I'm very upset about tests

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Stormienite
Regular Member


Date Joined Dec 2009
Total Posts : 186
   Posted 1/18/2010 2:18 PM (GMT -6)   
So I went to my gastro Dr. on Thursday and he said I would be a good candidate for the wrap and referred me to a surgeon.  I just came back from seeing him.  He said before he decides I'm a candidate I need to have 2 tests done.  One is getting a small tube/wire down my throat and drink something (please tell me the name of this procedure) and the 24 hr PH test.  He has told me I won't have any medication AT ALL during these procedures.  I am so upset.  I'm not going to be able to have these done.  There's no way they can put a tube down my throat without me gagging, throwing up, and ripping the thing out of my throat and lashing out at the people trying to do it to me.  Why can't they at least numb my throat???  I can't do this.  I might as well just end everything here and now.  He just plummeted me into a huge anxiety attack and depression.
Rapid Cycling Bipolar Disorder (and about a dozen other things)
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babygirl10150
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Date Joined Jul 2006
Total Posts : 639
   Posted 1/18/2010 2:30 PM (GMT -6)   
The test you are talking about is the manometry. This is my experience. They numb your nose and throat. The tube is a little smaller than a spaghetti noodle. The nurse inserts it in your nose and has you swallow, as you swallow it goes down your throat so you don't gag. They direct you when to swallow and when not to swallow. I found that to be the hardest part. It took about a half hour, I kept swallowing when she told me not to. The only time I gagged was when she pulled the tube out at the end and I have a VERY sensitive gag reflex.

Forgot to say I was able to take my prilosec in the morning. It doesn't measure how much acid is in your esophagus. This test measure your muscle contractions to see if you have slow motility.
Michelle

~Nissen 12/14/09~


Stormienite
Regular Member


Date Joined Dec 2009
Total Posts : 186
   Posted 1/18/2010 2:36 PM (GMT -6)   
He said they weren't even gonna numb me. :(
Rapid Cycling Bipolar Disorder (and about a dozen other things)
300mg Lamictal
90mg Pamalor
60mg Prevacid RIP
2mg Niravam (Xanax)


babygirl10150
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Date Joined Jul 2006
Total Posts : 639
   Posted 1/18/2010 4:05 PM (GMT -6)   
Sorry but I wouldn't do it then. Did you ask why not?
Michelle

~Nissen 12/14/09~


Alcie
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Date Joined Oct 2009
Total Posts : 4978
   Posted 1/18/2010 4:59 PM (GMT -6)   
The tests are REALLY important

The pH test normally goes through the mouth if it's a Bravo capsule test. It goes down the nose if it's a catheter type. Bravo is a 48 hour test. Get your doc to explain more to you!!!!! You can ask for sedation for this one because it's always done after the manometry.

The manometry test goes down the nose and the nose is always numbed, but you don't get anything more because they want you to swallow a little water so they can measure how well your swallowing reflex works.

My experience was pretty awful, but also the worst possible case because I have a pretty rare bad gag reflex. I also have a tiny nasal channel because of it being broken 4 times. If you can get your pinky finger past the tight area your nose is normal. I can't. Technician and nurse couldn't get the manometry catheter down my nose. The doc couldn't either. He had to use a baby scope to get down, then put in a wire and then thread the catheter over it. The manometry tube is so small and flimsy it kept curling up in my trachea. He refused to do the pH that day because I didn't have a driver and said I needed sedation.

I went to another hospital for pH where a nurse tortured me and finally let me lie down. That way I didn't pull out the wire with the capsule. Remember that part of the trick! There's no reason not to lie down! They always want you to sit up, but there is more than one way to get the job done.

You really HAVE to have these tests! They are not fun if you gag horribly, but most people don't have a terrible time!!! Your surgeon can't get a proper idea of what needs to be corrected without the tests!! If I got through it, anyone can. But I should have been sedated for the second attempt at the pH test. You do need a driver for going home after sedation, so bring one just in case.
Alcie
 
 


dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7180
   Posted 1/18/2010 5:29 PM (GMT -6)   
Stormienite,
These are just two tests you have to get yourself through to move towards an improved quality of life. If your surgeon didn't want these tests done, he would be negligent. They are very basic tests to give him the information he badly needs to move forward.

It is mind over matter. Yes the manometry is a challenge. I guarantee they'll spray something in your nose to numb it. They can't numb your esophagus, because they are looking to see how strong your swallowing reflex is. If they numbed it, they wouldn't get a correct read.

