring the oressure of your LES. If your LES in not working properly the Specialist can then decide how they need to treat you. If its severly defective then surgery will be the answer. I had the surgery 5 and 1/2 weeks ago and I can tell you first hand that its very much worth it.
 
Allways keep in mind that doctors work for you and some times you have to push them to perform the necessary tests. If they dont seem to be intrested in helping you them find another one. When you get test results, ask for them in writing or get copys of the results. This will allow you to take them to another doctor for a second opinion with you having to explain what was done and what the other doctor told you. Some people have found that doctors some times mis interpret tests results.
 
 
I hope my reply helps answer some of your questions. Please feel free to ask as much as you can. You can also read through some of our posts to see what our progress after surgery is like. Its different for every one since we are all unique, but this disease doesnt discriminate. I have read on this forum about infants having the surgery so if it gets to that point know that you will carry on afterwards better than ever for the rest of your life.
 
 
I'm glad you found us. You seem to have a great attitude for dealing with this at such a young age. Just know that you will get past this. Its just a bump in the road. :-)

kitri27
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 9/17/2009 10:00 AM (GMT -6)   
Hi BGdancer2010,

I am a 18 year old ballet dancer in professional track program in a major ballet school on the east coast. I began having medical problems when I hit puberty and to date have been diagnosed with multiple food allergies, asthma, IBS, Raynaud's disease, and a heart arrhythmia, as well as complications from these conditions. I had a successful surgery in December 2008 to correct the heart arrhythmia and have endured so many different medical tests I've lost count. I know how agonizing it can be to be ill and not know why, especially at an age whe not that many people have these problems. For me it was particularly hard when I was so sick I could not dance. Dance is my life and it felt as though my life was disintegrating. I am currently on five different prescription medications, but healthy, and my doctors have told me there is no reason why I should not be able to have a professional ballet career. Although it was awful going through all those experiences I am now so deeply grateful for every day that I live and dance.

Hang in there and keep dancing!

BGdancer2010
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/17/2009 1:29 PM (GMT -6)   
Thank you guys so much, your support means so much to me. Today I had blood work and an ultrasound and should get my results of that and the biopsy from yesterday within a week. It is good to know that I am not the only person out there having this problem! As for pushing the doctors, that is my next step. After my clean endoscopy, my doctor just told me that basically it could be nothing (which by the way makes no sense what so ever because if it was nothing, then why doesnt it go away). I dont want to give up becuase I can not keep trying different medicines for the rest of my life! I really hope that there is a reason behind all of this :( Dance becomes harder and harder but I will definitely suggest the Barium Swallow at my follow up appointment. I am afraid that he and my mother no longer believe that there is a problem...I wish I knew what to do. Thank you guys again for your support and suggestions. I will stay updated :)

k9lov3r
Regular Member


Date Joined Nov 2008
Total Posts : 230
   Posted 9/17/2009 2:39 PM (GMT -6)   
Keep us posted on what happens. People who have never suffered from serious reflux issues do not understand the pain that this condition causes and how it interfers with our dajly life. People think oh you have heartburn is that all. I recently had the nissen fundoplication and am very happy at the results. Don't give up keep pushing untio you get someone who will listen to you an dhelp you
Take care Mary

rlopez75
Regular Member


Date Joined Jul 2009
Total Posts : 199
   Posted 9/17/2009 2:45 PM (GMT -6)   
Some times we forget that though they may be very educated in their fields, doctors can some times be stumped when it comes to diagnosing something they have never dealt with.


I was lucky enough to find a General Practitioner that promised me he would not give up untill he "fixed me" from my "mystery illness". After checking evry other oragn in my body, He sent me to a G.I. Specialist that didnt believe that I was in so much pain "because young people dont suffer from hernias". He had never encounterd someone my age, 34, with a Hiatal Hernia. He later said all his patients with a HH are 50 or over. So just because he hadnt encounterd that it didnt meen that I was ok. It didnt meen that he didnt care eather. Some doctors dont like to think out of the box and those are the ones you have to push and sugest things that have worked for diagnosing other people.

I drove my G.I. Specialist crazy by visiting him up to 3 times a week untill be got the ball rolling. He orderd the Motility test but wasnt too happy because he thought he was wasteing our time......and it concluded my LES was severly damaged and needed surgery.

BGdancer, have your mom read through this forum so she can see the different forms and symptoms this desiease carries with it. One test is never enough. My barium swallow didnt show my hernia, just the reflux. My CT showed a small hernia.

