<Sarcastic>Wonderful News (Barretts)

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tracks83
Regular Member


Date Joined Mar 2008
Total Posts : 149
   Posted 1/24/2010 5:03 PM (GMT -6)   
This weekend I got the wonderful news that I have Barretts Esophagus!!!! Isn't that wonderful? I just got married, started a new chapter of my life and I got slammed with Barretts!!!! Nothing beats hearing that you have a pre-cancerous condition when your trying to start a new iife! This  sucks!!!! NOW WHAT??? I'm not allowed to eat anything...I have to feel hungry and to top it all off I have cancer in the back of my mind constantly. Since yesterday life feels surreal. I have no motivation to do anything! Im in a constant gaze. Im shocked Im even writing anything here on this forum.
 
Edit:  Sorry about the edit for language even thow you used symbols, that word is still not allowed. smhair

confused cry

Post Edited By Moderator (stkitt) : 1/25/2010 8:40:22 AM (GMT-7)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/24/2010 5:26 PM (GMT -6)   
(((((((((((((((((((((((gentle hugs)))))))))))))))))))))))))))))))))

Oh, honey, I'm sorry you have to deal with this, but it's just a bump in the road.
There is help. This is not the big "C". It just means if you don't take care of it, it can change.
There is several things they can do for you to get rid of it. Then you get the GERD fix so it won't come back.
Please don't leave us. Stick around to lean on our broad shoulders and talk into our big ears.

Joy

tracks83
Regular Member


Date Joined Mar 2008
Total Posts : 149
   Posted 1/24/2010 5:47 PM (GMT -6)   
Thanks Joy.
Im just pissed. I appreciate the "hugs." What are some of the things they can do? Do you mean the Abalation therapy? I heard that works pretty well. I just want to fix the GERD. Between all the procedures for gerd like the nissen, esopyx and the rest it seems its 50-50. Your either cured or the gerd gets worst. I feel there is no hope in treating this crapy condition.
And the diet. Good-God! What can I really eat? Do you have any suggestions (like a website) that I can get the correct diet to eat with this?
Thanks
Tom

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 1/24/2010 7:05 PM (GMT -6)   
Tom-
Welcome and relax. I have had Barretts for over 3 years and it's not that bad. It is a VERY slim chance it will ever advance any farther. As far as the surgeries go, if you find a very qualified surgeon who has done many successfully and the test show you are a good candidate the "success" is way better than 50/50.
The best thing to do is make sure you monitor the Barretts as needed and if possible adjust your diets as needed. It really doesn;t have to be a severe change. Our you currently taking any med for this? if so, are they helping ? IF you are taking meds and they are helping you, there may not be anythng else you need to do about the Barrets except watch it.

Take care,
Bill

tracks83
Regular Member


Date Joined Mar 2008
Total Posts : 149
   Posted 1/24/2010 7:25 PM (GMT -6)   
He Bill,
Thanks for responding. Well this is the thing. I am taking Nexium 40mg once a day. As long as I take the pill I have no pain or discomfort from Gerd. It feels like I am perfectly healthy. On the contrary...if I miss a pill all hell breaks loose. I can drink a glass of water on an empty stomach and it feels like I ate the hottest, spiciest food and drank vodka with it. I have been on Nexium for 6 years now and I had my annual endo a week ago and I got my results yesterday.
Bill, are you adhering to a specific diet? Is it extremely strict? Some of the information Im getting off the internet it almost seems everything is off the list. No deli meats, white breads, no fats(butter,cream cheese) nothing can fried or sauteed. I like grilled and baked food but only so much.
Do you feel any pain with your barretts? Are you going to get any treatment for it?
Tom

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/25/2010 9:46 AM (GMT -6)   
Hello Tom and welcome to HealingWell,


I understand your frustration and your fears. I have a husband that was dx with Crohn's disease at 29 and we had 4 young children. He is headed for his 4th surgery next month but he has done well dealing with his disease so please know that you will be OK. He also had Prostate Cancer Surgery last year and is cancer free now.



Here is one of the best resources for Barrets next to all the great members here that are always willing to share and support each other.



http://www.mayoclinic.com/health/barretts-esophagus/HQ00312



Stick with us and your will find coming here and talking to others will help you in dealing with your new dx.



Gentle Hugs to you,



Kitt

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 1/25/2010 8:28 PM (GMT -6)   
Tom-
I had the Nissen done 3 1/2 years ago because my acid levels were way out of wack and the PPI's didn;t stop them. They had me on 4 prevacids a day and told me I probably should look into the surgery. They actually had an appointment already set up with the surgeon for me to talk to him. I don;t have to watch what I eat, unless something specifically bothers me.

