My 13yo son has reflux too.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 3/10/2010 3:30 PM (GMT -6)   
Jake has had "sicky breath" ever since he was a tiny baby, and had some projectile vomiting when he was tiny. No one was concerned, GP has never really looked into it, despite numerous visits. The only thing they ever gave him was anti catarrh meds, which were useless. Jake can actually bring up food on command, its horrible. He has acid and heartburn a lot, and is a very picky eater.

Does anyone have any suggestions for diet and things for him? I despair with the doctors, they haven't helped me and I don't want to send him down this agonizing soul destroying route if I can possibly avoid it.

He is very fond of junk food, but I rarely allow it. He will eat pasta, likes some fresh fruit, shepherds pie always goes down well. Sadly, he is a chocolate/sugar junkie, and I know this doesn't help. His absolute favourite is spaghetti bolognese, which is another no-no for acid.

I am worried about talking to him about this. He has seen how ill I am and it worries him a lot, and I don't want him to put 2 and 2 together and start to panic. He is something of a hypochondriac, always thinking he has something life threatening, a real worrier. What should I do?

cj2306
Regular Member


Date Joined Jan 2010
Total Posts : 44
   Posted 3/10/2010 6:45 PM (GMT -6)   
hi zledagoblin!

my names christine and i've been diagnosed with GERD for 2 yrs now - i dont have kids but what i can tell you to avoid is: peppers, onions, garlic, spicy food, fried food, chocolate, sodas, alcohol, sauces, citric fruits, peppermint, honey

staying away from those for quite awhile is tough especially since im italian and love chocolate!!! LOL but once the nexium started and my body got back into balance i was able to eat those things in moderation ( like a once a month treat ) however if it got abused OMG did i suffer!

have you tried any OTC acid blockers? i dont know how dr's feel about giving kids an Rx for GERD (like i said i dont have kids nor am i a dr) - maybe theres a way you can talk to your dr over the phone or in private about your sons condition and just gradually change the diet etc - he may or may not pick up on

theres also reciepe books out there for acid reflux

i have vertigo as well - and since being sick in Jan both my vertigo and GERD have come back - my nexium intake has increased to 2x's a day (40mg each)

if your current drs arent helping i would find another

hope this helps some

my7pinecones
Regular Member


Date Joined Feb 2010
Total Posts : 74
   Posted 3/10/2010 6:58 PM (GMT -6)   
You might help him not "catastrophize" and "awfulize" his symptoms. In his young life, these things likely seem huge and endless because he has not experienced relief from infancy. Again, a GP is likely not going to provide answers...a good GI doc is who he needs to see. When I was in practice (therapist) and was working with kids his age, I had a lot of success "negotiating" with them. Maybe you could strike a bargain with him, such as giving him a good GERD diet and asking him to follow it faithfully for a week and keep a log maybe 4 times a day with entries. Kids often are very good with computer programs like Excel or making graphs, etc. They can construct a chart including primary symptons and a rating system, things like that. Help him to move into this situation rather than to be fearful and increasing worry, dread and anxiety. This could help him establish a causal relationship between diet and symptoms...identifying specific things that help him feel relief other things that cause pain.

Maybe even a "reward system" for him...something he wants for one week, 2 weeks, 1 month, etc. He then can take his data with him to the doc!

Having been "conquering" this esophagus of mine since the early 80s with several surgeries, dialations, several hernias, etc. it is possible to have a viable and happy life working cooperatively with symptoms. Medical procedures have dramatically improved since I started my learning experience. I didn't even know what an esophagus was until mine stopped working!! Now I am "expert". I have often said to a doc..."I realize that you know the literature on this...as do I, however, I have the actual life experience. Let me tell you how this works...(or doesn't LOL!)

I would encourage you to get your son help (and you too) with the right doctors! Do you have a Pediatric GI doc he could go to?

Keep us posted as to what you can find out. If you don't mind my asking, Are you in UK? Your medical experiences remind me of my friends who live in UK.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/10/2010 7:03 PM (GMT -6)   
It sounds like he has a very weak LES.
He needs to see a doctor as soon as possible. Not just peds doctor but a GI.