Rafael

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/17/2009 5:26 PM (GMT -6)   
Welcome dancer,
My GERD symtom is just an aggrevating cough that won't go away. Once in awhile I'll have some burning, but it's rare.
I went through three doctors before I was finally told it was severe GERD.
The motilty study is not the most favorite of the tests but it's very important in finding how your esophagus and LES works.

If you are worried about the Nissen, there are other options out there: EsophyX TIF and Linx.

Good luck.

Joy

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 9/17/2009 5:38 PM (GMT -6)   

Welcome BGdancer2010 and kitri27

I am Kitt and Dancer you have met some of our great members plus a brand new member who has posted a warm and wonderful welcome for you as a fellow dancer.  That warmed my heart to see another dancer reach out to you. :-)

I hope this next week goes by quickly and you have the results of your tests.  Do continue to be your own best advocate and seek a second opinion if you do not get the answers you are looking for.

Again a warm welcome to HealingWell.

Kitt


 

Kitt,
Moderator: Osteoarthritis, GERD/Heartburn
Anxiety/Panic, & Depression
*~*
http://www.healingwell.com/donate *~*
"When you find peace within yourself, you become the kind of person who can live at peace with others."
DX: Anxiety, Depression, Osteoarthritis, GERD, Raynaud's syndrome, Skin Cancer and  IBS

Not a mental health professional of any kind


BGdancer2010
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/17/2009 7:56 PM (GMT -6)   
Thank you again guys for the warm welcome :) I am going to try to schedule my next dr. appt (the follow up for my tests) next week before my show gets started. I am thinking about looking into another doctor, I will check the ratings on the other doctors in town and find one to guarentee me a cure. I mean, for goodness sake, I am 17, I am still a minor and I can not deal with this the rest of my life! I will definitely suggest the motility and barium swallow at my next appt. If you guys have any other suggestions as to lifestyle changes and what not, please let me know :)

griffdawg
Regular Member


Date Joined May 2009
Total Posts : 247
   Posted 9/18/2009 8:35 PM (GMT -6)   
i feel the same as you did, at 22, every doctor i saw laughed and met old me i had heart issues.. anxiety issues, it was all in my HEAD. I finally got a good doc and a good gi doc (though ive only seen him once), they ran tests, and boom my les is defunct and havign surgery on sept 28th, week from mon to hopefully fix most of my problems (most heh lol).
we're all here with ya dn let us know how your doing:)
griff

kitri27
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 9/19/2009 2:27 PM (GMT -6)   
Thanks for the welcome stkitt! I'm really happy to have found this forum, as I don't often encounter people (especially people my own age), who can relate to my health problems. I can't tell you how many times I've heard the phrase "Well, you exhibit the symptoms of (blank), but it's very rare in someone your age". So just because it's rare I automatically don't have it? rolleyes

BGdancer2010
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/19/2009 9:09 PM (GMT -6)   
I know exactly what you are talking about!!

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 9/19/2009 11:02 PM (GMT -6)   
Dancer-
My GERD started when I was about 18 or 19. My son has symptoms that started when he was 17. He is on Aciphex now. I have heard of much younger people having this also. I hope they can get to the bottom of this soon.

Take care,
Bill

BGdancer2010
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/20/2009 12:44 PM (GMT -6)   
I really hope that they can too! My boss said that she was having all of the same symptoms as I am, and it ended up being her gallbladder. They removed it and she has never been better! She also is giving me the number of her doctor because she said that he will not give up and will figure out what is wrong, unlike the idiot doctors out there who could care less. A few more days until I get my test results, wish me luck :)

cez
New Member


Date Joined Sep 2009
Total Posts : 16
   Posted Yesterday 9:10 AM (GMT -6)   
@BGdancer2010:

I do hope that your diagnosis is that simple and not something more chronic. I'll be praying for you. Keep dancing!

@griff:

So true for me, too! I was put on heart medication for 10 years even if it didn't help. It felt like they were just humoring me cause I kept complaining. They keep saying the words psychosomatic and idiopathic! Finally the last cardiologist I went to made exhaustive tests and told me not to see him again and to stop taking the meds because my heart and lungs are healthy :) That's how we started to put together my other ailments and the breathing problems and came up with GERD and IBS. Now I'm trying to convince my husband to allow me to have surgery. He's a surgeon but still says a flat out NO!
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