Take care,
Bill

tracks83
Regular Member


Date Joined Mar 2008
Total Posts : 149
   Posted 1/26/2010 4:19 AM (GMT -6)   
HEy Bill,
Did you have a complications with the Nissen? Do you regret getting it? Sometimes I feel that only the people that had a bad procedure come on this forum and the ones with a successful procedure stop posting. Don't get me wrong there is a small percentage that is vocal in a positive way. But it seems the majority of people that post are the ones that had a bad experience.
Was the recovery difficult from the nissen? My co-workers friend had the nissen done here in NYC and he's fine. He can eat whateveer he wants. The only thing he cant touch is carbonation. IT drives me crazy. Is it the surgeons? Is it the procedure? I would love to end this but I'm balancing the negatives vs the positives as to which procedure would workk and this forum shows me that basically its a 50-50 chance.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/26/2010 5:51 PM (GMT -6)   
I've got the partial wrap called the Hill. My recovery has been very smooth.
I've hadn't try carbonated drinks yet, still healing.

Joy

tracks83
Regular Member


Date Joined Mar 2008
Total Posts : 149
   Posted 1/27/2010 4:58 AM (GMT -6)   
Hey Joy,
So you had the Hill and your recovery is smooth? How about PPI's are you still on them? Do you still feel the acid? Are you able to eat what you want? It just seems like everyone that had the nissen or lap has a bad experience. What state or city are you from? How long ago did you have the wrap done?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/27/2010 4:35 PM (GMT -6)   
So you had the Hill and your recovery is smooth?


Very little pain. no major problems.



How about PPI's are you still on them?



I was on Nexium 2X a day and a Zantac at night. Now I'm on one Nexium and hadn't taken one for three days. turn



Do you still feel the acid?



I had silent GERD so I never felt the acid to begin with. I just coughed for four years.



Are you able to eat what you want?



I'm still healing so I'm still introducing foods back slowly. Chocolate is still a no-no. I can't eat tomato products or spicy stuff yet. Bread, beef and pork are too hard to chew right now.





It just seems like everyone that had the nissen or lap has a bad experience.



I know. You always hear the squeaky wheel the loudest. The point is to get an expert at the surgery. One who is experienced in all of the types of surgeries available.



What state or city are you from?



I live in GA. My surgeon was in Albany, GA. A five hour drive for me.



How long ago did you have the wrap done?



My surgery was on December 22nd. I was home by December 23rd.





Joy

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 1/30/2010 6:03 PM (GMT -6)   
Tom -
Sorry it took me so long to get back to you here. I have been away from my computer for a while wit the new job and softball. Anyway.....
I did have issues with my first Nissen and that's why I had the redo in May. My first was done wrong and way too tight. Do I regret having it done? Never! I don;t even regret having to spend 3 weeks in the hospital not allowed to eat or drink after my redo because of a strange complication. I'd do it again wthout any second thoughts.
My recovery the second time could be considered difficult, but there were strange complications that 99% of people probably wouldn't have. I can eat whatever I want now and actually could the first time, but it was hard to get it past the first wrap. I even drink carbonated drinks without much problem. I just have to remember to burp to ease the pressure between drinks.
You are right about most people posting who have had a bad experience and the good ones never come back. Well this place has more good than bad and I think it's because we support each other so well. I argue the 50/50 thing that if you get a well qualified surgeon who has done many of these successfully and have the correct tests done it is way better than 50/50. I didn't do my homework the first time and payed for it. I try to tell people who I see is having this or thinking of it to do their homework and research the surgeon they are looking at. I will never again have surgery without finding out all I can about the surgeon. Just because a surgeon says they can do a procedure doesn't mean they do it well. I had the surgeon who did my gallbladder so my first Nissen and all I did was ask if he could do it. Of course he said he could and would do it. He is also a bariatric surgeon and still didn't do the Nissen right. Seems he is a very good weight loss surgeon and has many articles about it, but for my experience with him he doesn't perform the Nissen well at all.
I will say that a good place to start is a good teaching hospital if you have one near you. I drove almost 3 hours to see the surgeon who did my redo and had probably 10 different appointments with him before he agreed to redo mine. HE came highly recommended by a surgeon here I trust and actually asked to redo my Nissen first. He referred me to the other surgeon because he knew he specialized in swallowing disorders and Nissen redos.

Take care,
BIll

Anthony09
New Member


Date Joined Feb 2010
Total Posts : 6
   Posted 2/4/2010 2:33 PM (GMT -6)   
FWIW a GI Doc I know, (not mine) said that the fundo is 90% effective at 5 years in most patients, and 80% effective at 10 years. Problem is, a lot of us are young so what happens in 30-40 years? Hopefully the Esophyx or magnetic ring being trialed will have long term effectiveness.

rlopez75
Regular Member


Date Joined Jul 2009
Total Posts : 199
   Posted 2/4/2010 4:01 PM (GMT -6)   
Anthony09 said...
FWIW a GI Doc I know, (not mine) said that the fundo is 90% effective at 5 years in most patients, and 80% effective at 10 years. Problem is, a lot of us are young so what happens in 30-40 years? Hopefully the Esophyx or magnetic ring being trialed will have long term effectiveness.

