Hello everyone! My name is Liz, and I have just stumbled across this forum.
A bit about me:
I am a 35 year old teaching assistant living in the UK, with 2 amazing, adorable sons and a lovely, supportive, long suffering and hilarious husband. I am learning British Sign Language at level 2, and would love to be an interpreter one day! I love movies, psychology, children, and most of all, hula hooping!
I have always had "stomach problems" since being a small child, I remember my mother getting me to lie with a cushion under my stomach when I was as young as 4, to ease stomach pains. I had some recurrence in my teens, where I had many visits to specialist, and even had barium Xray, but a cause was never found. My whole life I feel I have had food getting stuck in my chest, and had to bang my chest to get it to move.
Jumping forward to my first pregnancy, acid heartburn was excruciating. I lived on milk and Gaviscon. My 2nd was even worse! Well, cutting a long story short(er), for 3 years I have found my generally good singing voice was becoming unreliable, my range was reduced, and my overall speaking voice was a little hoarse. I went back and forth to my GP, who prescribed labeprazole, which did nothing for the voice, but eased the burn a little. I was taken off that, but then last summer I started to feel like I had a lump in my throat. At first I thought it was a virus, but after 3 weeks I got worried and went to the GP. I had bloodwork done, and apart from a mild case of anaemia things were all ok. I was put on rabeprazole 20mg, but it didn't help at all. So I had to keep going back and insisting it was hell, til finally at Xmas I was referred to an ENT. I saw him New Years Eve, and after an examination he determined my vocal chords were bowed and referred me on to speech therapy, and doubled my rabeprazole, and put me on 4x10ml of Gaviscon advance daily (yuck!).
Things got steadily worse. I started to feel like my throat had turned to concrete, it felt like stone and I couldn't cope without chewing gum all day long. I had explosive belching and wheezing with the stoney feeling. The gum helped for a while but for the last fortnight in Feb the pain in the pharyngeal area was so intense I started to take NSAIDs. Strangely, one of the side effects of the Rabeprazole is pharyngitis!! So i made the decision to cut my 40ml dose in half. I did this with no advice from my GP. I had been to her about the awful pain and she told me not to come to her about my throat anymore, because she had already referred me. Well it seemed to make a difference, the terrible concrete throat went away, but yesterday it returned. So now I am wondering if it was the rabeprazole at all! I am so confused!! I am experiencing the burn again since Thursday, I put that down to the reduction in rabeprazole, but I don't see the sense in going back to 40mg when it wasn't helping the throat anyway. I am hoping the burn will die down once my body adjusts.
I had my review with ENT on Wednesday. I told him about the pharyngitis, and he said I could stay on 20mg, although he questioned it being a side effect, and looked it up in his own book even after I had shown him the list in the pamphlet that came with the meds. He sent me for more bloods, and a barium swallow booked in next Friday.
I still have the lumpy throat, hoarseness, and the burn. I am hoping I will find an answer soon, or at least some relief, this i driving me crazy!
I am very pleased to find you all, maybe I will find some good advice here!