Anyone else with LPR?

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sunflowerg3
New Member


Date Joined Dec 2009
Total Posts : 4
   Posted 1/1/2010 9:33 AM (GMT -6)   
Officially, I have only been diagnosed with GERD. After much of my own research, however, I'm pretty convinced I actually have LPR (laryngopharyngeal reflux). My symptoms have been excess phlegm in my throat, sore throat, feeling lump sensation/something stuck in my throat, occasional hoarseness, feeling like I need to clear my throat, occasional cough. I have not really had the typical symptoms of GERD like gas, bloating, heartburn, or burning in my throat. I will occasionally have a strange burning feeling that seems more like it's in my lungs (kind of like what your lungs feel like after sucking on a cough drop). I have not been able to trace my symptoms to any particular food or habit. Sometimes I can get by with eating chocolate (sister made some killer peppermint fudge for Christmas), dairy, fried foods, fresh tomatoes, citrus fruits, etc with no problem. Other times these foods actually burn going down. confused

Anyway, I'd love to talk to others who have this lovely and special form of reflux. There seems to be a lot of confusing and conflicting information out there. I'm not even sure if my doctors (family, ENT, gastroenterologist) even know about or recognize the differences between GERD and LPR since I haven't had follow ups with them since I discovered info about LPR. *sigh*

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/1/2010 10:17 AM (GMT -6)   
I had something similar to what you discribed but my doctor called it "Silent GERD".
Mine was due to a weak LES and a HH. I got tired of all the PPIs and caved into the surgery.
I chose an excellent doctor in south GA. He was quick and did the 270 wrap on me. Today, 12 days later, I feel wonderful. I am down to one pill a day and that will soon be nothing. All of my symptoms are gone. :)

Joy

Midewsterner
New Member


Date Joined Jan 2010
Total Posts : 1
   Posted 1/25/2010 6:50 PM (GMT -6)   
The past two months have been quite challenging due to LPR---.  I went to the GP as soon as I could as I was having troubling swallowing.  I thought I had a bad cold or throat infection.  The GP put me on Prevacid 30 mg a day for 90 days and steroid noise spray.  He did not know if my swallowing problem was reflux or caused by post nasal drip.  I had a ton of throat mucus that came up every time I eat or drank, a tight throat, and it was very uncomfortable to speak like something was pressing on my vocal chords and --and getting hoarse sometimes.  The GP told me to see a gastroenterlogist or an ENT if I did not get better.  The gastroenterologist did a scope and only found a hiatal hernia. The ENT scoped my throat and found mild reflux and tight contracting throat muscles.  He mentioned the reflux might have healed some since I had been on Prevacid for 9 weeks.  But, the whole thing ruined my Thanksgiving and Christmas and I lost 15 to 20 lbs. The ENT said I needed to incorporate stress management.
 
I am actually starting to feel better now, but I still have symptoms.  I realize that I was not taking good care of myself and under a lot of stress at work.  I had been treated two times before for gastritis caused by excess stomach acid that happened during very stressful life-changing times.  I also realize that I had been clearing my throat for some time and thought it was post nasal drip and nothing serious.  This was really a wake up call!  Never heard of LPR before all this happened.
 
Sounds like LPR affects people differently. Thanks everyone for posting on the site. 
 
 

closer
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 1/26/2010 3:32 PM (GMT -6)   
without repeating myself I just posted this in another thread dealing with my battle with LPRD... www.healingwell.com/community/default.aspx?f=26&m=1702393

I'd be glad to share with you any of my history with LPRD... most people and especially GP's have no knowledge of it (mine didn't so I gave him a one inch stack of info I had collected) ... there were several younger members of our staff who were obviously suffering from LPRD and who continue to suffer as they are unwilling to change their diet to cure what can be cured!... some of the symptoms you are talking about are early ones... be forewarned, that they can lead to violent choking episodes... so violent that you feel you are drowning... no air in... no air out... nothing... been there... done that... scared the h3ll out of me... anyway... read the link above and if you have any questions ask away! LPRD is very serious... but it can be fixed

stress management advice... that's BS... cuz if he knew what you were experiencing with LPRD he'd know the stress was from the choking and other symptoms... can stress add to it... sure... but its not the cause!

I take no drugs for LPRD... I don't need to... I just changed my diet... read the other thread
 
Edit:
 
Please read the rules and guidelines of HealingWell.
 
