Anyone here have Eosinophilic Esophagitis?

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TiBoBi
Regular Member


Date Joined Mar 2008
Total Posts : 89
   Posted 2/18/2010 4:33 PM (GMT -6)   
After almost a year of testing, the GI doc finally agreed that I do not have reflux even though I do have a hiatal hernia.
 
I am going back for another endoscopy and a possible biopsy for Eosinophilic Esophagitis. You can read about it here: http://www.medicinenet.com/eosinophilic_esophagitis/article.htm
 
To sum it up, no one can figure out my hoarseness, throat closing-up feeling. It literally feels as if ground up peanuts are stuck at the base of my tongue. Gross description but it pretty much sums it up.
 
Allergy tests negative.
Ultrasound good.
Barium Swallow ok.
Manometry showed low LES pressure and spasms.
24 hr PH monitor showed no reflux.
ENT scope said I'm clear.
 
It's a mystery. GI doc said I was on too much medication so he halved my Aciphex. I was only taking it twice a day at his initial request.
 
Next endoscopy is 3/18.
 
Does anyone on here have EE?
 
Ti
 
 
Diagnosed with Lupus in January 2008.
Diagnosed with GERD in 2009 (although I don't believe it)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/18/2010 6:40 PM (GMT -6)   
I've never heard of it.

Good luck on finding a solution.

Joy

Pickrel
New Member


Date Joined Feb 2010
Total Posts : 1
   Posted 2/19/2010 7:33 PM (GMT -6)   
I've heard of EE - daughter has it. If you have it my condolances. Either way - good luck.

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1910
   Posted 2/20/2010 6:34 AM (GMT -6)   
Yes, I have heard of it. I think they give singulair for it, that is an asthma drug. Good luck with it. Maybe Mayo clinic has some info about it.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma, IBS, asthma/allergies, prediabetes, high BP, fibromyalgia, GERD
low thyroid,claritin, advair, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal
zoloft, rolaids, pepsid (as needed)

ALLERGIC TO SULFA, AND ANTIBIOTICS GIVE ME DIARRHEA!
Blood test positive for Crohn's via prometheus ibd serology panel


Gerddy
New Member


Date Joined Jun 2011
Total Posts : 7
   Posted 6/22/2011 5:22 AM (GMT -6)   
Currently have Bravo...After years of feeling like my food is stuck in my throat I finally received a diagnosis that explains it, and is very often confused with REFLUX. IT IS CALLED eosinophilic esophagitis!!!
Does your throat often feel like its going to close up?
In 2008 they found esophagil rings and did balloon dialation. They said it was the cause of reflux, but 2 days ago (2011) I had endoscopy that showed no rings but they took a biopsy and found that I have eosinophilic esophagitis. They also installed the Bravo capsule to see if it is reflux related, which now they don't think it is. Now I have this uncomfortable capsule in my esophagus...I want it out now, It makes me feel panicked!

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 6/22/2011 8:39 AM (GMT -6)   
FYI for all  reading this thread:
 

Eosinophilic esophagitis, a type of white blood cell (eosinophil) builds up in the tube that connects your mouth to your stomach (esophagus) as a reaction to foods, allergens or acid reflux. When that happens, the eosinophils can inflame or injure the esophageal tissue. A diagnosis of eosinophilic esophagitis is based in large part on a thorough review of your medical history and on your symptoms.

The following procedures to help diagnose eosinophilic esophagitis:

Upper endoscopy. A long narrow tube (endoscope) containing a light and tiny camera is inserted through your mouth down the esophagus. Your doctor inspects the lining of your esophagus for signs of eosinophilic esophagitis, such as inflammation, horizontal rings, vertical furrows, narrowing (strictures) and white spots.

Biopsy. During endoscopy, your doctor will remove a small tissue sample from the lining of your esophagus for laboratory analysis. The presence of a high number of eosinophils in the tissue confirms the diagnosis for eosinophilic esophagitis. Reference: Mayo Clinic Staff


~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
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Ruthie2009
New Member


Date Joined May 2012
Total Posts : 3
   Posted 5/21/2012 1:51 AM (GMT -6)   
I was dx with Eosinophilic Esophagitis a little over a year ago. My dr said it was caused by reflux. I did have a stricture.

After treatment, was much better. I was stupid recently and decided I was better so stopped my reflux meds and was careless about how, what, and when I ate - learn from my mistake - you don't "get over" this, but you can control it.

Good luck.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 5/21/2012 8:31 AM (GMT -6)   
 
Hello and welcome to HealingWell.  I am glad to see you have found us and it is good to read you have already found comfort in reading the posts of other members.
 
Please feel free to post anytime. It is really helpful to talk with others who understand how you feel and what you are going through! If at any time you would like to start a new thread of you own introducing yourself, please do...that way more members can recognize you as a newcomer and welcome you.:)
 
Here is a link to how to use the forum that will help you in navigating the boards:
 
 
Kindly,
Kitt

~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

www.healingwell.com

"Life is not about waiting for the storms to pass...
It's about learning how to dance in the rain."~ Vivian Greene
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