Linx system surgery Part 2 of 2

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stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 11/17/2009 10:08 AM (GMT -6)   
Here is the link to Part 1 of 2/Linx system surgery.


http://www.healingwell.com/community/?f=45&m=1574960&g=1574960#m1574960



Please post all new posts into this thread. Thank you.



Kitt

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 11/17/2009 10:15 AM (GMT -6)   
Posted by mark_seattle on 10/24/09:
 
Shooz, actually one other question comes to mind. Do you ever think that perhaps it mgiht be worthwhile to ask your surgeons to consider at some point, perhaps putting in a different Torax ring in place of your current one? Putting in a Torax that is perhaps not quite as strong as the one you have (ie, weaker or smaller magnets)? And see if it is still effective at preventing reflux, but not so strong that it causes the swallowing and burping issues? How often will you follow up with your surgeon? I know you said this is a 5 year trial, but just wondering how often you will be seeing your surgeon. Maybe you could ask him this question. Is everyone in the trial receiving the same size/strength of magnets?

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 11/17/2009 10:16 AM (GMT -6)   
Posted by Gilad today at 5:00 AM:
 
I wonder if Shooz is for real.

res0kkw
New Member


Date Joined Jul 2009
Total Posts : 12
   Posted 11/18/2009 4:02 PM (GMT -6)   
I hope its real.

Im 29 and feel like i have no hope.


Its pretty sad when you think all the time youd rather be dead then deal with this.



Lets hope i get some more help from my doc Dec 1st but ive pretty much lost all hope.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/18/2009 5:47 PM (GMT -6)   
resokkw,
Have you discussed the EsophyX TIF with your doctor?
If he can't do it, find a doctor listed in the America Gastroenterologist society who does do it.
My doctor is a teacher of the procedure. He has done over 130 of the surgeries.

Joy
Health problems: sleep apnea, hypothyroidism, GERD, glaucoma, OA, environmental, food, and drug allergies, asthma, high cholesterol, pre-diabetic
Medications:Nexium 2X a day, 300mg Zantac, K-Dur, Lasix 2X a day, Zyrtec, Zocor, Lumigan, fish oil, B12, Substex, calcium + D, Advair, Albuteral, nebulizer
 
I don't suffer from insanity, I enjoy every minute of it!
 
 


Gilad
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 11/19/2009 2:08 PM (GMT -6)   
I believe that Linx is real and is interesting, although I do have a lot of doubts and questions about it. For example, I noticed that in the Torax site they direct to an article. In this article they state that in the 1980's there was an endeavor to use a silicone half ring c shaped implant that eventually didn't work out.
It was called "Angelchik Prosthesis", for more details see here: http://www.e-radiography.net/radpath/a/Angelchik%20%20prosthesis.htm
The Torax company write that they are aware of the problematics of the previous endeavor and tried to overcome them with their new product, but it is not clear to me as a layman, how do they want to overcome these issues.
Also, I am worried that the Linx ring will migrate over time, or that tissue will form in-between the magnets and hamper its ability to work properly. Also, how will it function while working out and exercising, or while singing for example.

I am nevertheless keeping my hopes high and am very hopeful that it will work. I will be willing to take a chance and try it myself. I am eager to learn more and am frustrated that the data or the current experiment will only be published by the end of 2010.

I wrote that am not sure if Shooz is for real because it already happened that a person impersonated a Gerd patient here in this blog in order to publicize a particular product or clinic. I believe that the previous case involved the esophyx and a particular doctor.

Gilad

res0kkw
New Member


Date Joined Jul 2009
Total Posts : 12
   Posted 11/19/2009 4:11 PM (GMT -6)   
I will be.


They tend to just want to give me more meds.


Im on my second doc.


The first put me on over the counter prilosec.Then upped it to 2 a day .


Now im on protonix  40 mg with the second doc.Im not getting heart burn or nothing i do get the feeling that somthing is comen up all the time.