I've had experiences with 13 yr olds. They can take "bad" news better than you think. Choose a calm time and keep yourself relaxed. Talk calmly and try not to show any strong emotions. If you're upset he'll get upset. Sit down with him and tell him you want to take him to a doctor to see if he can stop his refluxing (or whatever he calls it) and fix his bad breath. The bad breath is the clincher, teens don't like having bad breath. It's a social no-no. Tell him that it is also best to stop the "bad" foods to help his stomach get better. As long as you remain calm, talk honestly, and calm his fears he should do fine.

Is his bed elevated? It can help him at night.

Good luck and remember stay calm.

Joy

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 3/11/2010 3:11 PM (GMT -6)   
OK well I had the chat with him this evening, and I kinda put it like, "Would you like to do something about the heartburn?" He told me more about it, he really hasn't talked about it for a very long time, and I hadn't realised what he was going through. He refluxes every day, gets food reflux in the day, and acid in the mornings. We did a mini diet assessment, and realised that his main killer food is ketchup. He adds copious amounts to everything. He is very upset about having sicky breath, and was eager to talk about tackling things.

I have concluded that I certainly need to change my GP. Jake has no faith in her, she has disregarded many of his problems in the past, so that is our next task. Meantime, I will see our current one and ask for a referral to a GI for him, and for myself.

All told, I am very impressed with his attitude, but I sensed a good deal of stress in his voice as we spoke about it. He has certain behaviour issues, (dont get me wrong he is a very good lad, but reacts badly to certain foods and has some extremely dark moods) so I imagine he may get depressed at some point, I am preparing for that.

Will keep you guys posted, thanks so much for your input xxx

Oh and yes, I do live in the UK, things are not very good here as regards the Health Service :-(

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/11/2010 8:57 PM (GMT -6)   
I hope that you both get a good doctor.

Joy

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 3/13/2010 9:39 AM (GMT -6)   
Jake has been on a VERY bland diet for 2 days now, and he has reported only very mild acid on the first day, and none today. So it seems we could control this, but I still want him to see a doc. Its just nice for him to have some relief, and his general mood has been much better. Makes me wonder if some of his behaviour issues were not due to GERD all his little life, poor fella. I know it makes me very moody when I am in a bad way!

elymaloa
New Member


Date Joined Mar 2010
Total Posts : 8
   Posted 3/13/2010 10:10 AM (GMT -6)   
Hello I have a 7 yr old with GERD we just found out about 3 weeks ago He really doesn't have the regurgitation just a stomach ache especially if he eats foods that he's not supposed to like Pizza which he loves.. I also have GERD and I would never want my baby to feel the things I feel it's awful. but I think you should just keep him under control with his medications and eating healthy foods for a while and when you see that he is doing really good and having no problems allow him to have the things that he likes but not in excess and not all the time cause it will cause a flareup.. I know how you feel I cried when I was told my son had GERD cause I know what I feel but I think his is not as bad so im going to keep him under control so it won't get worse. Oh yes and another thing I was going to his pedi dr and all they would tell me is that he was constipated and he needed not to hold it so I changed drs took him to my family dr and she sent him for a barium test yes on a 7 yr old he did great enjoyed all the tossing and turning lol but thanks to my Dr we found out he had GERD.

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 3/14/2010 3:41 AM (GMT -6)   
Hi elymaloa, it is hard with children, although poor Jake has suffered for years without any help, so maybe the relief for him will outweigh the annoyance of avoiding things he loves. His GERD is worse in itself than mine, for instance he brings up lumps of food on command, I don't have that all the time. He burns all the time, my reflux is mostly silent unless I eat something very spicey. He doesn't have the throat problems I have, but I guess that is from the years of acid my throat has been subjected to.

my7pinecones
Regular Member


Date Joined Feb 2010
Total Posts : 74
   Posted 3/15/2010 11:25 AM (GMT -6)   
I feel so bad for Jake, especially that your doctors haven't offered solutions. Surgery solved having "chunks" of food coming up at will for me. I would consider having a stomach emptying study also. Sluggish emptying of the stomach leave large quantities of food available for reflux. I hope for of these children get relief. Often when children can experience causal relationships...I eat pizza and I hurt...I eat ... and I don't, they often will choose to not inflict undo pain. However, they really need to see the associations.

Good luck...as always, find the right specialist...insist on this.
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, June 17, 2018 11:51 PM (GMT -6)
There are a total of 2,972,685 posts in 326,005 threads.
View Active Threads


Who's Online
This forum has 160835 registered members. Please welcome our newest member, Donna Tomkins.
286 Guest(s), 1 Registered Member(s) are currently online.  Details
Stoutcee