Tracheal Stenosis surgery soon... anyone else have this done?

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Digidawinwa
Regular Member


Date Joined Nov 2009
Total Posts : 23
   Posted 11/9/2009 12:38 PM (GMT -6)   
I just found this forum as I searched for throat stenosis in GOOGLE.. :)   I will be having my narrowed throat operated on in about a month.. haven't scheduled the surgery just yet but will this week. 
 
I'm scared to death.  Could possibly be trached and it could be permanent!  :-o  was just wondering if anyone in here has had the laser/dilating surgery done.  The narrowed spot is right by my vocal chords and they 'think' it's caused by GERD... been on Nexium since 2005 and am now gonna try Prilosec.  tried them all back in 2005 but didn't give Prilosec a good try.  Nexium doesn't seem to be working anymore. 
 
I had an attempted surgery on Oct 8 but the doc couldn't get to the spot so he referred me to Seattle.... I can't breathe with escursion.. this has been going on since approx. January...

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 11/9/2009 11:50 PM (GMT -6)   
Digidawinwa


Hello and welcome to HealingWell and the Heartburn/GERD Forum. We are very pleased that you found us. I am sorry to hear you are facing surgery and I am sure you are worried about it. Sorry to hear you first procedure did not work out well.



I have heard of patients who have been intubated frequently developing this problem but hopefully someone with knowledge of this disorder will come along and have more information for you.



Take care and stick with us as we make a great cheer leading team.



Again welcome,



Kitt

Click
New Member


Date Joined Jan 2012
Total Posts : 1
   Posted 1/22/2012 1:17 AM (GMT -6)   
Last year I under went surgery for a Trachea Stenosis, it is believed it was caused by a car accident I was in, in August 2008.  I went to the doctors because I thought I had asthma, or something like that.  I was having difficulty breathing, particularly when I ran up the stairs or did something fast.  I had a cough, too, which I had gone into the doctors the year before, he couldn't find anything wrong.  So, in March 2011 I had surgery, lazer, ballooning, to fix the problem.  My wind pipe was closed to 90% when they went in.  Now, 10 months later, I am having the same symptoms and I am looking at having surgery again, within the next few weeks, though a date hasn't been set.  It is very frustrating because I am a very active person and so it slows me down.  At times I have diffiulty talking and have to gasp for air.  If any of you have had something like this, let me know what you did to stop this and not need constant surgery!  THANKS!

LocalGuy23
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/22/2012 1:57 AM (GMT -6)   
Is this gerd related? Have you guys had nissen?

stenosis-lisa
New Member


Date Joined Feb 2012
Total Posts : 1
   Posted 2/15/2012 6:56 AM (GMT -6)   
I have had 3 surgeries in the past 4 yrs for Subglottic Tracheal Stenosis and need to schedule another one now.  No reason for my condition, never had an accident and never had any acid reflux.  Doctors have no idea how I developed this.  All 3 surgeries have been dialation and steroid injections.  I am told the only way to permanently fix my situation is major surgery to replace the part of the trachea that keeps collapsing.  For now, I will continue with the dialations. 
I, too, start saying a sentence and before I am thru, I am gasping for a breath.  Mornings are the worse with sinus drainage - my vocal chords get stuck for which makes the stenosis even worse - NO AIR gets thru a stuck vocal chord.  Have fallen to the ground before gasping for breath just praying to just pass out - my son dialed 911 and all of a sudden the vocal chord opened.
Best of luck to everyone going thru this same situation - it's frustrating and very scarry. 
If anyone has had the replacement surgery, please post a response so I know what to expect when I finally make that decision.

Catana
New Member


Date Joined Jan 2013
Total Posts : 10
   Posted 5/29/2013 4:08 AM (GMT -6)   
Hi Lisa I recently had this surgery. You will find help and answers in our support group for tracheal stenosis. https://www.facebook.com/groups/2409372782/

TheSiXness
Veteran Member


Date Joined May 2012
Total Posts : 541
   Posted 5/29/2013 4:24 PM (GMT -6)   
My doctors noted that I have swelling/Narrowing of my trachea. I'll have to look into the facebook page and read more about this issue.
-TheSixness-

Fighting daily pain from gastroparesis, gerd and lpr!
Had the TIF done 2/2012 and still am symptomatic.

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 5/29/2013 6:35 PM (GMT -6)   
Lisa hasn't posted since her initial post over a year ago. Please start a new thread and introduce yourself to the family.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11
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