I just dont understand why its not healing.Im not waken up with acid in my throat heck night is the best time for me .I just dont understand.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/19/2009 5:51 PM (GMT -6)   
Night is the best time for me based on my Bravo Test. There was no acid in my throat at night. I eat at 6:00 every night. That's 3-4 hours before bedtime for me. So that maybe the reason.
However, during the day I'm refluxing all the time.
I'm going on Tuesday to see my surgeon for my evaluation. I'm hoping my HH is small enough for me to do the EsophyX TIF. (crossed fingers)

Joy
Health problems: sleep apnea, hypothyroidism, GERD, glaucoma, OA, environmental, food, and drug allergies, asthma, high cholesterol, pre-diabetic
Medications:Nexium 2X a day, 300mg Zantac, K-Dur, Lasix 2X a day, Zyrtec, Zocor, Lumigan, fish oil, B12, Substex, calcium + D, Advair, Albuteral, nebulizer
 
I don't suffer from insanity, I enjoy every minute of it!
 
 


res0kkw
New Member


Date Joined Jul 2009
Total Posts : 12
   Posted 11/19/2009 8:11 PM (GMT -6)   
GL coutchtater.


By the way how long have you been dealing with your problems?


I feel like i need surgery of sometype.But docs dont want to help me out that way.


Its more like take this and this and this.


Ive been on so many meds that wasnt needed.My doc was just taken guesses be4 finaly had test done.But when i went back after the results she says well we know the problem writes out protonix 40mg and still nothing.


So when i o back im sure they will double that wich i cant afford as it is.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/20/2009 9:24 PM (GMT -6)   
I've been dealing with acid reflux for about nine years now. I started out with just Tums and now I'm on 2 nexiums and a zantac. Doctor said I was on maxium doses and I can't go any higher. That's why I'm going forward with the surgery.

Joy

Shooz
Regular Member


Date Joined Aug 2009
Total Posts : 92
   Posted 11/23/2009 9:00 AM (GMT -6)   
Hi all,
First to Kitt and everyone on this post, SORRY it has taken me so long to post!! I have been extremely busy at work and I'm traveling again.

Now for my update, surgery was on 9/4 and still NO reflux or heartburn. I'm able to burp again and it seems that the Linx has loosened up as food seems to go down easier. I still need to be careful and chew and eat small amounts at a time. I'm happy to report that I have gone through airport security several times now with NO problems. Airports can be such a hassle these days. I have my 3 month (who could believe it has been 3 months already) next week with very little problems to report.

For the poster that wanted to know if I'm real....yes I'm real. If I could show you the photos of the device I would post them. For me this is quite an amazing thing. As this is phase 2 of the trial it will be a while before it is approved for general use. For all of you I hope it is soon as I know what you are going through and it isn't fun at all.

Happy Thanksgiving to all. Shooz

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/23/2009 3:00 PM (GMT -6)   
Good to hear from you, Shooz.
I'm glad your healing well.
Don't forget to chew well. :)

Joy

bobwalker
New Member


Date Joined Nov 2009
Total Posts : 1
   Posted 11/24/2009 2:32 PM (GMT -6)   
Shooz,

Have you heard anything on when this device maybe sent to the fda for approval? Thanks

Gilad
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 11/25/2009 1:14 AM (GMT -6)   
Sorry for doubting you Shooz. I hope that you are not angry with me.
Your update is very encouraging. I hope that the rest of the participants in the study are also experiencing the same relief as you are. Do you have any information about the expected time table for the study or about how other participants are doing?

Yesterday I showed my doctor some material about the Linx that I printed from the Torax site. He said he recommends waiting at least 5 years after it is approved in order to see its long term effects and viability. But if it is approved I will not have the time or patients to wait that long, and hopefully, probably go ahead with it.

Please do continue to update us every once in a while
Thanks
Gilad

Shooz
Regular Member


Date Joined Aug 2009
Total Posts : 92
   Posted 12/1/2009 11:57 AM (GMT -6)   
I need a hug!!!!! I had hoped to never have to report this, I'm having bouts of heartburn again. Started the week before Thanksgiving and is continuing through today. This past Sunday was the worse with burning most of the afternoon. It is not as bad as before the surgery but I'm bummed!!!!! Guess the reality of "experimental" is setting in. I have an appointment with my surgeon in 2 weeks (3 month follow up) and will discuss at this time. I'm thinking that maybe the device has slipped and is letting small amounts of acid to back up. What ever the cause it has me pretty bummed. Hopefully this is a small bump in the road. I'll keep everyone posted. Shooz

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/1/2009 5:23 PM (GMT -6)   
awwww! ((((((((((hug)))))))))

I hope it's something easy to fix.