The biggest problem for me was NOT swallowing...the urge is to swallow, because you feel something in your throat and want to swallow it down. You can only swallow when they tell you to, because they need to see the reflex clear of any other swallowing you might do on your own. You need to use visualization and breathing to get you through.

For me, the hardest part of the 24 hour PH monitor was not being able to take any PPI's or antacids. It was rough, but I just drank lots of water to help with the reflux.

It's up to you whether you go forward with this search for answers. You are the only one who can gather the strength to get through these procedures. You can do it, I've no doubt, but you are the one who has to believe that. You'll have to decide how important it is for you to seek a surgical solution.

Your surgeon can't know if and how to do your wrap if he/she doesn't know how strong your swallowing reflex is.
Good luck, Stormienite. We're here for you!
Denise

Stormienite
Regular Member


Date Joined Dec 2009
Total Posts : 186
   Posted 1/18/2010 5:35 PM (GMT -6)   
When I was at the ENT and they did the video probe to look at my vocal cords it took 2 people and about half a spray bottle of numbing stuff to finally get close enough to see them.  I had tears running down my face.
 
It's medieval.  I won't have it done.  I don't care if I die.  I've been through more tests than I can count in the last year just to get a diagnosis.  I'm finished.  I'm done.  It's too much.
Rapid Cycling Bipolar Disorder (and about a dozen other things)
300mg Lamictal
90mg Pamalor
60mg Prevacid RIP
2mg Niravam (Xanax)


babygirl10150
Veteran Member


Date Joined Jul 2006
Total Posts : 639
   Posted 1/18/2010 6:06 PM (GMT -6)   
They did numb my throat. Not all the way down on purpose but you have to swallow the gunk they put in your nose. And they numbed the back of my throat with a spray, like they do with the EGD.

Stormienite, you can live your life the way you are and deal with it or you can try to better it. Nobody can force you to get any tests done but just think of the end result. It can be frustrating, very frustrating.
Michelle

~Nissen 12/14/09~


Stormienite
Regular Member


Date Joined Dec 2009
Total Posts : 186
   Posted 1/18/2010 8:49 PM (GMT -6)   
I just wrote a letter to my pulmonologist in Pittsburgh and told him everything.  I just don't know what to do.  I haven't eaten anything at all today.
Rapid Cycling Bipolar Disorder (and about a dozen other things)
300mg Lamictal
90mg Pamalor
60mg Prevacid RIP
2mg Niravam (Xanax)


dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7180
   Posted 1/19/2010 6:16 AM (GMT -6)   
To start, Stormienite, take a deep breath. You don't have to make this decision today. Try to focus on some of the things you have to be grateful for in your life...take your mind off the issue for a while. Take a walk, read a book. Don't think about it.

Of course some surgeons have done the Nissen without all those tests, but it's a risky business. What if you have a poor swallowing reflex? He/she won't know how tight it can be without that test. I wonder if there's a sedative you could take without having it affect your swallowing reflex. Worth a look.

Peace, Storminenite. We're here for you, and will be your sounding board.
Hang in there !
Denise

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/19/2010 5:57 PM (GMT -6)   
Stormie,
Breath. Now relax.
I know the fear of medical procedures. They didn't tell me what the mamometery test was like or what it entails. If I had know I think I would of acted just like you.
I have a way of relaxation to get through the unpleasent medical procedures. I find by closing my eyes and sort of denying what is happening I'm able to get through it. I do a deep breathing "zen" like thing.
They will numb your nose with a strong numbing gel. I barely felt it in my nose (that was only because I have a deviated septum). I admit the swallowing of the tube is kinda tough, but as long as I listened to the doctor I was able to get through the tough part of swallowing it.
The actual testing part was not so hard. It did make my eyes water badly.
Please ask your doctor about a possible sedative.

Joy

mookiemoomoo
Regular Member


Date Joined Aug 2009
Total Posts : 150
   Posted 1/20/2010 5:43 AM (GMT -6)   
please please calm down . you are getting yourself so worked up about this . i can tell you i am a wimp big wimp and i have had this done twice yes twice . and its not nice i grant you but its over so quick , they have to do this to get you closer to surgery. i am 4 weeks today post opp and getting better every day no ppi at all since surgery . got a few problems but im sure they will work out . so you have to be brave and get this over with . all mu huggs
Michelle

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