I'm sure the advancement in medeicine will be way beyond just a wrap by them....hopefully..lol!

Tom, I had the Lap. Nissen surgery done 6 months ago. I was not diagnosed with barrettes but my brother was and hes is on his second wrap because he didn't take care of him self during the healing process of the first one. His Barretts developed after he fouled the first one. The key here is to change your whole lifestyle, so you can prolong your normal life. If any thing, it makes you a much healthier person.

I on the other hand am taking care of my self. I have been told I'm being a big babyturn. But I rather be safe than sorry! I have lost 35 pounds since my surgery and have managed to keep it off. I don't eat fatty or fried food, any meat from an animal with hoofs( tongue ), or highly processed foods. I feel better mentally and physically, though I'm still recovering and have pain when lifting heavy things. The only down side for me is that I can not return to my career as an Electrician due to lifting limitations. I have been given the green light from my DR's to apply for Social Security so I can advance my education. Waiting on getting approved.

All in all the surgery is the way to go!! There is hope.

Good luck
Rafael

tracks83
Regular Member


Date Joined Mar 2008
Total Posts : 149
   Posted 2/6/2010 12:16 PM (GMT -6)   
Ok. So there is hope than. I just want to thank everyone for their advise. I kind of freaked out at first. I have been on this diet now for 2 weeks since I have been diagnosed. It was rough the first week. Now I'm at week 2 today and its not that bad. A little boring for my taste but I do feel much better since I have been eating healthier. Im also losing weight so that's a plus. But I will get bombed out later because I'm going to the movies and I just love having popcorm when I'm at the movies. Its gonna drive me crazy.

StaceyA
Regular Member


Date Joined Feb 2010
Total Posts : 114
   Posted 2/6/2010 4:02 PM (GMT -6)   
Tom,
I also had the Nissen just under 3 wks ago. The diet afterward is very tough for me, but otherwise things went very well.
My dad has had barrett's for YEARS. He gets it checked out regularly. He keeps everything under control with diet and med. His condition has improved a lot since his time of diagnosis.
Take care of yourself!
Stacey

tracks83
Regular Member


Date Joined Mar 2008
Total Posts : 149
   Posted 2/6/2010 9:03 PM (GMT -6)   
Hey StaceyA,
Im sure the diet after the operation is difficult but are you in a great deal of pain? Are you still on PPI's? Since the operation has it improved? Is it worth getting the operation? Any reason why your Dad didn't get the operation? Has he thought of getting Halo done to burn the barrett's away? How long have you had GERD? What made you decide to get the operation?
Sorry for all the questions but I'm at a point where I think this is the way to go. Ive had gerd for about 6 to 7 years, treated it medically and now diagnosed with Barrett's. I believe its a "no-brainer" at this point.

Thanks,
Tom

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/6/2010 9:17 PM (GMT -6)   
I've had no PPIs for ten days! Yea, I'm over the rebound phase!
I'm so glad I did the surgery. :))

Joy

StaceyA
Regular Member


Date Joined Feb 2010
Total Posts : 114
   Posted 2/7/2010 10:15 AM (GMT -6)   
Tom,
I never took any PPIs. I wasn't even aware that I had GERD. I had a very large paraesophageol (sp) hernia that was causing the worst nausea. There was some concern that the blood supply would be cut off. So although they determined that I had GERD (from the testing), I was not suffering with any symptoms from it. Of course the surgery was worth it for me because I had so much anxiety about the hernia.
My dad also has GERD w/o suffering much with it. He just takes nexium. It was around 10 years ago that the barrett's showed up on his egd. They discussed the surgery, but since he was not having trouble with the GERD (while on med), they just decided to check it every year. He also has a hernia, but the normal sliding type. His has not gotten any worse. They do dialate his esophagus sometimes when he gets the EGD. I guess he's been lucky.
I don't think that I am much help for you, because I haven't suffered like others with the GERD. I am however just 21 days out of the surgery and can tell you that you CAN make it through. It wasn't easy for me. I really like to eat. My best advice is to get lots of info esp on what you can eat (drink) and be prepared. I didn't do that and it made it very hard. I really wasn't that hungry for a long time, but the last week was really tough. You have to get your info from the doc, because some of them don't even keep you on liquids as long as others.
I expect my doc to put me back on soft foods tomorrow. I'm not sure exactly what that includes, but I am SO excited!
Wishing you the very best! Life WILL get better again!
Stacey

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/7/2010 2:56 PM (GMT -6)   
Tracks, my pain was at its worst on the day of the surgery. My surgery was at 8 AM that morning. I last asked for pain medicine at 12 noon. I only took pain medicine three times after that when I got home. That was mainly to help me sleep at night. The rest of the pain I had was very tolerable as long as I didn't touch my stomach.

I did have some painful hiccups but that was because I ate too much.

Joy
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