Joy

Gilad
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 12/1/2009 11:10 PM (GMT -6)   
A huge hug from me to

I hope this is something temporary.
Best wishes
Gilad

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 12/2/2009 8:17 AM (GMT -6)   
Good Morning Dear Shooz,


I am glad to hear from you and I have never doubted who you are for a minute...............(((((((((((Hugs)))))))))))



I am so sorry to hear you are having problems with pain and I know you must be feeling really worried and all the "what ifs?" are flooding your mind re the procedure.



Try to stay in the moment and take it one day at a time. Hopefully there will be an easy fix to whatever is going on.



Sending you tons of hugs and bushels of good vibes to help you through this scary time. You are family here and we are all right here for you.



Gentle Hugs,



Kitt

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 12/2/2009 8:25 AM (GMT -6)   
Gilad,

We often have "Spammers" posting on the forums and the moderators do try to catch them as fast as possible and notify administration to have them banned.

Here is the rule re spam:

5. No advertising or links to advertising or "Spam" is permitted (including signatures).
Advertising or Spam is defined as posting a link for the purpose of selling, soliciting or promoting by someone that has ownership or other "vested interest" to the web site involved, including efforts to promote other online forums or web sites by web site owners.
If you are a web site owner and have a link that fits into this category that you want to share, please submit it to our resource directory and we will review your submission.
Posts and links about fundraising (including nonprofit fundraisers) are NOT permitted.
Only links to personal home pages are allowed in signatures and member profiles. Links must be appropriate and abide by rules #1-4 or they will be removed.
Links to helpful web sites (commercial or otherwise) are allowed when they are posted by someone without any "vested interest" AND whose purpose is NOT to solicit, advertise, promote, fundraise, etc.
If you ever notice a post that appears to be for the purpose of promoting or selling a product do let me know as I try to be online as much as possible but I may miss one.

One of our members caught one yesterday and let me know............so just call me a Spam Chaser instead of a Storm Chaser :) My email link is on the left, the blue envelope. Just click and email me.

Thank you so much for explaining above your comment. It was very helpful to know why you were concerned.

Hugs,

Kitt

Shooz
Regular Member


Date Joined Aug 2009
Total Posts : 92
   Posted 12/2/2009 3:38 PM (GMT -6)   
Thanks to everyone for your kind words!!!!!!
The past couple of weeks have been extremely busy and stressful. I'm thinking that stress has something to do with it. The past couple of days have been better with very little burn. After 3 months of no burn or reflux it was a shock!! My worse fear is the device has slipped or loosened up somehow. I have no idea what the fix is. Hopefully I won't have to go back under. Compared to most of the posters here if feel VERY lucky so far. I can handle what I hope is a small bump in the road to recovery. I'll keep you all posted.
Shooz

speden
Regular Member


Date Joined Oct 2009
Total Posts : 175
   Posted 12/4/2009 10:05 AM (GMT -6)   
Hi Shooz,

Sorry to hear you've felt some heartburn. After the surgery, did you go back to a high fat diet or do you generally eat a healthy diet? I think the reflux surgeries should be viewed as reducing heartburn rather than curing it, so I'd suggest you continue any lifestyle and diet changes you made before you had the surgery.

Stress as you say is also a big factor. When I'm under stress I feel like my stomach makes a lot more acid than when I take an easy going approach to life.

It's possible your linx has migrated slightly out of position. I suppose they will want to do an x-ray on you to see if that's the case. Do you do any high impact sports that involve jumping? Did your doctor put any long term restrictions on your physical activity after the surgery?