" Decisions about health and well-being are highly personal, individual choices. "

Post Edited By Moderator (stkitt) : 1/26/2010 4:11:37 PM (GMT-7)


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/26/2010 5:20 PM (GMT -6)   
sunflowerg3


Thank you for sharing your experience and opinion with us. Please be respectful of other members experiences and opinions. IMHO it is safe to say that stress definitely is a contributing factor in acid reflux.



Laryngopharyngeal Reflux Disease is a very complex disorder.



Thank you,

Kitt

closer
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 1/27/2010 11:38 AM (GMT -6)   
HI Kitt

I understand completely... sorry if it came across strongly... however my point was simply to suggest that most GP's know very little about LPRD... is it complex? most certainly... far more so than the more common GERD... I was also just addressing the topic of stress because while it is a very strong contributor to GERD, it is more a byproduct of LPRD... LPRD is a problem IMO that can be resolved through some very strict changes to our diets... I would also suggest a trip to a naturopath who has knowledge of this disorder will help immensely... naturpaths have far more background in diet and nutrition than most GP's and are therefore, IMO more qualified to help you with this condition as well... LPRD can be life-threatening and should not be treated lightly, or or worse yet, ignored by the majority of those in the health profession as it is... it irks me when I hear of it being sluffed off as "silent GERD"... its not that at all... its LPRD, its serious and it can be beaten! JMHO is all

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/27/2010 6:40 PM (GMT -6)   
closer,


Thank you for taking my post as it was meant. :-)
On HealingWell we strive to seek a balance between alternative and traditional approaches. I feel strongly, both approaches have value for anyone seeking healing.

Your opinion is appreciated and I know members benefit from hearing other member's success stories.

Respectfully,

Kitt

burntslapup
Regular Member


Date Joined Jan 2010
Total Posts : 27
   Posted 1/28/2010 2:40 PM (GMT -6)   
You said you gave up dairy. My question is have you given up dairy as in milk and cheese or have you given up dairy in every sense of the word. Every food that has the dairy protein in it and any trace amounts of dairy as one would with an allergic reaction to dairy?

Ann of the wild meadows
New Member


Date Joined Jul 2013
Total Posts : 1
   Posted 7/21/2013 11:07 AM (GMT -6)   
Hello!
I was recently diagnosed with LPR (Silent Acid Reflux) and joined this forum because I just need to vent.  I read Jamie Koufman's "Dropping Acid" book as well looked up lots of information on this.  I live in a big city (NYC) and in big cities there's food all over the place.  Food that people with this condition aren't supposed to eat.  I dearly love to eat, and this situation has turned my life upside down.  Gone are the days when I'd just eat pretty much what I wanted (though mostly vegan and healthy, with some "bad" things mixed in).  Gone are the days of eating wonderful ethnic cuisines like Indian, Mexican, other spicy things....All I can say is that I'm so angry and frustrated - I feel robbed.  Going out with a friend or to functions is a problem now.  Even otherwise healthy items that I love (garlic, onions, tomatoes, certain fruits and spices) are forbidden.  I enjoyed making all kinds of good-tasting soups in the winter; now they'd taste more like dishwater in comparison. Right now I'm in a study as per my ENT doctor which will probably last a few more weeks.  After that, maybe I can cheat a little?  Dying isn't an issue for me; it's living like this.  It's so darn boring.  Lastly, I was hoping to find a meet-up here in the city for people suffering/coping with LPR.  Nothing exists.  Forums are good, but nothing can take the place of people getting together in person and sharing.  Especially for something this tough (for me, anyway).  Many thanks for reading this!

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 7/21/2013 11:53 AM (GMT -6)   
I wish i lived in NYC.  I cant find anyone with the same problem as me either.  Its horrible to handle alone.

mattinthehat2502
Regular Member


Date Joined Mar 2013
Total Posts : 49
   Posted 7/21/2013 4:29 PM (GMT -6)   
Ditto on wishing there was a meet-up somewhere. I live in California though so making it to NYC would be kind of tough. Just getting to meet and talk to people going through the same thing would be so helpful.

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 332
   Posted 7/21/2013 4:42 PM (GMT -6)   
Everybody keeps telling me to see a counselor to "talk" things out.  I cant seem to get thru to them, that i cant talk without extreme pain 95% of the time.  It would still be nice to get together with other people having the same problems.
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