Since the linx is magnetic and not held in place with sutures, it seems like maybe it could be repositioned by pulling on it with some kind of magnetic probe inserted in the esophagus, rather than making incisions to do it surgically. But I doubt they have developed anything like that at this point since the technology is so new. Probably the only way to reposition it would be to use a laproscopic procedure.

The other possibility I can think of is the tissues the linx is pressing on have compressed somewhat, making the linx looser. Or maybe a piece of food got stuck and held it open for a while, but that seems unlikely. Do you always finish meals by drinking some fluid to wash down any food particles stuck in the esophagus?

speden

Shooz
Regular Member


Date Joined Aug 2009
Total Posts : 92
   Posted 12/4/2009 4:55 PM (GMT -6)   
Hi Speden,
Thanks for your reply. I have actually kept to a normal diet. I don't eat a lot of"bad" things. As I was instructed by the Doc try to get back to my normal diet as soon as I could. I eat very little red meat, lots of chicken (this is the biggest problem food since surgery) and fish. Salads and veggies and yes I do slip and snack now and then. Can't be good all the time!!!!

I have one of those jobs that is very demanding and at times VERY stressful. I do pretty good with the stress but at times I it can get the best of me. I travel quite a bit and eating out doesn't help. I have been more careful about what I eat and how much.

As I mentioned I'm nervous about the device slipping slightly. I'm not sure why guess my body is trying to tell me something. If my doc feels this is the case I'm sure he will take an xray to make sure. I had to postpone my next appt until the 17th so I'm going to try to be very careful. I know the device is working as I had chicken Monday night and it got stuck pretty bad causing me to throw it up. I do try to drink plenty of fluids while eating.

As I mentioned this I consider a small bump in my recovery road. I have been keeping a journal of sorts documenting problems as they come up so I can report to my Doc. I consider this very important to the study. Thanks again for the kind words, concern and encouragement. I'll keep you posted. Shooz

Two Dogs
Regular Member


Date Joined Dec 2009
Total Posts : 20
   Posted 12/11/2009 12:31 PM (GMT -6)   
Hello Shooz, 
     Excuse me for butting in.  I have just now stumbled across this forum.  I have been trying to find someone else who had the Linx procedure. My surgeon would not give any information on other patients. I  had this procedure done in August.  I have only skimmed the past posts concerning your ordeal.  I would like to compare symptoms and problems in a couple of days; by email, telephone, or here.  You WILL get better.  Two Dogs

Gilad
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 12/12/2009 10:28 AM (GMT -6)   
Hello Two Dogs,
Can you please write a little about your experience and about any issues you have had?
I am sure that all of us here will be very grateful.
Thanks
Best wishes
Gilad

Two Dogs
Regular Member


Date Joined Dec 2009
Total Posts : 20
   Posted 12/12/2009 1:42 PM (GMT -6)   
Hi Gilad, 
I have had indigestion and reflux about all my adult life.  (I'm now an old geezer of 66)  When I learned of this trial close to home  (Albany, Georgia)  I jumped on it.  I went through all the tests and was accepted.  I had my surgery about 4:00 PM.  on the 17th of August.   As soon as I sobered up from the drugs and proved that I could urinate they booted me out the side door of the hospital about 9:00 PM the same day.  I was a bit nauseous on the way home and asked my son to stop and get a Coke.  After a couple of swallows I threw up a little and felt a lot better.  I had hardly any soreness from the incisions.  Like Shooz,  I had to learn to eat slower and with more deliberation.   My worst time swallowing was a grilled cheese sandwich that I wolfed down in too big a hurry.  If you've ever swallowed air you know the sensation.  Only this lasted several minutes.  My nose was running, my eyes were watering, and my face felt like it would explode.  Other than that I felt fine. LOL.  Any-hoo the food finally went down and I chewed a little better after that.   After about a month I started having a little reflux but a rolaid or even a drink of water takes care of it.  That has also tapered  off.  Now I eat anything I want and am seldom conscious of the bracelet.  Yes, I would do it again in an  instant.  I will be happy to answer your or anyone's questions about this.  And thanks for your concern.   Two Dogs 

Post Edited (Two Dogs) : 12/12/2009 12:36:05 PM (GMT-7)

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